RecoveringNicholas.com

I’ve been driving myself nuts trying to figure out what caused his continued regression even after we got his supplements back on track.  Then, I had a moment of clarity the other day and it hit me.  Dec 11th, we went from MB-12 every 3rd day to every 2nd day.  It has been mentioned that the TMG (betaine) in the Brainchild Vitamins will compete with the MB-12.  At a lower dose of MB-12, we did not have this issue - and I remember putting back the Brainchild (after I read that you can try adding back the brainchild after you have a baseline on the mb-12 to make sure there was no conflict) - so, at the lower mb-12 dose, there was no problem with the TMG interfering.  But, at the higher Mb-12 dose - what we saw was not pretty.  I just ordered the Sensitive Brainchild formula (does not contain TMG), so I am hoping that this gives me the results the other formula did.  Oh how I wish Brainchild would remove the TMG from the Spectrum II w/ Pak - we had such tremendous success with this supplement.   (Trying DRN didn’t work.  Nicholas absolutely refused to drink anything with that mixed in no matter how many times I tried.)

This is day 4 of not giving him the brainchild spectrum II w/ pak, while I am waiting for the sensitive formula to arrive tomorrow - and we can already see the differences - and believe me they’re not suttle differences.  The MB-12/TMG reaction was not a pretty one, nor one I would like to repeat.  At times, he seemed worse than he was when we started down this biomedical path — except now he talks!

Here’s what happened when MB-12 conflicted with the TMG:

• Nicholas couldn’t even play by himself, which for him - was truly unbelievable.  He has always been able to play by himself - and all of a sudden he couldn’t - it was like he didn’t know what to do.  We actually had to sit with him and guide him through play.
• Don’t get me started on the screaming.  All he did was yell, scream - and it was constant - our house became that loud chaos house.  He NEVER acted like this before - and to watch this unfold has been frightening.  At times, I found myself yelling at him to shut up, which I’m not happy about - but the screaming plays on your nerves something fierce.  Several times, I just had to close myself in my office or bathroom to get away from the noise.
• If you looked at him the wrong way or said the wrong thing, temper tantrums followed.   Geez, talk about walking on eggshells.
• It was taking us hours to get him to bed at night - hours.  (thank goodness we’re back to 10 minutes!)
• Obsessive compulsive behaviors were starting to come out - and we had never really seen this before
• I’ll add more as I think of them….

Keeping my fingers crossed that he gets back to where he was - fast!

I am getting to the end of my rope here — and have been trying new supplments, increasing old ones - in a hope that something works to bring him back to where he was a month ago.  Nothing has worked.  His language is flourishing, which I am happy about, but his behavior is really getting to me.

Anyway, to get him back on track with his supplements after the several days he was off, we increased his Brainchild dose (he was only doing 2 teaspoons out of the actual 6 that make up the dose), so I increased it to 4 hoping to build him back up to where he was - and he’s gotten better in some areas and worse in others.  So, something occured to me yesterday - perhaps this issue is with the TMG (betaine) conflicting with the MB-12.  We did increase the MB-12 dosage Dec 11th, so the timeframe of when he regressed would definately fit.  So, yesterday, we did not give him the brainchild vitamins (since unfortuately, they contain the tmg) - and we switched over to the DRN formula from Kirkman.  I also added extra inositol since I *think* that was the magical ingredient in the brainchild which made him more compliant, more understanding, etc - so I’m hoping this works.  We’ll see….

If this doesn’t work, I’m putting his supplements back to where they were on Dec 11th and going back to the every 3rd day MB-12 injection instead of every other day and see if that works.

This is all I think about anymore…. can’t you tell??