Comments for RecoveringNicholas.com

Comment on Current update on Nicholas by Mom

Mom — Tue, 31 Aug 2010 15:12:56 +0000

Hi Velma,
Yes, when I first gave him his constitutional remedy, he was on all supplements. What happened was, he got sick shortly thereafter and I wasn’t able to get his supplements into him at all - and I saw no backslide. 4 days turned into 7. 7 days turned into 10 and I was in amazement as any other time he had been without for more than a few days, he would inevitably regress. This time, I got past the 2 week mark with him being fine with no supplements. Then, I added back what I considered truly essential to see if I could bring him back to where he was without everything else. It worked. I waited a little while, then started slowly reducing doses until each supplement was down to nothing. It;s been quite some time now and he’s still doing fine.
No, there seemed to be no interference with giving the remedy and supplements at the same time.

Comment on Homeopathy Recovery Story: Autism & Verbal Apraxia by Mom

Mom — Tue, 31 Aug 2010 15:08:36 +0000

Thanks V! Can’t wait to hear all about it!! xoxox

Comment on Homeopathy Recovery Story: Autism & Verbal Apraxia by valicea1977

valicea1977 — Mon, 30 Aug 2010 16:06:19 +0000

I love this story!, 1 more month to go before i see Pierre. We can’t wait! Kisses to Nicholas!

Comment on Current update on Nicholas by VelmaRodrigues

VelmaRodrigues — Thu, 26 Aug 2010 16:17:54 +0000

Hi there! Thanks for posting as much as you did about all the progress that you’ve experienced with homeopathy. I had a question…..when you were 1st given Nicholas’ Constitutional Remedy, were you still giving him the same supplements? And once you seen changes, you decided to back off the supps? There was no interference while giving both at the same time (remedy & supps)? Thanks again!

Comment on Current Master Supplement List: July 2010 by Mom

Mom — Tue, 24 Aug 2010 20:55:12 +0000

Valicea - I am sure I probably answered you on email or IM but wanted to post a reply here too. No, we have stopped chelating. I do not plan on doing any more rounds. I have friends who have gone the homeopathy route without ever chelating their children and they are recovered or almost recovered now. I hope homeopathy works for you like it did for us.

Comment on Current update on Nicholas by Mom

Mom — Tue, 24 Aug 2010 20:52:27 +0000

Hi! You are so welcome. We did biomed (supplements) for about 3 years before adding (well changing to) homeopathy. Have you seen any changes or gains during the past year?

Comment on Current update on Nicholas by becmar

becmar — Tue, 24 Aug 2010 12:25:21 +0000

Hello,

Just want to say.. I just stumbled upon your website a few days ago, my mind is full and my eyes are tired. Thank you for sharing all this information. I am so encourged about your son’s story especially with homeopathy. We have been doing classical homeopathy for over a year now, and I have been feeling so impatient with it, not sure what to do next. we are not doing any biomed yet, not sure if we need to go down that way. Can I ask, when did you start with supplements with your son before homeopathy? thanks so much for sharing.

Comment on Current Master Supplement List: July 2010 by valicea1977

valicea1977 — Thu, 08 Jul 2010 14:26:27 +0000

Hi! I have a few questions if you don’t mind me asking…are you still doing Chelation? and if not, do you plan on doing more rounds?. Do you think that Homeopathy would mean what it means for you now or have done what it have done with Nicholas before all those rounds of Chelation?. We have only done 20 rounds and we can’t continue because my son gets sick with his asthma but 20 rounds made a different here but they weren’t enough to help a lot more on my son’s speech, it did help, he understand a lot more language and some days he is so clear in his words, he also request with words, pictures & gestures…bottom line we are not where we were and of course looking forward to a better state with Homeopathy. Sorry to throw all these questions hope you can answer me. be well!

Comment on Current Master Supplement List: July 2010 by Mom

Mom — Tue, 06 Jul 2010 22:35:27 +0000

Thank you!!!!!!!! Yep, keep me posted!!!

Comment on Current Master Supplement List: July 2010 by valicea1977

valicea1977 — Tue, 06 Jul 2010 20:54:12 +0000

Yes I did it!, I really needed the input. I’ll keep you posted. BTW the interview you had with Pierre its a must listen to! Thanks!

Comment on Current Master Supplement List: July 2010 by Mom

Mom — Tue, 06 Jul 2010 16:49:35 +0000

Thank you so much!!!!!!!!!! Keep me posted on how it’s going for you! (Did you ever get the rest of my message over IM the other night?)

Comment on Current Master Supplement List: July 2010 by valicea1977

valicea1977 — Tue, 06 Jul 2010 16:33:08 +0000

my tears are running down my face Michelle, I am so proud of you!!! I wish you the best of this world, we are taking the homeopathy route as well, thanks so much! Kisses to Nicholas!

Comment on Started Cytoflora today by cmhoward

cmhoward — Mon, 05 Jul 2010 04:29:12 +0000

Thank you for your information regarding CytoFlora! I just posted a question on FaceBook today regarding anyone’s experiences with CytoFlora. We are awaiting strep antibodies test results to see if PANDAS may be an issue for our son, who sometimes develops tics after a viral infection (the latest was the flu, not Strep throat). I had wondered whether the streptococcus thermophilus ingredient might be potentially harmful for those kiddos who may have elevated strep antibodies. It sounds like you have had good results with this product; I am glad. I LOVE your website, btw! Great work!!

Comment on Update on Nicholas… The Introduction of Classical Homeopathy by Mom

Mom — Sat, 26 Jun 2010 19:46:13 +0000

Thanks for your message!!

I’m sorry, I can’t post what remedy we are using because it is Nicholas’s constitutional remedy which is unique to him. It is not a remedy based on symptoms, so the odds of it helping another asd child are slim to none. I answered a few parents on this question and they bought it immediately - as you know, it’s not a supplement, and many don’t understand this and think that if one remedy works for my son, it will work for their child.

I would totally pull them out and try them again and see if anything happens - what do you have to lose?

I don’t agree with the DANs. Homeopathy doesn’t work based on “preparation” done to the body first. I think many classical homeopaths would laugh at such a statement. If I had listened to the “you must heal the gut before chelating” line they try to get you to believe, my son would not be where he is today either.

Good Luck giving homeopathy another shot! I hope you see great things!!

Comment on Update on Nicholas… The Introduction of Classical Homeopathy by Gemmanerys

Gemmanerys — Sat, 26 Jun 2010 19:24:50 +0000

Just curious as to what Remedy you are using. I tried Classical Homeopathy with my two boys late last year for about two months and didn’t see much in the way of results, or so I thought at the time. I do think we saw more than I realized at the time. I’ve still got the remedies in the cabinet and you’ve inspired me to get them back out again.

I’ve also spoken with several DAN docs who have seen great results with classical homeopathy, but only after their patients had undergone a year or so of supplements. One Dr. theorized that you have to get the systems and body chemistry back to some sort of “normalcy” before the body has a chance of healing itself.

I’m curious to see what you think. Glad to hear you are all doing so well. Blessings.

Comment on Welcome by Eliza

Eliza — Tue, 08 Jun 2010 07:06:05 +0000

First of all, thank you for being so open to sharing with us. I am truly so thankful. I am trying to implement a supplement program with my 7y old at this time. He is essentially non-verbal with OCD and stim behaviors. Cost is a major factor for us. In your opinion what do you consider absolute necessity. I know my child has heavy metals from testing. I want to prepare him for chelation. Also,Do you find the ASD L.Silsby Vitamin better than Klaire? worth the price diff.?

Comment on Andy Cutler’s Chelation Protocol by vdas

vdas — Sat, 29 May 2010 18:36:58 +0000

Hi, I want to start AC chelation for my 13 yr old. I am looking for a doc who will supervise the same. Kindly guide me with neccessary information.

Comment on Current Master Supplement List: May 2010 by Summer

Summer — Sun, 16 May 2010 14:25:00 +0000

wow, this is fabulous!! we’re on round #4 this weekend — last 2 rounds we’ve seen mini-meltdowns and nose congestions (only during rounds), but that just tells me something is going on…. I’ll take it

Comment on High Dose Vitamin A Protocol - 3rd Round by Mom

Mom — Sat, 08 May 2010 16:02:54 +0000

Do you have McCandless’s book? I would read her sections on this protocol. I would also check his Vit D and Vit A levels too.

Comment on Wrapping your child’s mattress by Mom

Mom — Sat, 08 May 2010 16:01:32 +0000

You are very welcome!!

Comment on Wrapping your child’s mattress by alicia

alicia — Sat, 08 May 2010 15:07:21 +0000

Thanks for posting how to do this!

Comment on High Dose Vitamin A Protocol - 3rd Round by valicea1977

valicea1977 — Tue, 20 Apr 2010 20:10:33 +0000

Hi Michelle! My son weights 44 lbs [4yrs old] and I would like to try this Vita A Protocol, any recommendation before we start the first ’round’, big Kisses to Nicholas!

Comment on Welcome by Mom

Mom — Sat, 17 Apr 2010 20:29:25 +0000

Em, I used cytoflora for a while - ramped up to the dose where people were seeing great language gains and I kept it at that dose for a while, then I tapered down to a much lower maintenance dose. I kept it there for a while and then removed it with no regression or loss of language. I would not hesitate to use it again in the future to see if we get any additional gains with it.
Do you use any yeast enzymes like candidase, candex or even interfase?
Vitamin E - I bought one from Swanson’s with the mixed tocopherols. I have used Vitamin World’s Vitamin E in the past as well.
Biotin - I have used both NSI from vitacost.com and swanson’s - both are good.
Zinc - I have used the Kirkman’s zinc (capsules) for quite some time
Vitamin K - I have not supplemented K separately - but know of those who use the ones from ourkidsasd.com.

Comment on Andy Cutler’s Chelation Protocol by Mom

Mom — Sat, 17 Apr 2010 20:24:32 +0000

Yes, I begin Friday after school and continue right up until he leaves for school on Monday morning. Now, I just carry capsules - but prior to him swallowing capsules, I carried around the syringe with an icepack and we did well with that.

Comment on Welcome by Em

Em — Tue, 13 Apr 2010 23:11:47 +0000

Our DAN doc wanted us to try VSL #3 because it is a high potency probiotic but I opted not to because it contains the strep strain. Instead, I have my son on Custom Probiotics (D-Lactate Free formula). I don’t know if it’s really helping yet. I was giving my son Klaire Ther-Biotic De-Tox but felt it wasn’t strong enough on its own. I wasn’t sure if I should give more than one brand at a time. I am interested in the Cytoflora — is this to be used in more of a “maintenance” situation once the gut is healed? We currently have a lot of gut issues. My son is on an antibiotic (bactrim)/antifungal (alternating between diflucan and nystatin) protocol at the moment. Any input from you would be appreciated!
Also, I am interested in knowing which brands you use for:
Vitamin E
Vitamin K
Biotin
Zinc
Many thanks (I am a new reader to your blog),
Em

Comment on Andy Cutler’s Chelation Protocol by Summer

Summer — Thu, 08 Apr 2010 17:19:34 +0000

Michelle, do you begin Friday after school and continue until early Monday morning? If you are going to be out during a dosing time, you carry a syringe(s) in a cooler? Just trying to get a handle on the logistics and any supplies I need ahead of time. So far it seems just syringes is all I’ll need — and OJ!

Comment on Andy Cutler’s Chelation Protocol by Mom

Mom — Sat, 03 Apr 2010 03:17:24 +0000

Summer - the file says that because you can do Cutler’s protocol with ALA only as many are doing/have done. Many have found that they have had a better experience using dmsa only first and then adding ala later.

Comment on Andy Cutler’s Chelation Protocol by Summer

Summer — Fri, 02 Apr 2010 22:25:02 +0000

As you know, I’m headed this direction, but I’m confused… your post says the protocol is Dosing - 1/8 to 1/2 mg of DMSA (and then add in ALA after a few rounds or months if there was recent mercury exposure) per pound of body weight…” However the file in the yahoo group says, “this detoxification protocol uses alpha lipoic acid (ALA), an over the counter nutritional supplement, and may optionally also use DMSA or DMPS.” So, I guess I’m asking a “chicken & egg” question Maybe it doesn’t matter which we start with?

Comment on Win a copy of Jenny McCarthy’s ‘Louder Than Words’ Book by Kyrie32

Kyrie32 — Thu, 25 Mar 2010 13:53:17 +0000

This book touched my heart, because it was the very beginning for me in my decision to become a mother warrior. Jenny is an amazing mom who would stop at nothing to help her son. There is hope for every child with autism. It takes just ONE step to find the courage to try another step. Keep going, don’t look back, and then there will be NO stopping you when you realize that hope and determination mean everything in changing the life of your child with autism for the better.

Comment on Current Master Supplement List: March 2010 by Mom

Mom — Sun, 21 Mar 2010 19:44:07 +0000

Hi Alicia…
I had to add bacterials since he had a flare of clostridia. The Wild Oil of Oregano took care of that nicely.
I added the coconut oil because of all of the health benefits associated with it.
We’ve done McCandless’s High Dose Vitamiin A protocol twice now and he is on the daily maintenance dose.
I’m not sure on the mag complex yet honestly. I may switch to something else.
Nope, give the aloe anytime - that stuff rocks!

Comment on Current Master Supplement List: March 2010 by alicia

alicia — Sun, 21 Mar 2010 01:42:46 +0000

Michelle, I am surprised you are back giving more anti-bacterials…OoO two caps and Coconut oil. What made you want to do that as per before? Also, can you tell me why you give Vit. A. Are you liking the Magnesium complex? Also, does the Aloe vera, need to be given away from probiotics? Thanks!

Comment on Update on Nicholas by Mom

Mom — Thu, 04 Mar 2010 20:03:16 +0000

Summer, I think AC chelation played a huge role in his progress - maybe 80% of it or even more.

Comment on Update on Nicholas by Summer

Summer — Wed, 03 Mar 2010 13:25:42 +0000

Michelle, I haven’t had a chance to read in detail, but just scanning thru blew me away. What fun you are having!! I’m curious… how much of the AC chelation do you feel played a part in Nicholas’ progress versus the other supplements combined?

Comment on Update on Nicholas by Mom

Mom — Wed, 03 Mar 2010 05:01:34 +0000

Amy - isn’t it amazing? Some of the things he says shock me to no end. These kids hear EVERYTHING even if you think they didn’t hear anything. They are in there soaking it all in. Last summer, we had to put my parents dog down - we never said a word… one day while playing, Nicholas says with one train to the other, “Max is in the hospital dying” - I was so taken back. I knew he heard me say Max and hospital, but I never said dying to anyone. - Then, not long ago, Nicholas is looking at a picture with my father in law, husband and his grandfather. He points at the grandfather and says he’s in heaven and needs to come back to earth. Where that came from, I will NEVER know. A while ago, Nicholas said to me, “Mommy, I want my voice back!” - This one in particular blew me away. I never used that terminology. I asked him what he meant, he said he was having trouble talking. These kids are all in there, we just need to get them out.

Comment on Update on Nicholas by Mom

Mom — Wed, 03 Mar 2010 04:57:07 +0000

I cried writing it by the way…

Comment on Update on Nicholas by Mom

Mom — Wed, 03 Mar 2010 04:56:48 +0000

Thank you so much - you are right, they don’t understand the significance! They are the troopers, that’s for sure!!

Comment on Update on Nicholas by Amy in Idaho

Amy in Idaho — Wed, 03 Mar 2010 01:34:44 +0000

Fantastic! Your journey has been truly amazing and inspiring. As my son develops more spontaneous speech and expression, I’m amazed at the things he references. These are things that were going on around him in the ‘darkest’ of times yet it’s evidence that he was aware of things and was processing them. I’ve always felt that this was so and having him blurt out things just confirms it for me. It’s so important to tell our kids every day that we love them, that we believe in them and that they are capable of doing great things. Thanks for sharing and congratulations on these recent developments.

Comment on Update on Nicholas by T Critch

T Critch — Tue, 02 Mar 2010 02:34:22 +0000

Wow, your son is a miracle. I cried reading a lot of it. All the little things are so HUGE, and other people don’t understand the significance. We are still a long way from there, and it sometimes feels like we will never get there. But reading these kind of outcomes and improvements keep us going. Our kids are such troopers enduring all that they do as we work towards recovery. Happy for you guys!

Comment on Saturday with Mommy & Nicholas by Mom

Mom — Mon, 01 Mar 2010 23:50:47 +0000

Thank you so much!! We are definately enjoying every moment with him. Check out my newest post - he’s really amazing.

Comment on Saturday with Mommy & Nicholas by valicea1977

valicea1977 — Mon, 01 Mar 2010 20:44:59 +0000

Oh! Michelle this is wonderful!!!!! I loved when he wanted to help you with your coat!!!!
Congratulations Michelle!!! Enjoy the whole thing!!!!!!!!!!!!! you deserve this and a lot more!!!!!!!!!!!!!!

Comment on Saturday with Mommy & Nicholas by Mom

Mom — Mon, 01 Mar 2010 04:11:08 +0000

Thank you so much Kristine!!

Comment on Saturday with Mommy & Nicholas by Kristine Lewis

Kristine Lewis — Mon, 01 Mar 2010 02:25:06 +0000

Oh Michelle! I rejoice with you!!! The best is yet to come!…..Kristine

Comment on Recovery from Autism is a journey… here are a few tips by Mom

Mom — Fri, 26 Feb 2010 04:50:22 +0000

You’re welcome. Thank you so much. I end up typing these so many times in one form or another, I figured I might as well post about it.

Comment on Recovery from Autism is a journey… here are a few tips by T Critch

T Critch — Thu, 25 Feb 2010 19:14:45 +0000

I loved this, thank you. It is nice to have all those little reminders that keep us on track. I know I often get side tracked or tunnel vision. These are great tips, I know they refocused me.

Comment on Started Cytoflora today by Mom

Mom — Sat, 13 Feb 2010 19:43:17 +0000

We’re currently at 5 dropperfuls 2x a day. Great results - definately worth the money!!!

Comment on Started Cytoflora today by Wendy

Wendy — Sat, 13 Feb 2010 19:39:06 +0000

Love that you are seeing good things on cytoflora too. The cytoflora and the AC chelation seem to be key here too. We are seeing incredible things almost daily! I am going to try upping Chloe’s dose when our new bottle gets inere in a day or two. We are still at 7 droppers once a day on an empty stomach. Keep updating on what you see!

Comment on Welcome by Mom

Mom — Fri, 12 Feb 2010 22:04:33 +0000

I bought a bottle of NDF Plus and I ended up giving it away. There’s just not enough information out there for me to consider giving chorella as a chelator. Nicholas has done beautifully on dmsa and ala, so we’re sticking with that.
Yes, he gets alot of vitamin A every day. He is on the daily maintenance dose of McCandless’s High Dose Vitamin A protocol which we’ve done twice and are about to do for the 3rd time. I do monitor his A levels and keep an eye out for any signs of toxicity. Keep in mind, he weighs over 80lbs, so that high of a daily dose of A wouldn’t be the same for a 40lb child.
I originally used Kirkman’s DMG for a long time, but then switched to the Aangamik DMG from Food Science of Vermont because of raves I was hearing from other parents (http://www.iherb.com/FoodScience-Aangamik-DMG-Liquid-300-mg-2-fl-oz-60-ml/3287?at=0 $5off with code TUM744) and saw way better results with this one. You just have to keep in mind that 125mg of dmg needs 400mcg of folic or folinic if you see any negative reaction.

Comment on Welcome by T Critch

T Critch — Fri, 12 Feb 2010 21:20:10 +0000

Thanks, no my little guys gut is in terrible shape. I see that you use the liverlife and cytoflora, have you tried the NDFplus at all?
Also, between your multivitamin and cod liver oil etc, there is a lot of vit A. Do you monitor his levels for toxicity? I have been worried about how high to go with vit A. We use the Lee Silsbys ultra pure also and it has quite high vit A.
For your DMG are you using the kirkaman 125mg capsules?

Comment on Started Cytoflora today by Mom

Mom — Fri, 12 Feb 2010 17:41:19 +0000

Go for it! Let me know how it goes!!

Comment on Started Cytoflora today by Amy in Idaho

Amy in Idaho — Fri, 12 Feb 2010 15:33:02 +0000

That is awesome! I didn’t see your update until today So happy that things are progressing in the right direction for Nicholas and for you. Thanks for all the info you provide and I’ll crack open the bottle of cytoflora I have in the cupboard!!

Comment on Round 68 Complete! by Mom

Mom — Fri, 12 Feb 2010 07:47:11 +0000

Hi Kristine!
I did not stop aminos while chelating. I have stopped them now because I suspect they caused him to gain too much weight, but not for any other reason.
How has the glutathione been working for you? If it’s working, I would think twice about removing it. If you’re not seeing much, I wouldn’t keep spending the $$ on it.
I have had your reply open on my pc for days — so sorry, I am a bit behind!!! I’m going to finish it now….

Comment on Welcome by Mom

Mom — Fri, 12 Feb 2010 07:44:34 +0000

Hi Taryn - Thank you so much for the compliments!!!
I ramped up Cytoflora pretty quickly, but I wouldn’t recommend it - unless you know his gut is in pretty good shape. I initially started at 6 drops, but then heard others started higher so, day one, I did 1 dropperful 2x a day. Day 2: 2 dropperfuls 2x a day. Day 3: 3 Dropperfuls 2x a day. Day 4: 4 Dropperfuls 2x a day. Day 5: 5 Dropperfuls 2x a day. The only negative reaction I could see what that he was a bit tempermental and cranky, but that passed.

Comment on Welcome by Mom

Mom — Fri, 12 Feb 2010 07:41:48 +0000

Hey Lauren - No, I don’t mind at all!!

Comment on Round 68 Complete! by Kristine Lewis

Kristine Lewis — Thu, 11 Feb 2010 18:44:59 +0000

Hi …I just started reading your blog 4 days ago and want to say “thank you” you have provided a wealth of invaluable information. I sent you an e-mail several days ago, but got a lot of those questions answered as I continued to read through “everything” on the site. I also ordered Andy Cutler’s books and can’t wait to get started chelating my son Micah. I do have a question after looking at his web site. When you start chelating are you able to supplement with any amino acids or is it just glutathione that you shouldn’t “supp”? Again I can’t say thank you enough for your transparency…..Micah’s Mom

Comment on Welcome by T Critch

T Critch — Wed, 10 Feb 2010 16:44:43 +0000

Thank you so my for your site, it is the most detailed blog I have found regarding biomedical. Your attention to detail is so helpful. I found it while researching Enhansa for my 4 year old son, diagnosed ASD.
We have just started Cytoflora 4 days ago. We started at 6 drops 2x day, increasing by 1 drop a day. How quickly did you increase? and did you notice any negatives doing it? I know it is starting to work as my son is having well formed stools for the first time in his life.
I can’t tell you how much I appreciate the time you have put into your website, I have added it to my favorites and look forward to hearing about your sons continued progress. Thanks
Taryn

Comment on Started Cytoflora today by Mom

Mom — Fri, 05 Feb 2010 21:14:35 +0000

*just edited post to reflect 5 dropperfuls 2x a day (not 2).

Nicholas is doing great on this! We’re up to 5 dropperfuls 2x a day and we’re seeing more language, he’s more in tune with us and he really just wants to help us with everything. ….and we’re getting WHY questions!!!

Comment on Started Cytoflora today by Mom

Mom — Fri, 29 Jan 2010 14:45:16 +0000

This is totally totally totally pre-mature - but yesterday, he was talking like no tomorrow. The stuff coming out of his mouth had us looking at each other in utter shock. (This was at 3 dropperfuls which I gave him twice.) Today, we’re doing four twice. We shall see.

Comment on Welcome by lauren

lauren — Thu, 28 Jan 2010 19:54:24 +0000

hi have followed you from fb, hope you dont mind, but i need somebody who knows what they are talking about!! much love
lauren

Comment on Started Cytoflora today by Mom

Mom — Thu, 28 Jan 2010 05:15:04 +0000

I gave him 1 cap (100mg, I believe) 3x a day. that seemed to do the trick.

Comment on Started Cytoflora today by Amy in Idaho

Amy in Idaho — Thu, 28 Jan 2010 03:42:49 +0000

My son gets some L-Theanine but I’m not sure it’s enough. What dosage are you at? My son is 60 pounds (7 years old).

Comment on Started Cytoflora today by Mom

Mom — Wed, 27 Jan 2010 23:10:09 +0000

No, I did not continue with oxytocin. (I should update that thread, thanks for the reminder!) - We really was not thrilled with the sprays up the nose. I never saw anything from the 2 or 3 sprays per day, but then heard we could do up to 8 sprays per day. I just *knew* Nicholas was never having that.
Have you tried L-Theanine for the anxiety? It works great here - I even have family members take it when they’re stressing or anxious.
I love Liver Life here - it really does help.

Comment on Started Cytoflora today by Amy in Idaho

Amy in Idaho — Wed, 27 Jan 2010 22:24:20 +0000

Thanks for the update! I was a bit concerned about the Strep strain too so that’s great that you’re not seeing any OCD. I was wondering - are you still doing oxytocin? Did you see any good things from it? My son has quite a bit of anxiety so I’m always looking for something to help. BTW, I ordered cytoflora and liverlife yesterday so I’m hoping to get that started soon.

Comment on Started Cytoflora today by Mom

Mom — Wed, 27 Jan 2010 20:54:53 +0000

Amy, I updated my post - I dont know if you would get an automatic update or not…
Anyway, we’re up to 2 dropperfuls 2x a day. No negatives whatsoever. I haven’t seen anything just yet. Also, one thing which was important to me as this does have the strep strain is whether or not this would make Nicholas OCD. On other probiotics which have the streptococcus strain, he would start with OCD tendencies within a few days. As of today, we are not seeing any signs of OCD.

Comment on Started Cytoflora today by Mom

Mom — Mon, 25 Jan 2010 20:22:19 +0000

Hi Amy! I will definately keep you posted!!

Comment on Started Cytoflora today by Amy in Idaho

Amy in Idaho — Mon, 25 Jan 2010 19:15:07 +0000

Cytoflora is on my list of things to try. I’m anxious to learn about how it helps Nicholas!

Comment on Supplement Directory by RecoveringNicholas.com » Current Master Supplement Listing: January 2010

RecoveringNicholas.com » Current Master Supplement Listing: January 2010 — Mon, 04 Jan 2010 19:17:12 +0000

[…] For info on these supplements including where to buy them, visit my Supplement Directory page. Changes since the last update […]

Comment on Round 61: Complete by AutismMom

AutismMom — Sun, 13 Dec 2009 06:32:16 +0000

Hi Mom,

I love your blog. It is so wonderful to learn what you have done for your son through your blog. My son is diagnosed with autism too and am doing biomed. I wish I came across your blog sooner - I had read so many recovery stories on the net - but usually, the stories are short and not in detail. I always wanted to know what exactly they did and why they did. Now this blog of yours is a guide to me.

Thank you for sharing.

Comment on Is Dr. Oz’s SIGA Technologies lying about Vaccine-industry link? Sure looks that way! by Mom

Mom — Fri, 13 Nov 2009 14:22:46 +0000

Awesome work Jennifer!!! Jennifer is a friend and fellow warrior mom. You can read her blog here: http://fortheloveofmybugs.blogspot.com/

Comment on Washington Redskins Cheerleader Desiree Jennings permanently disabled after seasonal FLU vaccine by RecoveringNicholas.com » Recovery is Possible and Happening before our very eyes….

Thu, 05 Nov 2009 04:06:43 +0000

[…] In case you have not yet heard of Desiree Jennings, the cheerleader who now suffers from dystonia after receiving a FLU vaccine, you can see the original story here: http://recoveringnicholas.com/2009/10/23/washington-redskins-cheerleader-desiree-jennings-permanentl… […]

Comment on Current Master Supplement Listing: November 2009 by Mom

Mom — Mon, 02 Nov 2009 04:11:19 +0000

Alicia - nothing was making him crazy before we took him off of everything. It just happened as a coincidence and I gave him a break - partially because I wanted to see how well he would do without the supplements and for how long - and I was pleasantly surprised. I put back what I feel are his essentials. When I added back in the additional zinc, it made him act like a crazy man, so I stopped giving him the additional zinc. He is still getting the zinc from his multi vitamin and that’s all he’s getting. We have not seen any signs of zinc deficiency at this point, so we’ll continue without the additional for now. Yes, even with chelation, he does not seem to need the extra zinc.
The acetyl-l-carnitine has been great for his language and cognition. The L-Carnosine has been great for language as well.

Comment on Current Master Supplement Listing: November 2009 by alicia

alicia — Mon, 02 Nov 2009 03:31:57 +0000

one more! Andy recommends more zinc, have you found even with chelation that he doesn’t need extra zinc?

Comment on Current Master Supplement Listing: November 2009 by alicia

alicia — Mon, 02 Nov 2009 03:30:53 +0000

Wow this is interesting that you cut lots out, great news though! You are brave for taking him off for a while. Before you took him off, could you tell that it was making him crazy? Do you mind telling me what you see with L-carnitine? Thanks

Comment on Supplement Directory by RecoveringNicholas.com » Current Master Supplement Listing: November 2009

RecoveringNicholas.com » Current Master Supplement Listing: November 2009 — Sun, 01 Nov 2009 07:28:21 +0000

[…] For info on these supplements including where to buy them, visit my Supplement Directory page. I have made major changes since my last update. Nicholas is no longer drinking supplement juice - […]

Comment on Wrapping your child’s mattress by RecoveringNicholas.com » Cause of SIDS discovered?

RecoveringNicholas.com » Cause of SIDS discovered? — Wed, 28 Oct 2009 03:02:11 +0000

[…] - I posted instructions on how to wrap your mattress here: http://recoveringnicholas.com/2009/02/03/wrapping-your-childs-mattress/ « GFCF Diet on a budget…. possible even on food […]

Comment on Started L-Carnosine by Mom

Mom — Mon, 26 Oct 2009 12:18:14 +0000

We couldn’t do the night thing with the shots either. The first couple of nights was fine, then he would be on “butt guard” - so I started cutting a panel into his diapers (at the time) and he knew there was a hole there. He could be in a dead sleep - if he heard a sound in his room, his hand would swing around automatically to cover his butt.
So, I started doing it on the sneak - he was a climber way back when, so if he was up on something, I gave it to him. I still have to do it via sneak attack, but most of the time, I can end up winning - but EVERY single time I have a shot in my hands, this child knows!
COMT is blood. Catechol O-methyltransferace
That is awesome about medco!!

Comment on Bill Maher on Vaccines by uberVU - social comments

uberVU - social comments — Mon, 26 Oct 2009 06:07:43 +0000

Social comments and analytics for this post…

This post was mentioned on Twitter by dominique6138: Bill Maher trying to have a healthy debate about vaccines with a bunch of idiots: http://bit.ly/25xZji…

Comment on Started L-Carnosine by Summer

Summer — Sun, 25 Oct 2009 02:57:22 +0000

Wow, Medco just responded back via e-mail that based on the NDC# I provided (which is all I provided), they do cover Lee Silsby’s ASD formula!! I’m going to call them on Monday to verify again. Can’t believe I just got good news on the insurance front… haven’t had much of that lately!!

Comment on Started L-Carnosine by Summer

Summer — Sat, 24 Oct 2009 12:16:36 +0000

We tried the shots for several weeks when he was about 3.5 years old — started off OK, but midway thru he started freaking out about it. Tried during the night, but he’d feel me pulling down the PJ’s and freak out before I could even give it. Nightmare. But, it’s tough to ignore just about every test we run stresses the need for additional B12, and he says the nasal & oral don’t even show up on the radar in comparison to the injections. Told him I’d try again, but waiting until the Brainchild runs out since it has the TMG in it. How is the COMT test run? Blood? Urine?

Comment on Started L-Carnosine by Mom

Mom — Sat, 24 Oct 2009 03:43:26 +0000

Ahhh gotcha. I knew medco did mail order, never realized they did the other either. Nicholas is on Lee Silsby’s Ultra Pure ASD formula. Going from the cost of brainchild to a $15 copay made me do a happy dance. Sure, I can send some over - I am sure I have some here still. Remind me and I’ll check the package on dose size. I remember I got it to dissolve in juice with no problem.
mb12 has always been good here. although I’d like to do the COMT test to see if it should be hydroxy instead of methyl.

Comment on Started L-Carnosine by Summer

Summer — Sat, 24 Oct 2009 02:12:46 +0000

Sorry, I didn’t say that quite right — I just mean that Medco pays our prescriptions, but they aren’t shipping any of them. I emailed the NDC# for Lee Silsby’s formula, but as Medco didn’t cover Enhansa, I’d be shocked if they cover the multi. Is Nicholas still on Klaire’s formula or did you switch to Lee Silsby? I have never ordered from Klaire before. Would love a sample, if you don’t mind!! Is it very different from Lee Silsby’s as far as dose size, powder texture, etc…? Need to finish our SSIII before switching (about 1/2 bottle left), so no rush It really would feel strange to be on anything other than Brainchild… it’s all we’ve known!! DAN is practically begging us to try MB-12 injections again, not looking forward to that (at all).

Comment on Started L-Carnosine by Mom

Mom — Sat, 24 Oct 2009 02:00:04 +0000

Summer - if you have ordered from Klaire in the past, I do believe they will send you a sample if you ask. If not, let me know - I have some here I can send you.
What do you do if you have to have something right away and can’t wait for medco to ship it to you?

Comment on Started L-Carnosine by Mom

Mom — Sat, 24 Oct 2009 01:58:26 +0000

I dont think L-Carnosine is depleting zinc at all. I took Nicholas off all the extra zinc he was getting and have not noticed any adverse effects. I never heard of carnosine being associated with seizures. We have noticed a nice language boost from it, so we’re keeping it on board.

Comment on Started L-Carnosine by Summer

Summer — Sat, 24 Oct 2009 01:43:07 +0000

Alicia, sorry I’m just now getting back here and seeing that you asked me a question! We have never checked Ethan for absence seizures. Are you saying that L-Carnosine can stave those off, and that’s what’s giving the language a boost? I hadn’t heard that. He was dragging before I added the L-Carnosine — had just started back to pre-K, so I think he was just exhausted I’m still giving the extra B-6, but may start backing off to see if he can hold his own without it, now that he’s been back on his school schedule for awhile. Still loving the language gains from L-Carnosine! Now I’m searching (again) for a multivitamin/mineral in hopes of saving some money (currently on Brainchild). Our prescriptions go thru Medco, and I don’t think they cover anything that’s a dietary supplement, even if it’s prescribed (i.e. Lee Silsby ASD), and without that coverage, Lee Silsby is as expensive as Brainchild. VitaSpectrum is inexpensive, but I haven’t run across a sample size being available to order. We’ve been on Brainchild for about 2.5 years now — believe it or not, he drinks it straight with all other supps mixed in!

Comment on Safety and Efficacy of Oral DMSA Therapy for Children with Autism Spectrum Disorders by Mom

Mom — Fri, 23 Oct 2009 23:25:08 +0000

This is exactly what Andy Cutler has said all along - especially the part of dmsa raising glutathione. We have seen amazing progress using his low and frequent dose protocol.

Comment on Update on Nicholas by maya

maya — Sun, 04 Oct 2009 19:12:08 +0000

This is amazing. Thank you for this beautiful post !
Go Nicholas !!!! I am so happy for you Michelle ! I am actually crying ! I cant wait for my baby to get there !

Comment on Round 50 Complete! by maya

maya — Wed, 16 Sep 2009 20:54:52 +0000

wow ! congratulations !!! time has gone by so fast ! we finished our round 21 !!!! this week we will do round 22 ! cant wait to touch round 50 and to see whats in store for us at round 50 !!! on the side, we are thinking of starting of HBOT this week. if you have anything that i need to remember for HBOT, please email !!!! hugs to nicholas !!!

Comment on Started L-Carnosine by alicia

alicia — Wed, 16 Sep 2009 03:17:35 +0000

We also started carosine and noticed improvement in language right away. I’m wondering if that means he is having unnoticed seizures. Have your guys been checked for seizures? Also, have you noticed it depleting zinc at all? On Dana’s list from autismweb she said it depleted her son’s zinc. So I’m concerened about that.

Also, Summer you said your son is dragging a bit. Do you think it’s from the carosine? I’m doing many similar supplements as you and Michelle, and I’m trying to figure out why my son is dragging so much lately. Thanks.

Comment on Started L-Carnosine by Summer

Summer — Fri, 04 Sep 2009 02:35:40 +0000

Well, we are now seeing some language gains, even his pre-K teacher mentioned it yesterday! More spontaneous, more complex, more responsive. He’s been on the L-Carnosine (200mg 2x per day) for almost a week now. In addition, a few days ago I added an extra 50 mg of P-5-P which puts him to 75 mg daily. He really needed an energy boost, he drags quite a bit. So, is the language change due to the L-Carnosine or the P-5-P? Guess I’ll never know, but not willing to drop either one just yet!!

Comment on Started L-Carnosine by Summer

Summer — Mon, 31 Aug 2009 16:50:16 +0000

The study lasted 8 weeks, so maybe it’s worth giving it that long? I read on autismweb.com that several saw immediate improvements, within the first couple of days. I’m going to double the dose to the study amount and see if that helps, since we’re not having any hyperactivity at our current dose. Thanks!

Comment on Started L-Carnosine by Mom

Mom — Mon, 31 Aug 2009 14:06:11 +0000

I’m not seeing anything major that makes me go wow in the language department. We’re doing 500mg 2x a day. Have to look into how long I should give this a try before dropping it if nothing happens, any idea?? I cannot remember for the life of me!

Comment on Started L-Carnosine by Summer

Summer — Mon, 31 Aug 2009 11:56:45 +0000

I started Ethan on L-Carnosine too, but haven’t seen the immediate effects that some have. What are you seeing? After reading about potential hyperactivity, I started low at 200mg 2x per day. Maybe I should go ahead and bump up to the “study” dose of 400 mg 2x per day.

Comment on Loving the RevitaPOPs!! by amber

amber — Thu, 13 Aug 2009 21:31:41 +0000

Michelle, impressive! I want to try for my son too. He didn’t do well with the injections. Hope this will help. Can you me the referral email? Thanks.
Amber

Comment on Started Nicholas on Armour Thyroid today by kotesh

kotesh — Thu, 13 Aug 2009 20:43:50 +0000

We got his blood work results today. His TSH is even higher now. It is now at 6.37. I am getting scared as it is going high consistently. I am going to check with my DAN to see what he says. Thanks

Comment on Loving the RevitaPOPs!! by Mom

Mom — Sat, 08 Aug 2009 19:00:23 +0000

No, we have not. I’ve never actually run one at all - we saw great progress on adding the mb-12 shots and then from starting chelation that we never even had to.
They taste good - I doubt you would have a problem getting him to eat one. Most of the time, Nicholas goes looking for more - I had to hide them.

Comment on Loving the RevitaPOPs!! by autismsbitch

autismsbitch — Sat, 08 Aug 2009 18:04:18 +0000

Did you by any chance do a UTM afterwards? We did a B12 patch last week and did a UTM after. He pulled a lot. I’m going to try to get my son to take the RevitaPops. Hope he will…he needs all the B12 he can get.

Comment on “Mommy, give me back my voice!” by Mom

Mom — Thu, 30 Jul 2009 04:28:59 +0000

Thank you — It definately is mine too!!

Comment on “Mommy, give me back my voice!” by autismsbitch

autismsbitch — Thu, 30 Jul 2009 03:45:21 +0000

This is awesome! Language is my favorite recovery piece.

Comment on Update on Nicholas by Mom

Mom — Wed, 29 Jul 2009 02:32:09 +0000

Thanks Maya. He just surprises us with something new everyday it seems.

Comment on “Mommy, give me back my voice!” by Mom

Mom — Wed, 29 Jul 2009 02:31:42 +0000

Thanks everybody!! Nicholas has been doing so much better. We’re not 100% out of yeast-ville yet, but we’re getting there.

Comment on “Mommy, give me back my voice!” by Mom

Mom — Wed, 29 Jul 2009 02:30:58 +0000

Thank you Maya!!! I really appreciate that!!

Comment on “Mommy, give me back my voice!” by Mom

Mom — Wed, 29 Jul 2009 02:30:30 +0000

Vanessa - thank you so much!! It made me cry too - but a good kind of cry - because it shows how far we’ve come. But agony because it hits you because then you know that they know more than you thought they knew.

Comment on “Mommy, give me back my voice!” by Mom

Mom — Wed, 29 Jul 2009 02:29:30 +0000

Alicia - It is so true!!! I increased the enhansa from 900mg to 1200mg. I also added amla during his round as I had read it can also be anti-fungal (not really sure about that though)

Comment on “Mommy, give me back my voice!” by maya

maya — Wed, 29 Jul 2009 01:17:33 +0000

poor baby ~ i cant imagine what he must be going through but he is going to be fine because his mommy loves him so much and will do anything to bring his voice back !

Comment on Update on Nicholas by maya

maya — Wed, 29 Jul 2009 01:16:17 +0000

simply amazing ! i am so glad for you guys !!! way to go nicholas !!!!

Comment on “Mommy, give me back my voice!” by valicea1977

valicea1977 — Tue, 28 Jul 2009 17:07:29 +0000

Hi Michelle!
I am so glad he is doing better now, this made me cry because I read a lot about Nicholas and all his progresses and all that make me feel close to him, I also know how hard you work for him. Keep fighting Michelle!!!! Wish you the best!
Vanessa

Comment on “Mommy, give me back my voice!” by alicia

alicia — Tue, 28 Jul 2009 00:45:19 +0000

It’s so true they know we are fighting for them! And they know it helps, why else would our sweet children swallow the horrible things we concoct for them. I am always amazed Caleb will open his mouth for a syringe or eat the latest concaction. I am curious what you upped for the yeast protocol. While chelating I’ve been giving Nystatin, Enhansa 475mg, caprilic acid alternating with Oil of oregano, and he’s still a little yeasty. Yeast wants to steal their voices, it’s so true, I hate yeast!!

Comment on “Mommy, give me back my voice!” by Mom

Mom — Mon, 27 Jul 2009 05:16:58 +0000

Thanks Wendy! Of course I don’t mind. I agree - it makes me hurt when I think of how he must feel saying something like this. It was one of those moments in life that I will remember forever. Like I said on facebook, it truly inspired us. (I’m so glad I had witnesses for him saying all of this!) We are still a little bit shocked at what he said and it brings both tears of joy and heartache. It is so bittersweet. I totally agree with you - our kids are in there being held prisoner hearing and seeing everything even though we we may not think we are getting through sometimes and I know I have had those moments. Chloe will be free one day, I know she will - she has an awesome warrior mom fighting for her. This made me think of all of the kids who aren’t being helped because their parents just don’t know - and it was a good reminder to me as well as inspiration to think about just how lucky kids like Nicholas and Chloe are to have parents like us who fight to give our kids their voice.

Comment on IgG Food Antibody Assessment Results by Mom

Mom — Mon, 27 Jul 2009 05:12:10 +0000

Thank you - we all gotta stick together! And you as well!!

Comment on “Mommy, give me back my voice!” by Wendy

Wendy — Mon, 27 Jul 2009 04:49:03 +0000

I am so glad he is doing better. I posted this on my facebook. I hope that is okay. I wanted to share it so some people on my list could see it. This makes me hurt to think Chloe is in there and can’t get out but I firmly believe she will be free of this one day…..hope they all are.

Comment on IgG Food Antibody Assessment Results by valicea1977

valicea1977 — Thu, 23 Jul 2009 19:55:16 +0000

Michelle THANKS for this information! nothing like a mother with experience! May HE bless you and your family!

Comment on Started Nicholas on Armour Thyroid today by Mom

Mom — Thu, 23 Jul 2009 13:25:21 +0000

Since adding both the armour thyroid and adrenal cortex, his TSH has come down, but it was still on the higher end of the range, so we doubled the dose of armour. We have not yet tested it again to see where it is.

Wow — that is quite a jump in 3 months. If those don’t give you any answers, I would try having his cortisol checked as well. Also, has he gained any inches during that time? If not, I would suggest checking his growth hormone as well.

Comment on Started Nicholas on Armour Thyroid today by kotesh

kotesh — Thu, 23 Jul 2009 12:48:22 +0000

You explanation here is very interesting. My son’s TSH was 4.48 in May 2009 and was around 2 in Feb 2009. He is now 3 year 1 month old, non verbal. He has not gained any weight in last 13 months. We are going to have blood work in the next week. We are going to do Free T3, Free T4 and TSH.

How is Nicholas Thyroid now with the supplementation of Adrenal Cortex Extract?

I appreciate your input. Thank you

Comment on IgG Food Antibody Assessment Results by Mom

Mom — Thu, 23 Jul 2009 03:29:14 +0000

Don’t write off Enhansa. After AC chelation, I have to say Enhansa has been our #2 intervention so far - it is amazing stuff. You just need to start at a low dose and increase the dose slowly.
With the mb-12 shots, are you giving folic/folinic acid also? This could really help if he is not getting any.
TMG and DMG also both need folic/folinc acid. For example, for every 125mg of DMG, you need 400mcg of folic/folinc.
I am not sure what the DMG is made from - I would call the manufacturer directly and find out. ALSO - TMG and MB-12 together can be a big no=no for alot of kids as they compete for the same receptors. Do a search on my blog for TMG and mb-12 and you can read what we went through with that.

Comment on IgG Food Antibody Assessment Results by valicea1977

valicea1977 — Wed, 22 Jul 2009 20:34:26 +0000

THANKS SO MUCH!!!! I’m so glad you are there!!!….I will give it a try to George’s Aloe Vera Juice and Transfer Factor! I always think about Enhansa but I’m a little afraid on the side effects..
We started with mb12 shots….OMG my son is not a happy camper with that…we are at 1 shot per week for now….haven’t seen much of the different yet, he repeats words but if you ask him to do so, don’t see spontaneous words unless he really wants something….[sigh– can’t wait to hear 2 words together!].
I did a trial of TMG, didn’t work quite well…he got a little emotional. I am going to see if he was really needed DMG, I started with TMG thinking that was better but guess what! my son doesn’t tolerate beets! no wonder TMG didn’t work quite well….Do you know if DMG is made out of beets as well?
Thanks for being there for me…don’t care how long you take to answer so don’t worry!
Thanks!
Vanessa [FL]

Comment on Update on Nicholas by Mom

Mom — Wed, 22 Jul 2009 15:14:52 +0000

Thanks Alicia - we are very excited about his progress. Let me know how it goes….. I’m off to answer your email now…

Comment on Update on Nicholas by alicia

alicia — Wed, 22 Jul 2009 14:23:05 +0000

Wow!! These are miracles!! So fantastic! We are going to give chelation a go! Very excited!

Comment on Update on Nicholas by Mom

Mom — Wed, 22 Jul 2009 04:54:41 +0000

Thanks Amy. Yes, we are absolutely over the moon!!! Yes, I definately think it is happening due to 1 ) chelation, but also from our other top interventions 2) enhansa 3 ) hbot.

Comment on Update on Nicholas by Amy in Idaho

Amy in Idaho — Wed, 22 Jul 2009 04:30:37 +0000

Wow! This is fantastic - you must be over the moon. Are you thinking this has all happened due to chelation? Congratulations

Comment on IgG Food Antibody Assessment Results by Mom

Mom — Wed, 22 Jul 2009 01:25:26 +0000

I am not 100% sure, but I do not think that means there is no yeast overgrowth. I think that’s just referring to any reaction your body would have to it.

Biotin is awesome for helping with yeast. I’m not so keen on GSE anymore as it tends to wipe out everything - the good and the bad. It also can slow Phase I liver function, so if you already have slow function there, it could be a problem. I used to use it constantly, but I only pull it out if I want to wipe everything out. If you’re always battling yeast, consider a test of Enhansa from Lee Silsby or ourkidsasd.com (Insurance is starting to cover it if you can get an rx) - just start at a low dose and ramp up slowly.

Comment on IgG Food Antibody Assessment Results by Mom

Mom — Wed, 22 Jul 2009 01:22:37 +0000

Valicea - please forgive the delay in responding.

Yes, I manage everything with enzymes. Nicholas’s results were lit up all across the board, so I could not remove everything. I did rotate foods as much as I could - but enzymes have really helped tremendously. HBOT has also helped with gut issues here. I would look into supplements such as George’s Aloe Vera Juice and Transfer Factor. George’s is very good in helping to heal the stomach. I’ve read about Tranfer Factor helping here, but I have to dig further to find out where I saw that.

Comment on Welcome by Mom

Mom — Wed, 22 Jul 2009 01:06:47 +0000

If you look in “Changing the Course of Autism” by Bryan Jepson - he talks about the differences between natural and palmitate - as does Mary Megson here: http://www.megson.com/faq.php
In order to get 20,000 IU per day, you have to go with the palmitate. I give Nicholas both the natural from Green Pasture’s Fermented CLO and the mycellized from Klaire. When we did the high dose A protocol, I used Klaire’s Mycellized Vitamin A drops. I have had bloodwork run to check his A level and it’s been right in the center of the reference range. As long as you see benefit and keep an eye out for the signs of vitamin A toxicity, I am sure you will be fine.

Comment on Welcome by Mom

Mom — Wed, 22 Jul 2009 01:02:53 +0000

I gave 3 virastop a day until we started Enhansa this past December. I no longer give the virastop. But yes, we did see results with only 3 capsules. I was not giving it to work on his viral load, but to keep him from catching every bug that went around at school - and for this, it worked beautifully.

Comment on Welcome by Mom

Mom — Wed, 22 Jul 2009 01:02:36 +0000

Charu - when we first added ALA, it made my son’s stomach a bit queasy, but that was quickly overcome by starting the first doses with a bit of food. We no longer have to do this. I hope that you will be using ALA every 3 hours on a low-frequent-dose protocol.

Comment on Welcome by charusood

charusood — Sat, 18 Jul 2009 23:37:04 +0000

I have 6 year old son, who is on spectrum and has couple of questions regarding anti-viral and chelation
Couple of questions:
We just completed 13 rounds of DMPS and are planning to add ALA in next round. Is there any suggestion or things to watch for?
For Viral (seems to be viral-kid and has high EBV titter), I see you are using virastop. How were you combatting viral issues? Are you seeing results with 3 capsules only?
For vitamin-A, palmitate vs natural vitamin-A, do you have some article you can share. We are working with Andy C and he recommends palimtate or acetate version. We moved from CLO to synthetic because to get 20000IU a day, it provides 4gm of Omega-3 and we are asked to keep it below 3gm.

Will appreicate your guidance
Charu

Comment on The BIG BIG BIG BIG BIG movies…. by Mom

Mom — Wed, 15 Jul 2009 21:51:45 +0000

They will, Maya!! Nicholas has made so much incredible progress lately - we’re just so happy he continues to do so well. You will get here - and much faster than we did as you are getting a much earlier start than we did.

Comment on The progress continues… by Mom

Mom — Wed, 15 Jul 2009 21:50:30 +0000

Thank you so much!!!

Comment on IgG Food Antibody Assessment Results by valicea1977

valicea1977 — Wed, 15 Jul 2009 19:57:00 +0000

I forgot to comment that we have no reaction to Candida Albicans. Does that means no yeast overgrowth? not too sure…… we use GSE & Biotin here…..

Comment on IgG Food Antibody Assessment Results by valicea1977

valicea1977 — Wed, 15 Jul 2009 19:55:27 +0000

Hi Michelle!
How do you manage all these? with Enzymes? Just got back my son’s IgG F.S. test.
Mild reaction to gluten [you asked to be sure about this long time ago]…we remain CF/SF/GF [with some gluten infractions tho]
He has severe intolerance to Asparagus, Bass, Cane Sugar, Eggplant among others….I can live with this no problem, but the moderate intolerance list is so long!, what should I do? any recommendations?

Comment on The progress continues… by valicea1977

valicea1977 — Wed, 15 Jul 2009 19:49:50 +0000

OMG!!!!!!!! that is awesome Michelle!!!!!!!!!!! I am so happy for you!!!!!!!!! BIG KISSES to Nicholas! you are doing very good mom!!!!!

Comment on Round 40: Complete by maya

maya — Thu, 09 Jul 2009 18:22:02 +0000

wow

Comment on The BIG BIG BIG BIG BIG movies…. by maya

maya — Thu, 09 Jul 2009 18:21:42 +0000

Simply amazing !! I cant wait for all these wonderful things to happen to us !

Comment on Round 40: Complete by Mom

Mom — Wed, 08 Jul 2009 04:45:02 +0000

Thank you!!! Don’t be anxious, it was really no big deal. I understand though, I was anxious too. I’m excited for you — keep me posted on how you’re doing with it!

Comment on Round 40: Complete by skhandor

skhandor — Mon, 06 Jul 2009 20:24:32 +0000

What a great update and an inspiration for us that are just starting our journey. I am planning on starting our first round of the Cutler protocol later this month so I am quite excited and anxious……

Comment on The Autism News: Sexy Autism Ads by maya

maya — Mon, 22 Jun 2009 18:55:36 +0000

total crap !!!

Comment on Supplement Directory by RecoveringNicholas.com » Current Master Supplement Listing: June 2009

RecoveringNicholas.com » Current Master Supplement Listing: June 2009 — Thu, 04 Jun 2009 22:44:53 +0000

[…] For info on these supplements including where to buy them, visit my Supplement Directory page. Changes since the last update […]

Comment on Added Wild Oil of Oregano by Mom

Mom — Thu, 04 Jun 2009 14:29:45 +0000

The one that I use seems to be SCD legal - according to http://www.pecanbread.com/new/Sup1.html

I use the L-Theanine Stress from Enzymatic Therapy.

Thanks so much for the compliment!! I’m so glad it helps you!!

Comment on Added Wild Oil of Oregano by jenniferkbateman

jenniferkbateman — Thu, 04 Jun 2009 12:53:58 +0000

Hi there! I just started following your journal. My almost 3 year old is also on the spectrum. We do all the biomed stuff including SCD. I noticed on your supplement list that you use L-Theanine (my DAN doctor recommended adding it to our supplement list as well). Is the type that you use SCD legal?

Thank you for sharing your journey. Your successes and your honesty are an inspiration to me.

Comment on Addition to my progress update by Mom

Mom — Tue, 02 Jun 2009 20:51:47 +0000

It was so funny. Want to hear funnier — he slightly changed it the next day when my husband prompted him to say it again….. how perceptive this is….. “Nicholas has a penis. Daddy has a penis. Mommy has no penis. Mommy has a butt.”

Comment on Addition to my progress update by valicea1977

valicea1977 — Tue, 02 Jun 2009 20:42:50 +0000

LOLOLOLOL this was so funny!!!! you are doing an awesome job!!!

Comment on Progress Update on Nicholas by valicea1977

valicea1977 — Tue, 02 Jun 2009 20:30:36 +0000

OMG!!!! this is wonderful!!!!! Nicolas is doing SO SO SO GREAT!!!! Kisses!!!!!!! BIG Congrats!

Comment on Nicholas is potty-trained by maya

maya — Sat, 30 May 2009 03:50:32 +0000

Wow ! This is huge ! Great ! Great ! Great ! Keep these wonderful progress coming ! You deserve the tightest hug in the world and I am sending one to you now !

Way to go Nicholas ! Cant deny how jealous I am right now !

Comment on Progress Update on Nicholas by Mom

Mom — Fri, 29 May 2009 15:21:31 +0000

Thanks guys!!!!!

Comment on Progress Update on Nicholas by maya

maya — Fri, 29 May 2009 14:17:31 +0000

OMG, this is incredible !! Way to go Nicholas !!! Sending you loads and loads of love !

Comment on Progress Update on Nicholas by alicia

alicia — Thu, 28 May 2009 05:33:08 +0000

Wow! Very amazing!

Comment on Round 34: Complete! by Mom

Mom — Wed, 27 May 2009 17:56:14 +0000

Sure, it’s mom at recoveringnicholas.com

Comment on Round 34: Complete! by alicia

alicia — Wed, 27 May 2009 16:36:05 +0000

Michele, I have some questions for you. Can I have your email? thanks a bunch!

Alicia

Comment on Chelation Dose Increase Schedule by Jennifer

Jennifer — Mon, 18 May 2009 22:45:05 +0000

It’s great to hear all the success you are having with chelation! We started this weekend with 6.25 mg and have not seen any change in behaviors. Do you think maybe we should increase the dosage? Also what made you decide to 3/4 instead of 3/11?

Comment on Chelation Dose Increase Schedule by alicia

alicia — Sat, 16 May 2009 13:41:23 +0000

Hey Michele, I didn’t get you email.. Sorry if you had a different address. Here is my email: Foreverengagments@gmail.com

Thanks for your help! Yeah for swallowing capsules!

Comment on Swallowing Capsules by valicea1977

valicea1977 — Sat, 16 May 2009 02:16:52 +0000

BRAVO!!!!!!!

Comment on Chelation Dose Increase Schedule by Mom

Mom — Fri, 15 May 2009 20:31:09 +0000

Emailing you….

Comment on Chelation Dose Increase Schedule by alicia

alicia — Fri, 15 May 2009 19:32:40 +0000

Oh, $20 a month is not bad. No he fears it is unsafe. Where do you order DMSA?

Comment on More DMSA recovery stories… by Mom

Mom — Fri, 15 May 2009 17:29:16 +0000

Vanessa - I am so sorry it took me so long to see this comment. Let me take a look at his hair test and I will email you. Michelle

Hope all is well with you too!! Happy belated Mother’s Day!

Comment on Chelation Dose Increase Schedule by Mom

Mom — Fri, 15 May 2009 17:28:01 +0000

Alicia - chelation has been the CHEAPEST intervention yet. Unlike IV chelation, which costs over $100 per IV — I spend maybe $20 a month on chelation — maybe.
Chelating now and getting to recovery will save you so much in the long run — good luck with your hubby!! Is cost the only reason your husband is hesitant to chelate?

Comment on Chelation Dose Increase Schedule by alicia

alicia — Fri, 15 May 2009 14:58:23 +0000

Thanks for this info Michele! you are so very helpful. Do you have an estimate of how much you have spent a month for chelation. Just trying to get all my ducks in a line before I bring my case and plee to chelate before my husband. Any other facts you have that would help persuade him would be so helpful! Thanks, Alicia

Comment on More DMSA recovery stories… by valicea1977

valicea1977 — Sat, 09 May 2009 14:12:34 +0000

Hi Michelle!
I hope is all well at home!

Happy Mother’s Day!!!!!

I wanted to ask you something…where do you buy DMSA?
I wanted to do Chelate my son with ALA only but I feel in my guts that I should do maybe 3 rounds of DMSA alone and then introduce ALA….
Then after a few rounds [I will say 12] use ALA alone…
What do you think?
just in case you want to see my child’s hair test, it’s posted at A-M files section under Eleazar, Alicea.

Thanks so much for your help!!!!!
enjoy this weekend!
Vanessa

mom to Eleazar
[3yrs old - 38 lbs - ASD]

Comment on Chelation Dose Increase Schedule by Mom

Mom — Fri, 01 May 2009 02:12:59 +0000

I increased the doses when it had been a couple of weeks that we didn’t see any “hit us in the face” kind of progress. He’s been around the same weight the whole time, fluctuating between 64 and 62 pounds.

Comment on Andy Cutler’s Chelation Protocol by Mom

Mom — Fri, 01 May 2009 02:11:31 +0000

Thanks Maya!

Comment on Andy Cutler’s Chelation Protocol by maya

maya — Thu, 30 Apr 2009 18:29:20 +0000

Great post !

Comment on Chelation Dose Increase Schedule by maya

maya — Thu, 30 Apr 2009 18:26:14 +0000

Hi ! How did you decide when to increase the dose? Also what was Nicholas’s weight each time ? Thanks!

Comment on More progress…. by maya

maya — Tue, 21 Apr 2009 21:24:23 +0000

this is simply great… woohoo !!!

thanks a lot for posting

Comment on More progress…. by Mom

Mom — Tue, 21 Apr 2009 01:56:17 +0000

Hey - thanks!! I got your link to your blog, thanks by the way — I have to go read it now…

Comment on More progress…. by Sassifrassilassi

Sassifrassilassi — Tue, 21 Apr 2009 01:45:47 +0000

Wowowowow! Excellent!

I finally joined so I can comment!

Comment on Current Master Supplement Listing: March 2009 by Mom

Mom — Thu, 16 Apr 2009 15:37:03 +0000

Vanessa, Are you absolutely sure he doesn’t have an allergy to gluten??
I like the enzymes from Houston’s Enzymes and also from enzymedica. If you call Houston’s - they are great and can answer any questions you might have. I know they also have web-casts from time to time as well, so you can look into one of those. Both Houston and Enzymedica will send you samples as well. You can email Alessanra from Enzymedica as well: milagros205 at yahoo

Comment on CDC withheld evidence that contaminated tap water caused lead poisoning in kids. by Mom

Mom — Thu, 16 Apr 2009 15:31:34 +0000

Sorry, my link must have disappeared when I posted the article — I added it back in.
I never said the AAP had a role in this story, that’s just my commentary. They’ve done far worse than this.

Comment on CDC withheld evidence that contaminated tap water caused lead poisoning in kids. by Rob

Rob — Thu, 16 Apr 2009 15:04:41 +0000

Can you please tell me where this story was published? Also, I am no fan of the FDA, CDC, AAP (along with many other agencies). However, can you clarify the AAPs role in this story? Thanks!

Comment on Current Master Supplement Listing: March 2009 by valicea1977

valicea1977 — Wed, 15 Apr 2009 20:40:30 +0000

Hi Michelle!
Can you help me to understand here what should be the best type of Enzymes for my little one? My son is allergic to Dairy & Soy [and I will say to any grain protein in general]…..If he eats too much garbanzos or quinoa he gets the same type of rash like he does get with soy it’s horrible!.. this rash more type of pimple leaves marks on his skin!…..
Even tho he is on GF/CF/SF diet and not allergic to Wheat/gluten I would like him to eat gluten again [since he doesn’t get any rash or any kind of issues with it]….but I do think he needs enzymes, Would you help me to think which kind would be safe & the best for him…..sorry to bother I know you have you own things to worry……just let me know when ever you have a change!..
Take care and keep up the Good WORK!

Vanessa
mom to Eleazar [3 1/2 yrs old - ASD]

Comment on Progress Update on Nicholas by Mom

Mom — Mon, 13 Apr 2009 17:46:37 +0000

Thank you so much Vanessa!!!!

I hope you have the same success with chelation as we have!! Good luck and keep me posted as to how you do!!

Comment on Progress Update on Nicholas by valicea1977

valicea1977 — Mon, 13 Apr 2009 16:36:43 +0000

Hi Nicholas’ mom!
I wanted to congratulate you! You should be proud of your boy! and why not of you self!
I read what you write everyday!, it helps me a lot. My son Eleazar is 3 1/2 yrs old [my only son] and he is in the ASD. I’m about to start Chelation so I do think things are going to get better here!, thanks for sharing what you are doing with you child! May G-d bless you & your family!
Vanessa

Comment on Current Master Supplement Listing: March 2009 by Mom

Mom — Fri, 10 Apr 2009 22:54:12 +0000

It’s good stuff. Let me know how it works out!!

Comment on Current Master Supplement Listing: March 2009 by Mom

Mom — Fri, 10 Apr 2009 22:52:01 +0000

Originally, I started with the Nordic Naturals stawberry kids CLO and when he did well on that, I switched to the NN Complete Omega 369 and have used this ever since because we’ve seen good results with it.
Then, I added the High Vitamin CLO from Green Pasture because the A is natural and not synthetic, like the mycellized A’s are. So, in adding the CLO, I was able to reduce the amount of NN 369. The only reason I am giving Nicholas additional A (in the mycellized form) is because we are doing the high dose Vitamin A protocol. So he gets one drop of the mycellized A on top of one tsp of the High Dose CLO.

I did look into the CLO with D, but ratio of DHA/EPA are reversed in what Nicholas gets. That one has higher DHA over EPA and the Complete has Higher EPA over DHA.
Next time around, I may try either the Ultimate Omega or the Arctic D-CLO and see how that goes. (A while back, I ran out of the NN Complete 369 and could not find anyone with it in stock, so while I was waiting for it to arrive, I tried one with the opposite epa/dha ratio and Nicholas didn’t do as well on that. I do think that as things change, we have to try new supplements and see if there isn’t something that would work better, which is why I’ll order something different for next time and see what happens.)
I hope that helps!!

Comment on Current Master Supplement Listing: March 2009 by Summer

Summer — Fri, 10 Apr 2009 22:44:52 +0000

Michelle, just read the study on Nordic Natural’s site regarding Omega 3-6-9…. enough said! Just placed an order!

Summer

Comment on Current Master Supplement Listing: March 2009 by Summer

Summer — Fri, 10 Apr 2009 22:17:47 +0000

Michelle, can you help me understand the benefits of dosing both CLO and Omega 3-6-9? Also, have you considered Nordic Natural’s CLO with added Vitamin D (1,000 IU), and if so you must feel the Carlson’s Vitamin D is a better choice?

thanks!
Summer

Comment on Thinking about giving your ASD kiddo Miralax, think again… by Mom

Mom — Fri, 10 Apr 2009 19:47:44 +0000

Me too. I am appreciative for what these DAN doctors are doing and researching to help our kids - but at the same time - many parents forget that they’re still doctors just like the ones who harmed our kids while looking the other way. And don’t get me wrong, I don’t think for many that any of it was intentional - but no doctor can know everything about everything - so we need to never let go of the reigns when it comes to being our child’s advocate, medical and otherwise.

They’re capsules. If you mix them with juice, get him to drink it pretty much immediately. It tends to discolor whatever you put it into - so if he won’t drink it based on color - get him to drink it quick.

I started with 1/4 cap and a few hours later would give another 1/4 cap - until I got him to go. If it’s been days, I give him 1/2 cap twice in a row and then wait overnight. I never had to go more than 2 caps per day to get things moving again.

Comment on Thinking about giving your ASD kiddo Miralax, think again… by meredith

meredith — Fri, 10 Apr 2009 19:34:39 +0000

Good post Michelle. I think about this point quite often…again go with your gut and do your own research! We just ordered oxy powder…per your recomendation. How much do you use? Are they capsules or just a powder. Thanks!

Comment on A Must See: Autism Yesterday by Mom

Mom — Fri, 03 Apr 2009 19:08:08 +0000

You’re very welcome!! I’m glad to have you here, but sorry that you had to join our club. Our kids are recoverable! My son is living proof of this statement. You can do it! Start slow and write everything you do down in a journal, that will be the best thing you do. Don’t let everything overwhelm you, just start slow and keep going and remember…. this is a marathon, not a race - so pace yourself!

Comment on A Must See: Autism Yesterday by skhandor

skhandor — Fri, 03 Apr 2009 18:57:50 +0000

Thanks for showcasing this great video. It brought tears to my eyes. We found out that our son had autism 2 months ago and have just started down the road of biomedical treatment and this video was definitely inspirational and gave me the ghope to keep fighting the fight. For our children!

Comment on Round 27: Complete by Mom

Mom — Tue, 31 Mar 2009 15:29:33 +0000

I know - I love it when they get it. This kind of motivation would have never worked for us in the past.
That is awesome about him getting it!!!!!!

Comment on Round 27: Complete by meredith

meredith — Tue, 31 Mar 2009 11:48:16 +0000

Yeah for Nicholas! I was always jealous of friends who were either bribing OR using motivation charts…I just knew they wouldnt work for us yet… Also, Don’t you love when they GET it? When we went away, we had numerous “convesations” about airplanes, being right back, granparents watching you etc. And he GOT it!

Comment on Current Master Supplement Listing: March 2009 by Mom

Mom — Thu, 26 Mar 2009 15:31:15 +0000

Thanks a bunch… will have to look into this one more. Not sure if I can do it because of the fructose though — but thanks!

Comment on Current Master Supplement Listing: March 2009 by summermh

summermh — Thu, 26 Mar 2009 14:47:14 +0000

regarding your CoQ10 note — we use Metagenics NanoCell-Q, which our DAN started us on, but now I order it from ourASDkids.com. It’s liquid, orange-flavored, and mixes in just fine, Ethan will drink it straight. here’s a link… http://www.ourkidsasd.com/products/1704%7CNanoCell-Q™-Metagenics

Comment on New Multi-Vitamin by Mom

Mom — Wed, 25 Mar 2009 22:08:31 +0000

I dont find it horrible tasting at all — perhaps that is because I am comparing it to brainchild. If you buy stuff from Klaire anyway, why don’t you ask them if they could send you a sample of it to try. Others said it was chalky — I tried mixing it with 1 oz of water and 2 oz and never had a problem dissolving it at all. Like you, Brainchild was also our liquid base that I mixed tons of stuff into it 3x a day. With the brainchild, it took nothing short of a miracle every day to get him to drink his stuff — it was down to me saying, “drink your stuff, drink your stuff” to the point that I was driving myself nuts. WIth changing to the vitaspectrum, all I have to do is hand it to him and he drinks it right down.

Comment on New Multi-Vitamin by summermh

summermh — Wed, 25 Mar 2009 19:30:59 +0000

it’s me again I posted on the autismweb.com forum asking others for experiences with VitaSpectrum… only one person has responded saying it was really really horrible tasting. Considering Ethan drinks Brainchild straight with no problem at all, not sure I should worry about this too much… your thoughts? I’m hesitant to switch to a powder, because Brainchild liquid has been serving as the liquid “base” which we mix other items into for our lunch and supper doses. Breakfast dose has SO much stuff that I use juice/water. But, I’d love to save the money!

Comment on Current Master Supplement Listing: March 2009 by Mom

Mom — Wed, 25 Mar 2009 15:09:27 +0000

I mix them with water and pear juice. The taste difference from the brainchild to the vitaspectrum was completely obvious by the way my son started sucking everything down. I taste everything I add into his mix - that way I know what I have to start slow (based on taste) and what I can just add right in.

Comment on Current Master Supplement Listing: March 2009 by Mom

Mom — Wed, 25 Mar 2009 15:05:31 +0000

Honestly, I got tired of spending over a $100 bucks a month on a multi vitamin/mineral. With all of my son’s other supplements, we just don’t have that kind of money anymore.
If I had seen any change in my son from the switch, I would have gone back to brainchild, but it’s been almost 2 months and I have not. I did add some additional b-12 in since it was higher in the brainchild - but since my son is on daily mb-12 shots, I’m not sure that was even necessary.

Comment on Current Master Supplement Listing: March 2009 by Mom

Mom — Wed, 25 Mar 2009 15:03:16 +0000

I went with the VitaSpectrum Capsules instead of the powder to make things easier. Also, I tried the capsules to see if they dissolved in water and it worked just great (some had reported it was chalky - I found it was not chalky at all) - the powder version does have more calcium than the capsules - I will try the powder version in the future the next time I order.

Comment on Current Master Supplement Listing: March 2009 by summermh

summermh — Wed, 25 Mar 2009 13:21:20 +0000

just one more question — will you give an update on how you get all these in? what do you mix them with, etc…? thanks!

Summer

Comment on Current Master Supplement Listing: March 2009 by summermh

summermh — Wed, 25 Mar 2009 13:02:33 +0000

Why the Vita-Spectrum capsules instead of the powder? Just curious We have been using Brainchild for 2+ years now, and I would love to save money, but also want to be certain we’re getting similar benefits. I haven’t compared the labels yet. Thanks!

Summer

Comment on Supplement Directory by RecoveringNicholas.com » Current Master Supplement Listing: March 2009

RecoveringNicholas.com » Current Master Supplement Listing: March 2009 — Tue, 24 Mar 2009 21:43:03 +0000

[…] For info on these supplements including where to buy them, visit my Supplement Directory page. Changes since the last update […]

Comment on High dose Vitamin A Protocol by Mom

Mom — Sun, 22 Mar 2009 00:58:27 +0000

Just like you would run the IgG tests for food allergens, we ran them for Measles, Mumps and Rubella. All were through the roof and many times the top of the range.

You can read about the high dose vitamin A protocol in “Children with Starving Brains” - pretty much is 400,000IU Mycellized Vitamin A for 2 days - then 10,000-25,000IU per day thereafter. This can be done every 6 months. As long as the daily dose is the right amount for your child (depending on weight I would imagine) I would not think it mattered if it came from the klaire’s or the CLO. (There’s no way you could give 400,000IU of A from CLO.)

Comment on High dose Vitamin A Protocol by maya

maya — Sat, 21 Mar 2009 19:46:35 +0000

What does tites mean ? How do you know titers are high?
How do you calculate the doage of the Vit. A ? And how long do you give the daily dose for? is the daily dose CLO or Klaire’s Vit A.

Comment on Started Oxytocin Nasal Spray by Mom

Mom — Fri, 13 Mar 2009 03:39:50 +0000

I wanted to see if it would help with getting Nicholas to be more social with kids. He’s okay with adults, but still does not pay too much attention to other kids unless they’re one on one. Some people see nothing with it and others say it’s one of the best supplements they’ve tried.
I also wanted to see if it would help him be able to look me in the eye when talking. I have noticed that in despite of his fantastic eye contact, the second he starts speaking, his eyes jump to look elsewhere. I can see he’s really trying to look at me and talk to me at the same time, but there’s apparently something blocking him from being able to do it naturally.

Comment on Started Oxytocin Nasal Spray by LouCee

LouCee — Fri, 13 Mar 2009 02:54:59 +0000

What is the nasal spray for?

Comment on March HBOT hours by Mom

Mom — Tue, 10 Mar 2009 21:04:15 +0000

Soft Chamber. No way we could afford that many hours in a hard chamber!

Comment on March HBOT hours by maya

maya — Tue, 10 Mar 2009 20:45:52 +0000

are guys doing the hard chamber or the soft chamber?

Comment on Progress Update by Mom

Mom — Mon, 09 Mar 2009 16:53:40 +0000

Maya, you are so funny! He’s not quite there yet - but his progress is definately promizing!
Happy to help you in anyway that I can! And don’t discredit yourself, Mama - you’re doing great!

Comment on Progress Update by maya

maya — Sun, 08 Mar 2009 01:59:10 +0000

Nicholas is RECOVERED !!!!! He is !!!! I am not coming back to his website unless you change the name of it to recoverednicholas.com .

This is wonderful !!! I am going to come and steal you so that you can help my child !

This is just awesome!!!

Comment on Biomed that brought us WOWs by Mom

Mom — Sat, 07 Mar 2009 22:47:48 +0000

Sure Maya, anytime!!

Comment on Biomed that brought us WOWs by maya

maya — Sat, 07 Mar 2009 17:51:00 +0000

Thanks for this WOW post !!!

Comment on Biomed that brought us WOWs by Mom

Mom — Sat, 07 Mar 2009 17:01:58 +0000

Hey Meredith,
I was able to stop Candex, Candidase, Virastop and Grapefruit Seed Extract. I was able to greatly reduce the amount of probiotics I was giving as well.
This is some awesome stuff. Hope you guys are doing well - I owe you an email!
Michelle

Comment on Biomed that brought us WOWs by meredith

meredith — Thu, 05 Mar 2009 19:11:29 +0000

Michelle, I am wondering what supplements you withdrew when starting Enhansa.. Since it is a miltipurpose one… thanks!

Comment on Update on Nicholas by LouCee

LouCee — Wed, 18 Feb 2009 02:22:11 +0000

Wow - this is great. I’ve been keeping up with Nicholas and love reading all the things he is doing.

Comment on Update on Nicholas by maya

maya — Tue, 17 Feb 2009 22:26:08 +0000

Oh just spoke to the Enhansa folks and they said its fine to go ahead and open it.

Comment on Update on Nicholas by maya

maya — Tue, 17 Feb 2009 22:16:44 +0000

Amazing progress…

BTW, I think I screwed up on Enhansa. I ordered it but I ordered the capsules instead of the powder and in the box it says it is not intended to be opened and mixed with food. What should I do now? Wonder why they are saying it is not designed to be opened and mixed with food. Is my money gone waste?

Comment on Yay! by maya

maya — Sat, 07 Feb 2009 00:21:12 +0000

Each week is better than the next week…isnt it? Cant wait to hear what Nicholas is up to next week ! And cant wait for the day when you will change the website name to recoverednicholas.com

Comment on Yay! by maya

maya — Sat, 07 Feb 2009 00:19:17 +0000

This is a big hope for starters like us who are discouraged often!
Way to go Nicholas !!!!

Comment on Drugging kids is mainstream, but changing a diet is alternative… by Mom

Mom — Wed, 04 Feb 2009 06:44:36 +0000

I know just what you mean! Gotta love that Michael Phelps — perfect role model all around! Yeah, right.

Comment on Preparing your child’s supplements… there is an easier way! by maya

maya — Wed, 04 Feb 2009 05:02:02 +0000

thank you thank you thank you !
i ordered these and they are simply awesome ! makes life easy !
i am ordering more today !

Comment on Drugging kids is mainstream, but changing a diet is alternative… by debinIL

debinIL — Wed, 04 Feb 2009 01:15:09 +0000

Natural News had an article about Michael Phelps - this role model promotes soda and McDonalds, nobody cares. He smokes something that’s natural and everyone freaks out. I don’t have a stake in the drug war, but it makes sense to me. It’s hypocritical. Junk food and prescription drugs = American way, natural/nutrition = “alternative”.

Comment on Wrapping your child’s mattress by debinIL

debinIL — Wed, 04 Feb 2009 01:12:03 +0000

I went with an all-cotton allergy wrap I bought at Linens n Things before they went out of business. It was 100% cotton and seemed to work fine. This idea is better. Next time I’m at Menard’s, I’ll pick some up for both my boys mattresses. You have the best ideas and resources!

Comment on Change is in the air… by maya

maya — Tue, 03 Feb 2009 16:02:13 +0000

Wow! This is great progress! Way to go !

Comment on Preparing your child’s supplements… there is an easier way! by Mom

Mom — Mon, 26 Jan 2009 18:14:54 +0000

Sure, I added a print screen of what my map looks like above so you can see. I have also added the excel template so if you can use/modify as you like.

Yes, I do 5 days at a time.

Comment on Preparing your child’s supplements… there is an easier way! by summermh

summermh — Mon, 26 Jan 2009 17:53:59 +0000

Could you elaborate a bit more on the “map” that you refer to? And, just to be clear, you put these together for up to 5 days at a time?

Comment on Supplement Discounts by Mom

Mom — Sat, 24 Jan 2009 16:26:50 +0000

You’re welcome! That stuff is wonderful!

Comment on Preparing your child’s supplements… there is an easier way! by Mom

Mom — Sat, 24 Jan 2009 16:26:33 +0000

Isn’t that the truth!

Comment on Preparing your child’s supplements… there is an easier way! by debinIL

debinIL — Sat, 24 Jan 2009 16:12:23 +0000

Oh for the day when he starts swallowing his pills. BIG time saver for us/me.

Comment on Supplement Discounts by debinIL

debinIL — Sat, 24 Jan 2009 13:16:04 +0000

Wow - thanks! I just ordered some Mucostop - gonna try it on me to get rid of my ickiness. Thanks for sharing!

Comment on Supplement Directory by RecoveringNicholas.com » Current Master Supplement Listing: January 2009

RecoveringNicholas.com » Current Master Supplement Listing: January 2009 — Sat, 24 Jan 2009 07:11:02 +0000

[…] For info on these supplements including where to buy them, visit my Supplement Directory page. Changes since the last update […]

Comment on Preparing your child’s supplements… there is an easier way! by Mom

Mom — Sat, 24 Jan 2009 05:29:31 +0000

Yes, I wash them every time they’re emptied. Also, I do keep them all in a sealed ziploc with as much air out of it as possible. I tried putting liquid in these to see if they would leak - and they didn’t which was good.

Comment on Preparing your child’s supplements… there is an easier way! by maya

maya — Sat, 24 Jan 2009 05:23:33 +0000

This is pretty neat. I am gonna get these too..
Do you ever wash these? Also by opening up certain supplements, do you think they will loose their potency.. just wondering.

Comment on Amalgam Removal by Mom

Mom — Wed, 21 Jan 2009 22:36:33 +0000

Thank god you knew not to vax him.

I know what you mean about that guilt. Now I am at the point where I just want to know what “could” have done it — so I can change things next go around - if there is one. And also, so that I can share what I think… if it saves one kid, I’ll be happy.

Does Nate have any lead?? I am wondering if Nicholas didn’t leech lead from my bones somehow… that’s my next post though. Fun stuff. I’d so rather be watching TV!

Comment on Nicholas got dressed….by himself by Mom

Mom — Wed, 21 Jan 2009 22:33:23 +0000

I love it!! So glad Drew’s been asking too! that is fantastic!!!!!

Comment on Amalgam Removal by debinIL

debinIL — Wed, 21 Jan 2009 01:11:41 +0000

*hugs* Honey, I ate well, had a natural childbirth at home to purposely avoid drugs, no Vit K or Hep shots at birth, not even the goop in the eyes. When Nate was having problems sleeping (not more than one hour at a time, and never out of my arms), I got the Fussy Baby book and investigated until I got to the elimination diet that took out all allergy foods. 36 hours later, he took his first 4 hour nap, and I knew he was sensitive to foods. I thought it was just gluten. I chose not to have him vaccinated.

Now, after coming into all the information I have today, the mercury he has in his body only came from me. That mercury is the amalgrams I have in my system and from my teeth. I have my own guilt, just like you, but put that guilt back on the system that’s in place and work to change it.

Gotta go to an inaugaration party.

Comment on Nicholas got dressed….by himself by meredith

meredith — Wed, 21 Jan 2009 00:25:26 +0000

Michelle- that is really awesome! Getting dressed is one of those things NT parents completely dont get. I read that Nicholas has been asking “what’s this?” Drew has been too. I love it. Hope all is well.

Comment on Things that just did not work by Mom

Mom — Mon, 19 Jan 2009 01:09:13 +0000

Isn’t that the truth. Sad thing is, my list isn’t even all the stuff I have forgotten about!

Comment on Things that just did not work by debinIL

debinIL — Sun, 18 Jan 2009 03:25:54 +0000

All the money we’ve spent on the hit-or-miss. I’m ashamed at the stuff we don’t use/doesn’t work. There needs to be more trial sizes.

Comment on Round 18: Complete & Dosage Increased by Mom

Mom — Sat, 17 Jan 2009 23:44:52 +0000

Hey Maya - that juicer is awesome! Gotta check out the dates!
On clay baths, I have absolutely no experience — if you find one that works well, please let me know though!

Comment on Juicing Veggies for Nicholas by Mom

Mom — Sat, 17 Jan 2009 23:43:56 +0000

I can see how you’re addicted - it is so easy. And I thought this thing would be a pain to clean - and it’s not! thank god for small miracles!!
And you are right on the pears - it’s just about the only fruit I let Nicholas have all the time.

Comment on Current Progress by Mom

Mom — Sat, 17 Jan 2009 22:04:03 +0000

I know your intention is not to insult anyone. No worries from me.
No, they dont know about the chelation. After his teacher seeing a dramatic difference in him after a month of hbot, I did share with her that I was treating him for his medical issues which I felt were the root cause of his autism. She knows that I have Nicholas on various supplements and that we’ve been doing hbot, but not about chelation.
Nicholas is in school for 2.5 hours from Monday through Friday. He gets speech 2x a week for a half hour each time. His ABA therapy has yet to be consistent - I don’t think he’s even had 40 hours since they started months ago to be honest.
I agree, they are helping because they know how to teach - but if he hadn’t been well enough to learn - what good would any of it have been?

That is so wonderful about Nate. I have to pull out the leapster again. Nicholas was doing great a while ago with the Dora game, but lost interest in it, so I put it away.
That is SOOO awesome — he typed his name out. Awesome!!

Comment on Current Progress by debinIL

debinIL — Fri, 16 Jan 2009 03:03:38 +0000

This is just terrific! Are any of the therapists/aides asking/knowing about the chelation? I wonder how much of it they’re thinking they are doing. I mean, they’re helping, because they know how to teach…I think you know this isn’t intended to insult anyone.
Nate is really observing his big brother play video games and is now interested in playing them himself. He has a leapstar keypad and is learning the qwerty keyboard, now he interested in the Thomas game where he follows the arrow to move the trains along the track, pick up loads/passengers, drop them, etc.

The other day, my husband was typing a letter to the editor (to get our streets plowed/salted better), and he left for a minute, came back and saw “Nate” typed at the end of his last sentence.

Comment on Juicing Veggies for Nicholas by SharonM

SharonM — Thu, 15 Jan 2009 02:05:36 +0000

I have to give Nate his with a syringe, and he makes a sourpuss face every time!! I’ve been experienting with pears because I’ve heard that yeast doesn’t like the natural sugar in them (blueberries either). I’m totally addicted to juicing, and at least my younger son and DH appreciate it!

Comment on Juicing Veggies for Nicholas by Mom

Mom — Thu, 15 Jan 2009 01:26:19 +0000

Hi Sharon! Nice to see you!!! I will have to try that one! I tried 3 carrots, 4 celery stalks and 3 apples - that came out pretty good — think it may have needed another apple though. And I got nicholas to drink some of it too!!!!!

Comment on Round 18: Complete & Dosage Increased by maya

maya — Wed, 14 Jan 2009 23:53:51 +0000

Michelle - quick question - have you tried any clay baths for Nicholas? What are your thoughts about clay baths?

Comment on Juicing Veggies for Nicholas by SharonM

SharonM — Wed, 14 Jan 2009 21:06:59 +0000

Hi Michele, it’s Sharon from OS. We got a juicer for the holidays too. My favorite is 1 pear plus 2 carrots. Yum!

Comment on Round 18: Complete & Dosage Increased by maya

maya — Wed, 14 Jan 2009 15:31:35 +0000

Wow ! I checked out the juicer and it is pretty impressive ! Cant wait to hear the reviews from you !
Oh yesterday I got some organic dates, soaked it in lil water to make them soft and then pureed it. Then added this to banana shake !

Comment on Round 18: Complete & Dosage Increased by Mom

Mom — Mon, 12 Jan 2009 18:39:00 +0000

Hey Maya,
I think it’s probably yeast die off — but you are probably also feeding the yeast with the bananas. When yeast is an issue — pears only!!

I have to admit, I have not yet taken it out of the box! I am overhauling my kitchen, getting rid of stuff and such and just haven’t gotten to taking it out yet. I have to do it today though — I bought stuff to juice! so I will let you know.

I read lots of reviews - and naturalnews.com raved about the Breville one. I saw one that was a step-up from the one they reviewed at Williams Sonoma - since I just wanted to buy one appliance right now and not also have to buy a new blender. I also wanted the ability to do fruit, both soft and hard - so this seemed like the perfect one. I will let you know what I think once I start using it.
http://www.williams-sonoma.com/products/sku6926174/index.cfm?pkey=cblenders%2Djuicers&ckey=blenders%2Djuicers

Comment on Round 18: Complete & Dosage Increased by maya

maya — Mon, 12 Jan 2009 18:25:22 +0000

Hi Michelle - just wanted to drop in a note to say hello and see how you guys are doing. We are battling regression - DS has become extremely stimmy and its crushing us. He is becoming more autistic. Dont know what we are not doing right. Wondering if it is die off from the yeast protocol or feeding him too much bananas !

Anyways how is the juicing going? I think I am going to get a juicer too. Can you tell me which one you have?

Take care,
Maya

Comment on Round 18: Complete & Dosage Increased by Mom

Mom — Mon, 12 Jan 2009 17:50:20 +0000

Wow - fantastic!! I cannot wait for the day he can swallow these things!

Comment on Round 18: Complete & Dosage Increased by debinIL

debinIL — Mon, 12 Jan 2009 17:30:15 +0000

As he’s doing better, see if he’ll try the capsules in whole form. We were in a restaurant last year and there was nothing for me to mix the capsules in. Nate tried them whole when I explained he needs his medicine and I’m stuck (Can you help me? and he did!), and we’ve been doing it that way since.

Comment on Added Ubiquinol today by maya

maya — Sat, 10 Jan 2009 02:43:05 +0000

let us know how it goes !

Comment on Discontinued Cell-Food… FOREVER! by Mom

Mom — Thu, 08 Jan 2009 21:57:00 +0000

As of today, Lumina Health still has these radioactive ingredients listed on their website. The only thing that has changed since August 2008 is the addition of Lithium to their ingredients list. Funny thing is that Lumina Health’s CEO acknowledged their error in listing these ingredients in an email to Brainchild Nutritionals and said it was only an error — but yet, they manage to edit their website to add Lithium, but don’t remove the other two which there was an uproar about online. I guess they are ingredients afterall, so they can’t remove them from the list.

So, for our kids with Autism, who have a high enough body burden of toxins, don’t add radioactive elements to the list.

Comment on Discontinued Cell-Food… FOREVER! by RecoveringNicholas.com » Supplements Listing

RecoveringNicholas.com » Supplements Listing — Thu, 08 Jan 2009 21:50:55 +0000

[…] - Cellfood (as of today, we’re up to 4 drops 2x per day) Edited to add: See this thread regarding Cell Food: Questionable Cell Food Ingredients […]

Comment on Current Progress by Mom

Mom — Wed, 07 Jan 2009 23:44:18 +0000

Deb - let me know how that goes - yeah, lol, I know just what you mean! Yeast is quite the beast, isn’t it!

Comment on Current Progress by Mom

Mom — Wed, 07 Jan 2009 23:40:48 +0000

Maya, it was great talking to you too!! I told my husband the same thing about you - and said that if we lived anywhere remotely close to each other that we would probably be great friends! Not like the distance needs to stand in our way for that!
I saw what you wrote about the infection - ouch - I hope you can clear that up soon! your poor little guy!

Comment on Current Progress by maya

maya — Wed, 07 Jan 2009 16:55:07 +0000

Hi Michelle
It was great talking to you on the phone. It didnt feel like I was talking to you for the first time.
Thanks a lot for all the leads and recos. Can you send me that Dr’s contact info?
I am sorry I didnt write back to you earlier as we are fighting a bad staph infection - talk about progress !
Take care and love to Nicholas !

Comment on Current Progress by debinIL

debinIL — Wed, 07 Jan 2009 01:00:23 +0000

The Chinese herbs are working for me for focus and motivation. I can’t tell you the names because they’re mostly in chinese on the bottle with the name of the root on it. Nothing wierd like palpatations or irritability, so i’m guessing they’re safe. (lol, i check more for my kid than me). I still have my own yeast problem which I’m mostly SCD right now with cheats (soy in my coffee, BBQ sauce on my meat), taking mega probiotics and candidase at night and am. Maybe I should go to zero carbs for a couple days, or fast. I’m ready for drastic measures to bring on the death of this pest.

Comment on Current Progress by Mom

Mom — Mon, 05 Jan 2009 06:26:18 +0000

Deb - I am so jealous - you actually got stuff done!!!!! I’m going to try the enhansa - I also read about vinpocetine helping people focus too, so I am going to try that as well. We shall see how it goes. How do you like the Chinese herbs? Been thinking about that as well…

Comment on Current Progress by Mom

Mom — Mon, 05 Jan 2009 06:24:42 +0000

Maya - you are too sweet - but we’re not there yet.
He’ll talk - we were there once too - and now it’s like a faint memory. Try Candidase - 3 candidase to 1 Candex - seems to work pretty well. You may have to go at it with bigger guns though - diflucan, nizoral, nystatin, saccharomyces boullardii - or even enhansa. Add biotin if you haven’t already - that helps keep the yeast from being able to invade the tissues. Have you looked into Threelac? That did wonders for us initially with yeast.

Comment on Current Progress by maya

maya — Mon, 05 Jan 2009 04:15:47 +0000

This is awesome… Nicholoas is doing so great. Reading this post, I want to suggest a new name for your website, you should now called it “www.recoverednicholas.com” .

Nicholas’s story gives me so much hope. I just cant wait for my lil one to utter his first word. Oflate things are not so great at our end. My son has regressed in terms of focus and eyecontact and his hand flapping has super increased. We are fighting yeast with Candex and GSE but dont knwo how effective it is.

I am planning to call you for sure tomorrow.

Comment on Current Progress by debinIL

debinIL — Mon, 05 Jan 2009 03:11:00 +0000

That’s terrific!
By the way, I’m doing well on 600 mg 2x/day enhansa, keeping Nate at 300mg 2x/day. I added ALA to myself and my Chinese Doctor added some herbs to help me focus, get motivated and IT’S WORKING! I got a lot of work done today. I wish I had this dedication at the beginning of my vacation. Oh, well. My work will be happy with a new me.

Comment on December HBOT hours by Mom

Mom — Sun, 04 Jan 2009 23:25:33 +0000

Thanks Maya, yes, he gets probiotics and enzymes with his meals. We’ve tried giving him sips of liquid in between bites - no rhyme or reason really to when it happens. And short of scoping him with Krigsman which we really cannot afford, at least we know something works, you know what I mean… hopefully as we continue to chelate, this is a symptom that will disappear.

Comment on December HBOT hours by maya

maya — Sun, 04 Jan 2009 22:55:39 +0000

Interestig.
About the throwing up - I can totally relate to you. My son used to throw up every meal - beginnng of the meal, during the meal, after the meal, few mintues to hours after the meal. Our problem is no under control by using the enzymes and probiotics. Hvae you tried giving a few sips of water in between bites to help the food go down?

Comment on Jett Travolta, son of John Travolta & Kelly Preston, dies at 16 by debinIL

debinIL — Sat, 03 Jan 2009 13:04:14 +0000

cnn reports this morning- john told larry king 14 years ago of how Jett reacted to chemicals, they always had to have a clean space for him (when he was two) and they detoxed him back to health. interesting. of course, this will make him sound nutty to those who aren’t affected.

Comment on His poor little tummy by Mom

Mom — Sat, 03 Jan 2009 05:02:30 +0000

Wow, that is fantastic about Nate!! keep me posted on how he does with this.

You are too funny!! Did you start at the lower dose per their instructions or did you start at 600mg??

Yep, the holidays are all over. Monday’s back to work and school (oh, thank goodness for school!)

Comment on Jett Travolta, son of John Travolta & Kelly Preston, dies at 16 by Mom

Mom — Sat, 03 Jan 2009 05:00:13 +0000

It’s amazing how clearly we can see how this all fits together now, isn’t it?

Comment on Jett Travolta, son of John Travolta & Kelly Preston, dies at 16 by debinIL

debinIL — Sat, 03 Jan 2009 04:05:40 +0000

seizures. my half-sister has unexplained seizures and colitis. my niece had OCD after PANDAS 20+ years ago. my 2 nephews have ADD or ADHD. it’s all related. other familiar issues: diabetes, colon cancer, candidas. all related.

my heart goes out, too.

Comment on His poor little tummy by debinIL

debinIL — Fri, 02 Jan 2009 23:02:31 +0000

Hold on a minute - my brain really went into a fuzz. I was taking way too much. Today, I just took one 600 mg and I’ll take another with dinner. I couldn’t think, I wasn’t motivated, and I put back on the couple pounds. I read online that an adult could take up to 8,000 mg a day. I guess I’m not THAT adult.
Nate’s still doing terrific. He’s up to 300 mg at breakfast and 300 mg at dinner. I’m holding steady with that. He’s back in school on Monday (and I’m back to work).

Comment on His poor little tummy by Mom

Mom — Fri, 02 Jan 2009 03:07:21 +0000

Deb - I feel the same doom about the world that you do. Isn’t it so sad that greed just gets in the way?

Wow, no kidding - is that the dosing for adults?? I was thinking of taking it myself. Wow on dropping 2-3 pounds!

I hope too that this one pushes us into some balance - that’s the main reason I haven’t jumped ship on it yet.

Comment on His poor little tummy by debinIL

debinIL — Thu, 01 Jan 2009 18:56:59 +0000

Yup - Nate’s belly is smaller, too. The Chinese Medicine Doctor commented on his distended belly (and belly button). The other day, he was definitely thinner and belly button not as distended. It’s back out a bit today. We’re eating GFCF but some carbs/sugar because of the holidays. I think when we’re back on a routine, he may change again.
As for me, I’m taking 600mg 4-5 times/day. I feel my pours open after I take one, if that makes sense. And I get a slight headache (vessels dialating?), and I dropped 2-3 pounds since Christmas. Yeast is there but not flaring. And my own belly feels a bit smaller.
I think it’s the “detoxing”. I’ve ordered more. G-d I hope this is the one that pushes us into the balance we’re looking to achieve.

Big picture, I’m in a good place, don’t get me wrong. But I feel a “doom” about the world as a whole - the GMO foods, the bees going away, our kids as canaries sending up the flares and the majority are ignoring our screams. The weakened immune systems and increase in health problems. The widely-followed Western medicine offering lifetime maintenance of health issues with real answers, and then they’re looking at holistic like it has no value.
I’m so happy for your boy. It’s the Enhansa (curcumin) shrinking the gut.

Comment on The Bucket List by Mom

Mom — Wed, 31 Dec 2008 03:01:10 +0000

I’m curious to see what the rate is amongst NJ boys in a year or two when the newly mandated flu shot for babies as young as 6 months has time to do damage. Gee, what reasons will they spin to account for the jump in the rate which coincides with the newly mandated vaccines? I’m sure they’ve already got it covered.

Comment on December HBOT hours by Mom

Mom — Wed, 31 Dec 2008 00:26:21 +0000

We try. There is something about the hbot which is helping him besides everything else it does for bacteria, brain inflammation, etc. We (and our doctor) suspect esophageal inflammation - which when we do not do hbot, he throws up in the middle of eating (does not matter what he’s eating) and then goes on to continue eating the same exact food without further incident. He doesn’t have a stomach ache, nothing - it’s very bizarre. As long as we dive consistently, it doesn’t happen. When we take more than 3 days off in a row, it starts again.

Comment on Juicing Veggies for Nicholas by Mom

Mom — Wed, 31 Dec 2008 00:21:18 +0000

Thank you for sharing!!! I have a few books on raw food - I have to start to really dig into them. I’ll post the books I liked so you can take a look. If you find any other recipies which are great, please share them - and I’ll be sure to do the same.

Comment on Bye-bye Microwave by Mom

Mom — Wed, 31 Dec 2008 00:19:10 +0000

I’ll either use my oven or the new toaster oven (which is also convection - very cool). It’ll be a pit of a pain to get used to, but what can you do?

Comment on Increasing Acetyl-L-Carnitine by Mom

Mom — Wed, 31 Dec 2008 00:16:13 +0000

Be careful with TMG & Mb-12 as the TMG (betaine) and Mb-12 injections conflct. Here’s what happened to Nicholas when we increased his mb-12 to every other day and still had him on TMG: http://recoveringnicholas.com/2008/02/05/i-think-ive-figured-it-out-finally/

How much DMG did you give per day? Did you also give it with enough folic or folinic acid? It may not have been the DMG that didn’t work, it may have been that you needed to try a different folate along with it, such as folic, folinic or methylfolate.

Comment on Current Master Supplement Listing by maya

maya — Tue, 30 Dec 2008 23:36:44 +0000

I did not hear good things about Super Pro Bio Gold that it is not potent enough. Our DAN told that a study which showed that the number of billions of bacteria that was claimed on the label was not the same, infact not even fraction which was not acceptable. While he uses a lot of Kirkman products, for probiotics alone he has recommended Klaire Complete.

Comment on Current Progress by maya

maya — Tue, 30 Dec 2008 23:29:12 +0000

Awesome ! Way to go Nicholas !

Comment on The Bucket List by maya

maya — Tue, 30 Dec 2008 23:28:14 +0000

Lovely post ! I love the comment about the “Autism Plague” ! I cant wait to hear the new statistics…although I wish that it is not an alarming number, I am pretty sure it would be now be 1 in 100 kids. Although I hear so many cases, I do not know of anyone in my family or friends or workplace who have an autistic child. We are the odd one out in our community.

Comment on December HBOT hours by maya

maya — Tue, 30 Dec 2008 23:24:36 +0000

HBOT everyday? wow !

Comment on Increasing Acetyl-L-Carnitine by maya

maya — Tue, 30 Dec 2008 23:23:41 +0000

Nicholas seems like a responder for all the supplements .. my son hardly as any progress with any of the supplements.

We did half a bottle of DMG - no reaction, so I have changed to TMG. Its been a week. We are also doing B12 shots.

Comment on Juicing Veggies for Nicholas by maya

maya — Tue, 30 Dec 2008 23:22:02 +0000

my all time favorite is carrot orange juice. add a pinch of salt and sugar. so yumm !

i am giving the apple - baby spring mix juice to my son and you can tell that it contains all these greens. its weird at first but then you acquire the taste. Here is the recipe - 1 small/med apple, 1/2 bag trader joe’s baby spring mix and 1 cup unfiltered apple juice. blend all in the juicer.

i am sure you will find lots of cold soups and vegetable juice recipes. there are tons of books on vegetable juice recipes. one of these i need to grab one from the bookstore or library.

Comment on Bye-bye Microwave by maya

maya — Tue, 30 Dec 2008 23:17:52 +0000

Yea please post the microwave information… its so hard to convince my family the truth about microwaves.

Congratulations on your new oven ! Enjoy !

Oh one more thing - how do you reheat food without microwave now?

Comment on Merck discontinues the single MMR vaccines by Mom

Mom — Mon, 29 Dec 2008 15:12:29 +0000

Yep, totally. Just another reason not to vaccinate for any of them. Heaven forbid that there be a population of children who do not become autistic because their parents spread out and separated their vaccines. I’m just so done with all of it - it just makes me ill anymore.

Comment on Merck discontinues the single MMR vaccines by meredith

meredith — Mon, 29 Dec 2008 13:48:38 +0000

UGH, doesnt that make you SO mad! So many parents who are educating themselves are wanting this option and to take it away is such a shame.

Comment on What a wonderful Christmas… by Mom

Mom — Sun, 28 Dec 2008 04:40:22 +0000

Awesome! I didn’t want anything…. anything other than money to pay for supplements. LOL and who are those for?? I am, however, shopping for a blender/juicer to get some veggies into Nicholas with that moolah.
I totally agree with you - the best gifts could not top the progress he’s made this year - and the joy in watching him open his gifts. (I admit, I went a little overboard as this was the first year we thought he would actually get the Santa/opening presents thing - which he totally did. So we had a couple of years to make up for!

Comment on Current Master Supplement Listing by Mom

Mom — Sun, 28 Dec 2008 04:31:29 +0000

That sounds really promising! I should try some of this stuff and see….
I have an appointment in a few weeks to have my amalgams removed. I am so glad to hear that your memory improved right away. Before he was born, I used to be able to remember conversations verbatim. Since he was born, I can only remember the gist of the conversation and maybe a quote here and there. Frustrating as hell. God only knows what was in the drips dripping into me when I was in labor. I have always wondered why that 2nd dose of the epidural made everything sound metallic. Perhaps it had EDTA or something else in it which leached a ton of mercury into my system from that tooth. As soon as it is out and I’m past the okay point to chelate, I’ll be joining Nicholas every weekend - I just can’t take feeling like this anymore.

Comment on What a wonderful Christmas… by debinIL

debinIL — Sun, 28 Dec 2008 04:28:27 +0000

best. christmas. ever.

my family asks me what i got, and it doesn’t matter. I tell them how happy I am that my boys are happy and healthy (thanks to my debt and juggling of supplements) and because they enjoyed their holiday, i’m content. really, there’s nothing material that could be bought to replace that feeling.

Comment on Current Master Supplement Listing by debinIL

debinIL — Sun, 28 Dec 2008 04:22:06 +0000

I started on the 150mg a couple days, then jumped to 600. started 150 on 12/23, and by xmas day i had to lay down for a bit. up’d it the day after with no huge reaction (feels like i’m sweating it out, but i’m not sweating-if that makes sense) and today same thing. my yeast did flare over the past couple days, but today, my energy is up. fingers crossed. i haven’t been tested myself.

i have taken the silver out of my mouth back in November and my memory improved right away. i keep saying once Nate is better, I’ll focus on me(right, after we get our bills paid, and everything else that’s a priority). I keep doing hit-or-miss stuff. I like enhansa so far. maybe it’s my magic bullet…

Comment on Current Master Supplement Listing by Mom

Mom — Sat, 27 Dec 2008 18:43:42 +0000

Yep, we went through that enhansa healing regression too. Nicholas’s was so bad that we had to cut the dose in half down to 75mg per day - we just could not take it anymore. He must really have some bad stuff in there that needs to come out!
How do you feel on the 600mg??

Comment on Mercury Poisoning is not new…. A must see by Mom

Mom — Sat, 27 Dec 2008 18:41:58 +0000

I saw that - amazing isn’t it? Let’s not forget Lisa Marie Presley’s mercury issue years ago.
You know what I don’t get….. how far do these “officials” think their pay-off money is going to get them? their children? their grandchildren? This is all going to bite them in the rear in the end anyway.

Comment on The Bucket List by Mom

Mom — Sat, 27 Dec 2008 18:33:39 +0000

We, too, had a very nice Christmas without seeing any extended family. Just us and Nicholas’s grandparents. Lovely. Everyone gets it. Everyone is on board.
I definately have long term goals - and becoming a grandma is definately one of them :-)… gonna go back and revise my post - have thought of some new ones….
I love the “telling stories about the Autism Plague one - that is fantastic!

Comment on More of Nicholas by Mom

Mom — Sat, 27 Dec 2008 18:29:57 +0000

Lee - I sent you an email privately - I hope you got it. Hearing that my blog has helped you rejuvenate your efforts to recover Taylor brought tears to my eyes. Thank you.
We used Glutathione previously and never saw any differences, so we stopped. I had also read that one dose of DMSA will regulate Glutathione. Also, I had used it for a few days when my son appeared with a red rash all over his body - but it made him nuts, so we discontinued it. I guess he just does not need it right now.
I think everyone equates depleted glutathione to not being able to detox and therefore retaining heavy metals. Doesn’t help that most pediatricians recommend tylenol for our kiddos before/after vaccination - and tylenol is said to deplete glutathione for three weeks. Don’t get me started on all of the horrible advice given to us by Nicholas’s pediatricians. Hope you are enjoying the holidays!!

Comment on The Bucket List by debinIL

debinIL — Sat, 27 Dec 2008 17:14:44 +0000

I loved the movie, too. I’m only going to surround myself with people who care and like me/us. This means family, too. If they don’t “get” what I’m doing, I’m not going to spend much time with them. We had a very nice Christmas not seeing my family - best one so far. I controlled the food, I wasn’t embarassed by the couple of meltdowns (Enhansa + cold = regression), I didn’t have to hear “advice”.
You should add some long-term goals to the list - become a Grandma, tell stories to the next generations of the “Autism Plague” and the parents rising up over “scientists” and “doctors” to conquer it themselves.

Comment on Mercury Poisoning is not new…. A must see by debinIL

debinIL — Sat, 27 Dec 2008 17:04:37 +0000

Jeremy Piven is taking a break from acting because of all the raw fish he’s been eating. Although it via a different route, at least it’s bringing attention to the issue.
And there’s a huge spill in TN of coal ash:
http://www.nytimes.com/2008/12/27/us/27sludge.html?_r=1&hp
I wonder how much lying is being done by “officials” right now.

Comment on Current Master Supplement Listing by debinIL

debinIL — Sat, 27 Dec 2008 17:01:15 +0000

I love reading your updates. I love that we’re doing some of the same brands: Houston Enzymes, Enzymedica, Mb12 from Hopewell (they make it so easy), Vit d3 2,000 iu :). Nate has a cold, and I started enhansa. The cold is taking longer to leave him. He’s also having a regression - hyperactive, can’t understand his words, going back to saying “dicka sicka” over and over.
This morning, still has the cold, but he’s doing much better (150 mg enhansa/day). His words are clearer, he wants me to play with him (the past 2 days, in his own world playing), and he just seems happier.
I’m taking the 600 mg enhansa/day to kick my yeast. I’m going back to SCD 1/4/09 (after all the parties are done).
Hang in there! We’re supporting you through the internet!
Deb

Comment on More of Nicholas by lee

lee — Tue, 16 Dec 2008 17:26:03 +0000

Wonderful news. Like you I have a son who is on the ASD. First let me thank you for providing this site. It ahs helped to rejuvinate my own efforts to recover my son Taylor. I did have a question regarding your personal view on Glutathione. Have you tried it before along with the chelation? Have you seen any of the research relationg metal toxity to depleted levels of Glutathione in the body. I’m just curious.

Again, thank you for this site, for sharing your journey, and spreading soem hope.\

Lee

Comment on Red Rash by rlneub

rlneub — Sat, 29 Nov 2008 12:25:37 +0000

Rash getting worse with HBOT is almost always allergy related.

Comment on Thanksgiving 2008 - What I am thankful for this year by meredith

meredith — Thu, 27 Nov 2008 20:05:40 +0000

Michelle,
What a great post. I am so happy you and your family are all going in the right direction. Here’s to an even better ‘09. Take Care.

Comment on Thanksgiving 2008 - What I am thankful for this year by debinIL

debinIL — Thu, 27 Nov 2008 17:39:48 +0000

GFCF Organic turkey is cooking, so are the sweet potatoes, bread and pumpkin bread. organic cranberry sauce in the fridge. I’m thankful for all of the above, plus Whole Foods, my understanding and enlightened pediatric practice (vaccines are parent choice), and credit cards to pay for it all.

Comment on What is “Recovery”? by Mom

Mom — Wed, 26 Nov 2008 01:11:08 +0000

I have no plans on stopping until we get to healed either. No kidding. The more I read about processed food, it makes me want to live on a farm and grow my own food.

Comment on Parent/Teacher Conference Today by Mom

Mom — Wed, 26 Nov 2008 01:09:42 +0000

Yes, I have talked about certain things like hbot. After seeing the changes in him after doing hbot, his teacher was very interested in other things like casein/gluten allergies, yeast, etc. Most of the folks I have encountered definately agree that autism has medical causes. It wasn’t the response I thought I would get - I thought I would get the typical response given by the MD’s.

Comment on What is “Recovery”? by debinIL

debinIL — Wed, 26 Nov 2008 00:49:02 +0000

I was just talking w/my husband 2 days ago - he’s “managed” now, but I want him healed. I’m searching for someone who can get him beyond his sensitivities to “normal”. Although, living this way is a lot healthier - no fast food, no refined sugar…

Comment on Parent/Teacher Conference Today by debinIL

debinIL — Wed, 26 Nov 2008 00:40:18 +0000

this is terrific! have you told them what you’re doing to recover him? i bet this changes minds about “controversial” medicine.

Comment on 1.2.3.4… Hide and Go Seek Mommy by rlneub

rlneub — Sun, 23 Nov 2008 13:56:28 +0000

Just found your site. Have not read much other than this first post but i am glad he is doing do good.

Off to read

Comment on Mommy, Where’s Daddy? by debinIL

debinIL — Sat, 15 Nov 2008 01:14:30 +0000

I believe we were put on earth to do this. This is part of our reason to be. My son seems to know I’m helping him, too.
Nate’s been misbehaving the past few days. I’m going to cut down on his carb/sugar and add the phenol assist as soon as it arrives. He’s bugging me now, gotta go.

Comment on Mommy, Where’s Daddy? by Mom

Mom — Fri, 14 Nov 2008 05:22:39 +0000

I can’t wait for the day that he can answer that question. I have told him, on more than one occasion, that mommy is working really hard to give him his voice back and get him out of there - and he has said, “i know mommy” - and that’s not a phrase I’ve ever heard out of him other than when I say that.

Comment on Mommy, Where’s Daddy? by debinIL

debinIL — Fri, 14 Nov 2008 01:22:19 +0000

Can you ask him what he remembers when he couldn’t talk? I wonder what he’ll say…

Comment on Welcome by maya

maya — Wed, 12 Nov 2008 23:03:02 +0000

Wow.. I am amazed by your site. This site is going to be my reference. Thank you so much for doing this.
Thanks,
Maya

Comment on The changes are undeniable…. by Mom

Mom — Tue, 11 Nov 2008 03:19:36 +0000

Thank you so much Lou! Today he started asking Where questions. I’m just in amazement!

Comment on The changes are undeniable…. by LouCee

LouCee — Tue, 11 Nov 2008 02:55:08 +0000

Posts like this bring tears to my eyes. I’m so happy for your family.

Comment on What did you do at school today? by debinIL

debinIL — Sat, 08 Nov 2008 01:23:21 +0000

Comment on Trying capryllic acid for yeast by Mom

Mom — Fri, 07 Nov 2008 05:39:18 +0000

I have plans to remove mine too. What we go through right??

I actually added in some yeast aid (boy that smells horrible) twice tonight - just 1/8th teaspoon each time, so we’ll see if it works. The caprillic acid I had was a huge dose - thank goodness I only have him a quarter of the cap - I might have had some major die off on my hands.

Comment on One Fish Two Fish by Mom

Mom — Fri, 07 Nov 2008 05:37:19 +0000

Ain’t that the truth!

Comment on Instead of buying designer handbags, I buy vitamins instead… by Mom

Mom — Fri, 07 Nov 2008 05:37:00 +0000

Thanks for that - I laughed so hard I had tears in my eyes!

Comment on Instead of buying designer handbags, I buy vitamins instead… by debinIL

debinIL — Fri, 07 Nov 2008 03:56:15 +0000

Show off! Only the ritzy supplements for your kid.

Elitist!

Comment on One Fish Two Fish by debinIL

debinIL — Fri, 07 Nov 2008 03:54:43 +0000

Tonight, my husband said, “$$$ in medical treatment so he can talk back to me?!”
I said, “It’s a wonderful problem”.

Comment on Trying capryllic acid for yeast by debinIL

debinIL — Fri, 07 Nov 2008 03:50:49 +0000

Personally, I have the yeast problem. I knock it down and then I have a little bit of carbs and it raises it’s ugly head again.
I’m going to a dentist who specializes in removing the metal in my mouth. I’ll go on the no-carb high-caprylic acid kirkman’s yeast stuff when the metal’s removed to see if I can conquer this awful beast.

Comment on Our Day in the Backyard - by dad by RecoveringNicholas.com » Welcome daddy!

RecoveringNicholas.com » Welcome daddy! — Thu, 06 Nov 2008 03:31:08 +0000

[…] Our Day in the Backyard - by Dad « Trying capryllic acid for yeast […]

Comment on Smiley face picture for Mommy by Mom

Mom — Sun, 02 Nov 2008 05:08:57 +0000

Oh you’ve got that right!

Comment on Smiley face picture for Mommy by debinIL

debinIL — Sat, 01 Nov 2008 22:02:28 +0000

Yey! I bet it’s on your fridge until you’re able to frame it :).

Comment on Happy Halloween! by Mom

Mom — Sat, 01 Nov 2008 14:09:31 +0000

Thank you!! That is awesome!!!
Good thing is, Nicholas could care less about all the candy - all he wanted was a lollipop, so I obliged. The rest of it was thrown in the bag to give out to the other kids.

Comment on Happy Halloween! by debinIL

debinIL — Sat, 01 Nov 2008 13:06:25 +0000

what a great story!!! He’s so cute!
Last year, my Nate threw a tantrum, didn’t want to put on his outfit, and was ok with opening/closing the door every time the door bell rang at home. (the OCD in him loved opening/closing doors). I stayed home with him and my husband took our older boy house-to-house.
This year he was right there by his brother’s side, and he didn’t even want to walk with me. He took my hand maybe once or twice, but it was more about being next to Jake. When we got home, I traded their candy for toys they both wanted. Jake got to keep about 10 pieces, Nate has a stash of organic lollipops in the pantry. The candy is hidden and will go to the office on Monday to fatten up my coworkers.

Comment on New Supplement added today by Mom

Mom — Fri, 31 Oct 2008 01:45:52 +0000

You are so right, reading what other parents are doing is really helpful in so many ways. New ideas on what to try next, what reactions to watch out for, what improvements supplements brought, the list goes on and on.
That is awesome about his speech. Just awesome!! I have to start working on swallowing pills with him, it would make life so much easier!! I have those mini Carlson D3’s - I should give those a try.

Comment on New Supplement added today by debinIL

debinIL — Fri, 31 Oct 2008 01:36:51 +0000

Kirkman’s.
I’m explaining to my husband how reading what other parents are doing is helpful to know what we can do when something is lacking. His speech was very clear today, his questions had all the words. When he had his Vit D3 with dinner, he counted down the pills as he swallowed - 5, 4, 3, 2, 1.

Comment on New Supplement added today by Mom

Mom — Thu, 30 Oct 2008 01:49:42 +0000

I tried coQ10 for a while and just stopped it because we saw nothing from it. I just picked up ubiquinol coQH-CF (the reduced form of coQ10). If this one doesn’t show any improvement, I’ll try the idebinone (the biological form of coQ10) and see if that works. Glad it’s working for you, what brand are you using??

Comment on Current Master Supplement Listing by Mom

Mom — Thu, 30 Oct 2008 01:42:47 +0000

They thought I was nuts too until they saw what they were doing for Nicholas. I had bottles stashed everywhere, I just gave up recently and keep a big tupperware bin on my counter.
Funny you should mention the Vit D3 - I just bought another version so I could add more.
That is wonderful that you are seeing improvements with upping Nate’s dose - that is awesome!!!!

Comment on New Supplement added today by debinIL

debinIL — Thu, 30 Oct 2008 01:01:55 +0000

I’ll keep this in mind. We’re using Idebinone right now and it’s working well for us.

Comment on Current Master Supplement Listing by debinIL

debinIL — Thu, 30 Oct 2008 01:00:42 +0000

Woah! You win!
On second look, not by much :(. Relatives think I’m nuts with all the supplements on the counter. They don’t see the ones I keep on 2 shelves in a cabinet.
You’re at about 1200 ui of Vit D3. My pediatrician is recommending a minimum 2000 for kids, more if they’re immune compromised (5-10k). I’m taking 5k/day, and since I’ve increased Nate to 2000 he’s making some improvements I wasn’t seeing before (potty trained, verbal and comprehension improvements).

Comment on This year, I am a one-issue voter…. the one issue is my son. by meredith

meredith — Fri, 24 Oct 2008 00:40:06 +0000

I have been undecided and still sort of am. My husband? Defnitely an Obama guy…But I too think Mccain is the one to help our kids, and reform the vaccine schedule and safety. As of this week, I can’t ignore that issue, even though I am not crazy about some of his other choices. He defintiely does have the guts to go against the grain, which is going to be essentail to bring this issue to light! Hope youre well Michelle!

Comment on Green Our Vaccines? by LouCee

LouCee — Mon, 20 Oct 2008 16:51:37 +0000

I can’t believe the nerve!

Comment on New Supplement added today by Mom

Mom — Mon, 20 Oct 2008 13:36:25 +0000

Deb - that is awesome!!

Comment on Win a copy of Mother Warriors! by meredith

meredith — Mon, 20 Oct 2008 00:37:36 +0000

Would love to win a copy! Can’t believe I still havent read it-

Comment on New Supplement added today by debinIL

debinIL — Sun, 12 Oct 2008 15:52:40 +0000

I increased his Vit D to 1000 ui twice a day and he’s spontaneously pooping in the toilet. His language is coming along, too. He’s not “there” yet, but I’m the only one who notices his “lacking” compared to his peers.

Comment on Scribbles of thoughts for this week by LouCee

LouCee — Sun, 05 Oct 2008 02:33:20 +0000

That’s awesome Michelle!

Comment on So, what happened on Capitol Hill yesterday? by debinIL

debinIL — Sat, 27 Sep 2008 18:08:09 +0000

I just came from the AofA website. I’m glad you’re spreading the word, too.

Comment on Scribbles of thoughts for this week by meredith

meredith — Thu, 25 Sep 2008 23:48:08 +0000

That is seriously huge Michelle. I am most defintiely impressed with the crying part. I too do that often, and hopefully one day I will get a hug too! Way to go Nicholas.

Comment on Update on Nicholas by debinIL

debinIL — Sat, 20 Sep 2008 14:23:50 +0000

Your rewards system has to shrink before you’re in the poor-house.
Nate is almost 4 and he got a haircut last night. This morning he was telling me he got his haircut last night at “Sports Clip” (sic). He also recounted the story of the ice cream-eating contest at big brother Jake’s school last night. “They ate it and then wiped their mouth”. He then pretends to wipe his mouth.
He was never vaccinated. I’m calling him “milk-injured” because his symptoms started after all the milk-yogurt-ice cream my daycare lady gave him for months. He’s healing with diet (GFCF no dyes/preservatives), digestive enzymes, vitamins, omega (and lots of supplements), Mb-12 shots and naltrexalone cream. He’s peeing without problems, but poo is hit-and-miss. I’m thankful I found a pediatrician who was OK with me deciding to not vaccinate him. I’d be in the poorhouse right now paying for even more treatment to recover him, not to mention losing all this precious time with him in a fog.
The blessing in disguise here is with all the affected kids brings awareness to an army of determined parents. We have this wonderful tool, the internet, to share our stories and know that we’re not alone in this awful war. Mother Warriors is a perfect title for Jenny’s book. We are in a war, and I’m not going down.

Hang in there, sister. You are seeing the fruits of your efforts. Capture it on video - your son may not believe or remember the days of his fog when he’s older. Won’t that be a nice day when you can remind him of the journey to wellness.

Comment on Round 3 is behind us! by Mimoza

Mimoza — Tue, 16 Sep 2008 04:30:34 +0000

Thanks, I will buy both.

Comment on Round 3 is behind us! by Mom

Mom — Tue, 16 Sep 2008 02:04:16 +0000

Yes, it is very helpful in reading the specific hair test that you can order through directlabs.com (hair elements, not just the toxic one)
I reference this book in one way or another all the time.
It helped me uncover other issues Nicholas was having such as adrenal issues too.

I just got the new 2008 vesion of Biological Treatments for Autism & PDD by Dr William Shaw - and it’s a great one to pick up too. I just got it today and I am half way through it - has so much valuable information - I will have to read it a 2nd time! You can order this from the same place as the hair test book. noamalgam.com, I believe (The website says it’s the old version, but it’s actually the new version that you’ll get.)
You’re welcome about the chicken nuggets!!

Comment on Round 3 is behind us! by Mimoza

Mimoza — Tue, 16 Sep 2008 01:45:34 +0000

Hi! Congratulation on the 3rd round of chelation!
I would like to ask about “Hair Test Interpretation Book” by Andy Cutler. Is it helpful?
Thanks again for the chicken nuggets link !

Comment on I love you Mommy! by Mimoza

Mimoza — Tue, 09 Sep 2008 04:40:15 +0000

Thanks. We will give it a try, even though my son is in GFCF diet. If he will like them, then we will take off the G part from his diet. Thanks again,
Mimoza

Comment on I love you Mommy! by Mom

Mom — Tue, 09 Sep 2008 01:56:49 +0000

I just love it - just love it!

At the moment, Nicholas is not on a special diet, I’m waiting for some ingredients to arrive so I can make some SCD nuggets, but the one’s he just loves are Dino Nuggets which I buy at Costco.
http://www.perdue.com/products/product_detail.html?category_id=35&id=301
Hope this helps!

Comment on I love you Mommy! by Mimoza

Mimoza — Tue, 09 Sep 2008 00:23:06 +0000

That’s so great! He is already getting the benefits of smart talking.
By the way what kind of nuggets do you use, that he loves them so much? My son is so picky and I am having very hard times feeding him. Thanks,
Mimoza

Comment on First day of School by Mom

Mom — Mon, 08 Sep 2008 03:39:32 +0000

Lou - come to think of it, they do. Strange.

Comment on First day of School by LouCee

LouCee — Mon, 08 Sep 2008 03:08:06 +0000

He’s a cutie! Now that I see that pic I have to ask - do a lot of his clothes have horizontal stripes? It seems like SO MANY of my boys’ clothes do.

Comment on Warning: Tagless Infant Clothing Causing Chemical Burns by LouCee

LouCee — Mon, 08 Sep 2008 03:04:34 +0000

OMG and they are making everything tagless now! You know everyone in this house will be checked tomorrow. Thanks for sharing this.

Comment on So much difference in ONE day. by LouCee

LouCee — Mon, 08 Sep 2008 02:57:54 +0000

I’m so happy to read about what a wonderful day you had!

Comment on So much difference in ONE day. by Mom

Mom — Mon, 08 Sep 2008 01:24:06 +0000

I know - amazing!
Thank you - I’ve done the same thing - obsess over what happened then he’s back to where he was before the step back - it’s happened to us more than a few times - two steps forward one step back should be our motto!

Comment on So much difference in ONE day. by debinIL

debinIL — Sun, 07 Sep 2008 23:39:58 +0000

You told him to stop and he stopped. Amazing.
What I’m seeing with Nate is two steps forward and one step back. I scramble to think what went wrong, fix it or wait it out, then he’s back on track. Don’t get discouraged when there’s a small step back, it’s temporary and will work its way through.

Comment on First day of School by Mom

Mom — Sat, 06 Sep 2008 16:40:59 +0000

Thanks guys!! We say he “has” to be cute or else he would have been auctioned off by now. ha, ha

Comment on First day of School by Mimoza

Mimoza — Sat, 06 Sep 2008 16:22:16 +0000

That’s Wonderful! He is so cute! Congratulations to both you and Nicholas. And he looks a lot like you, Michelle.

Comment on Mercury Vapor From Dental Fillings Captured on Camera by Mom

Mom — Sat, 06 Sep 2008 03:24:35 +0000

I certainly know what you mean. We’ve been duped on all counts. So sad.
We can only make decisions based on the information we have at the time the decision is made. Dont beat yourself up. We didn’t know.

Comment on High Fructose Corn Syrup is good for you…. yeah sure. by Mom

Mom — Sat, 06 Sep 2008 03:21:57 +0000

I love that!

Comment on High Fructose Corn Syrup is good for you…. yeah sure. by debinIL

debinIL — Sat, 06 Sep 2008 01:22:01 +0000

Maybe he can’t think of an answer because he has a foggy brain from all the yeast the corn syrup feeds.

I have to close my mouth before I catch flies.

Comment on Mercury Vapor From Dental Fillings Captured on Camera by debinIL

debinIL — Sat, 06 Sep 2008 01:18:18 +0000

I have so much guilt because of this. My Nate has never been vaccinated. I have awful teeth with lots of silver since my teens. How did the mercury get into my son? It has to be my mouth. I’m going to discuss removing it with my dentist. Why not? I’ve already spent thousands to help my son, why not get me healthy, too.

Comment on First day of School by debinIL

debinIL — Sat, 06 Sep 2008 01:12:45 +0000

How adorable!

Comment on First day of School by Mom

Mom — Fri, 05 Sep 2008 17:16:50 +0000

Meredith - thank you!!!
Throwing some luck your way……….

Comment on First day of School by meredith

meredith — Fri, 05 Sep 2008 11:33:30 +0000

What a cute kid, Michelle. I am so happy to hear his first day was great! Wish us luck on Monday…..

Comment on Our Toys R Us excursion by Mom

Mom — Fri, 05 Sep 2008 03:09:20 +0000

Thanks Lou! I still can’t believe that he said all of that.

Comment on Our Toys R Us excursion by LouCee

LouCee — Fri, 05 Sep 2008 02:59:41 +0000

I *love* this -
“Nicholas, pick one” “No, two Mommy.” “One, Nicholas” “No, I want two Mommy” “Nicholas, pick one train” “No, I want two trains Mommy, not one”

Comment on We survived grocery shopping! by debinIL

debinIL — Sun, 31 Aug 2008 17:15:09 +0000

YEY!

Comment on Round 1: Chelation by Mom

Mom — Sat, 30 Aug 2008 01:44:43 +0000

Thank you so much!!!!! We’re all praying over here too - so far so good.

Comment on Round 1: Chelation by debinIL

debinIL — Fri, 29 Aug 2008 23:58:26 +0000

I’m praying this goes safely and effectively. May you see results quickly and awful no side effects. God Speed!

Comment on Beach baby… by Mom

Mom — Wed, 27 Aug 2008 00:22:17 +0000

Thanks Deb!! Thanks very much for the suggestions - believe me, I’ve tried. It’s hard when you don’t get any input or answers from them. So it’s hard to understand what they’re actually getting out of what they’re doing. We’ll get through to him…. we all know he’s in there.

Comment on Beach baby… by debinIL

debinIL — Tue, 26 Aug 2008 23:01:46 +0000

No, he doesn’t do it for hours. He also listens when I tell him to stop throwing things in the water.
I wonder if “going into his world” would help. Ask him what he sees, what happens when he does it. If he’s doing it for the splash, then explore other ways to splash. *shrugs* Stay strong - he’s in there and will come out with your healing ways.

Comment on Beach baby… by Mom

Mom — Tue, 26 Aug 2008 14:22:29 +0000

Hi Deb - Does he spend hours and hours throwing rocks and sand? For a little while is one thing, obsessively for hours while life passes you by while people are trying to get you to stop is another. Just to clarify, for others who may be reading, what Nicholas was doing was not what I would even consider neurotypical, not at all - it was ALL he wanted to do there, it was obsessive and with no care about the world around him, no desire to play in the water, no desire for anything else. Had it been mixed in with him doing other things, that would have been an entirely different story.
The Kill the baby thing still gets to me, weeks later. I was one of the biggest tom-boys around, dressed in camo like all of the boys in my neighborhood, running around with uzis, capguns, laser tag, etc - we never talked like this. I just can’t get used to this thought of this kind of play and perhaps it is because he is so young and doesn’t even have friends outside of school yet.
I wish I had the answer on what to do on both ends - I am grateful for one thing, Nicholas did not seem to have any idea what was going on.

Comment on Beach baby… by debinIL

debinIL — Tue, 26 Aug 2008 03:15:11 +0000

First, my neurotypical 8-year-old loves throwing rocks and other things in bodies of water. Probably something closer to normal than OCD.
Next, I can relate to the “kill the XXX”. We work so hard getting them healthy, it’s just wrong to put that negative energy and words out there towards our kids….towards anything that lives. My NT 8yo is playing war games and talks about kills without a second thought. This is not the kind of person I want him to develop into an adult.
What do we do??? We can’t shield them forever, so I’m thinking about showing him what wounded vets look like to bring home what war “games” do to flesh. As for my affected boy, he’s catching on more and more every day. I think I’ll have to read up on what verbal and physical tools he can use to defend himself when I can’t.

Comment on A Glimpse into normal by Mom

Mom — Thu, 31 Jul 2008 21:22:39 +0000

Thank you! We pray they keep coming!!

Comment on Klaire Labs Therbiotic Complete started today by Mom

Mom — Thu, 31 Jul 2008 21:19:08 +0000

Nina, that is awesome to know- thank you. I usually run for the activated charcoal when a stomach ache starts, but I’ll try this next time.

Comment on My little man is quite the trooper! by helaina

helaina — Thu, 31 Jul 2008 21:06:45 +0000

Wow, he sounds like he’s doing great!

Comment on Klaire Labs Therbiotic Complete started today by helaina

helaina — Thu, 31 Jul 2008 20:50:58 +0000

This stuff is amazing. Whenever I have stomach ache (usually from accidently eating something with milk in it), if I open the capsule and take this within 20 minutes, the pain will go away. Great stuff!

Comment on A Glimpse into normal by helaina

helaina — Thu, 31 Jul 2008 20:36:39 +0000

Michelle, congrats on the NT day!!

Comment on Chunky Monkey by Mom

Mom — Tue, 29 Jul 2008 18:38:37 +0000

Hi Meredith - He’s only gained this kind of weight since we started hbot. I guess it’s evidence that it’s help healing his gut so he’s actually absorbing what he’s eating.
I believe we did check out his thyroid though.

Comment on Chunky Monkey by meredith

meredith — Mon, 28 Jul 2008 17:56:16 +0000

just reading about nicholas– Have you had his thyroid checked out?

Comment on Cybill, are you there?? by Mom

Mom — Sat, 26 Jul 2008 03:28:29 +0000

Wow, two home births - that is awesome!! You are very lucky to have found a doctor so supportive to your wants.
I was curious to the specific name of the hair test. Did you run the Hair Elements test? or just the Toxic one?

Comment on Chunky Monkey by Mom

Mom — Sat, 26 Jul 2008 03:26:24 +0000

I’m not worried about the number, it’s the % of weight gain in such a short time frame. He was always solid to begin with - it just is a bit concerning.

Comment on Chunky Monkey by debinIL

debinIL — Sat, 26 Jul 2008 03:20:07 +0000

If he’s eating healthy, why worry? My Nate’s been 36-39 pounds for the past 6 months. He eats healthy and all the time, just isn’t putting any pounds on his body. He did gain an inch in height.

Comment on Cybill, are you there?? by debinIL

debinIL — Sat, 26 Jul 2008 03:18:06 +0000

I have to research the vinyl, I’ve read the gases dramatically decrease after a day or two of airing out…I’m not doing anything until I can be comfortable. He wears a cotton t-shirt and night time diaper to bed, nothing more. Maybe in the winter sweatpants. I had both my boys born in our home with a doctor and they were aware we didn’t want vaccinations. The head doctor is very vocal about vaccinations and challenges the need for them. He’s written a few books. The practice is very supportive of the parents choice when it comes to shots.
He had the hair test to determine what’s in him/coming out (among others).

Comment on Cybill, are you there?? by Mom

Mom — Fri, 25 Jul 2008 01:02:21 +0000

Biomend - what a typo! Does it get more truthful than that?
You definately do not want to put a vinyl cover on his bed. (more off-gassing fumes to inhale, which you do not want.) There is a way to safely cover his mattress, so he no longer inhales/absorbs any more of the flame retardant in that mattress. I’ll grab that info and post it later. Don’t forget, no more buying pajamas which are loaded with chemicals too - you need to buy the snug-fitting ones which usually will say they are NOT flame retardant. (just in case you weren’t already aware,)
Are you positive that he was never vaccinated?? Not even the hep shot at birth? (Just in case you weren’t aware of the birth vax - lots of parents didn’t even know about it.) Your fillings would definately be a possibility.
Blogging has been an absolutely wonderful way for me to keep track of everything. The details are overwhelming as I am sure you already know.
A friendly doctor is not an easy thing to come by these days - I totally understand what you’re going through there.
Which test did you do to know he has mercury & antimony?

Comment on Cybill, are you there?? by debinIL

debinIL — Fri, 25 Jul 2008 00:32:10 +0000

It’s comforting seeing another parent going through Biomend (typo, but I’ll keep it). We’re GFCF, supplements, probiotics, enzymes, mB12 shots and nalaxalone (sp?) cream. he’s never been vaccinated, but he has mercury in him (??? my dental fillings?) and the one chemical found in bedding (antimony?). I’m too lazy to get the tests for the spelling. So the other day I looked and sure enough, his mattress, pad, sheets are all flame retardent and artificial. I think I’ll get a vinyl cover for the mattress and get a thick organic pad to go on top, then get the green sheets for him.
I think blogging will keep a better log of my kids up and downs. When I get organized.
His name is Nate and he’s 3.75 years old. Not diagnosed yet, working on finding a friendly doctor/team, and I’ve contacted the school to initiate (hopefully) speech/language and OT before a dx. He’s high functioning, and biomeds keeping him there, but not progressing with peers.

Comment on Cybill, are you there?? by Mom

Mom — Tue, 22 Jul 2008 03:07:35 +0000

Hi Deb. Yes, we tried the GFCF diet and we really saw no difference. We did, however, see a difference after I stopped giving him milk in his bottle. I thought since we saw a difference after stopping the milk, that the rest was a no-brainer, but removing the casein completely - nada, no difference. We are working on implementing the Specific Carbohydrate Diet at the moment, so I’m sure I’ll be posting about that soon. (I’m still adding things into the archives from my notes - as you can imagine, life gets the best of me
We started Nicholas on a new supplement the other day and I believe it’s either this supplement or a reaction to chlorine (as we hadn’t been swimming yet this summer) - so it’s either one or the other causing the craziness. If I had to venture a guess, I’m guessing it’s the new supplement.
How’s your kiddo doing?? Thanks for taking the time to post!!

Comment on Cybill, are you there?? by debinIL

debinIL — Tue, 22 Jul 2008 00:40:27 +0000

Are you doing the GFCF diet? My kid goes bonkers when he has any gluten or cows milk. I’ve been reading since June, checked out November archives…I didn’t read why you’re not on a special diet for him (yet).

Comment on Amanda Peet & Paul Offit: Perfect Together by rei

rei — Mon, 21 Jul 2008 02:36:15 +0000

Hi Michelle,

He has actually had a pretty bad rxn to a cookie that didn’t actually have nuts in it. When I looked more closely, the packaging said that it was manufactured in a factory that made other products containing nuts. I wish I had paid more attention to the warning, b/c I’ve read that babies aren’t supposed to come in contact before the age of 2, b/c if hey do, you can actually CAUSE an allergic rxn. So I totally blew that one. As far as the eggs and rye go, we’ve never exposed him to rye, but eggs I think he does get a mild rash. Nothing serious. The docs did say that blood allergy testing was less reliable than the scratch testing. That’s interesting that Nicholas tested positive for things that he has eaten without any problems… good thing, though!

Comment on Amanda Peet & Paul Offit: Perfect Together by Mom

Mom — Fri, 18 Jul 2008 02:57:52 +0000

Not that I’ve ever heard. He started saying Hey Paul yesterday after hearing me call my husband, so then to be funny, I wanted to see if he could say my name and he said “hey michelle” a few times. Then today, when I was trying to finish typing something, mommy didn’t work, so he started “hey michelle” — the more we laughed, the more he did it.

I don’t blame you for being pro-active at all. I put everything out here so people learn from what we’ve been through. I wouldn’t wish this on anyone in the world… not even my worst enemy (not that I have any, but still)
The thing with allergies and allergists is that allergists seem to have differing opinions on what tests mean something vs what tests are useless. It’s been our experience that all of the different allergy tests give us yet another piece to the puzzle (and that goes for anyone really). Has he ever had a reaction to rye or eggs? Nuts I wouldn’t test for anything - but Nicholas has had peanuts and peanut butter and even eats the chex mix (which has peanut dust) and has never had a reaction - at all. When his allergy test came back positive and high, I was really surprised.

Comment on Amanda Peet & Paul Offit: Perfect Together by rei

rei — Fri, 18 Jul 2008 02:34:29 +0000

You know, an allergy to the can actually makes sense. I’ll definitely look into that! Thanks so much! For his allergy test, he had an IgE done when he was about 6 months and then a skin scratch test when he was one year and two months. The blood test revealed an allergy to eggs only, but the scratch test revealed additional allergies to nuts and rye. The doc did say that the skin scratch test was going to be more accurate. It’s so hard that he’s allergic to these foods, esp with him being a picky eater!

I read your more recent post of Nicholas calling you Michelle. My nephew (my sister in law’s son) is autistic. (He’s 6.) He quite frequently calls his parents Aileen and Greg. Is this a characteristic of autism?

I’m honestly so proactive about my son because I’ve seen what my nephew and his mom go through. If it weren’t for knowing them, I’d have likely ignored all the hype. It’s bittersweet. Of course, I am not glad that my nephew is autistic, but by researching as much as I can and preventing it in my own son, I’m hoping that his condition doesn’t go in vain.

Comment on Green Our Vaccines Rally - Washington DC by Mom

Mom — Fri, 18 Jul 2008 01:41:02 +0000

No, I live in New Jersey, so it was a nice getaway for the girls of the family. I’ll be sure to let you know if I hear of another one - it was an amazing day! The energy there was unbelievable - I had such a positive experience.

Comment on Amanda Peet & Paul Offit: Perfect Together by Mom

Mom — Fri, 18 Jul 2008 01:39:35 +0000

I know what you mean about trying to find the magic ingredient that he’s reacting to. I did the same thing with a supplement that he was doing fantastic on, but we had to take him off of it due to another ingredient clashing with his mb-12 injections. I finally found it, but, what a ton of work!

From what I’ve read, and it’s been a while, there is an issue with the can the powdered formulas come in. I made a mental note of it, since we were passed formula at that point - but, you never know, that could have been the issue. So glad RTF formula is working for you!

Which allergy test did they do? IgE, IgG or skin scratch test?

Glad you made an appointment - always better to do it sooner than later and put your mind at ease! Good for you for being so proactive for your child!

Please let me know how it goes!!

Comment on Amanda Peet & Paul Offit: Perfect Together by rei

rei — Thu, 17 Jul 2008 15:40:49 +0000

Took your advice and set up an appointment with a local program in my area called Child Find.
Other than constipation, he doesn’t really have any GI issues. As far as allergies, we went through a couple of months of not knowing what in his formula was making his scalp weep. Literally weep. He didn’t have any problems when I was breastfeeding, but when I went back to work when he was 4 months old, I put him on powder formula and that’s when the allergic rxns started. We never determined which component of powder formula caused the rxn, but putting him on the Ready to Feed formula helped 100%. I have tried researching each ingredient and comparing the ingredients to the RTF formula to try to hone in on the allergy through the process of elimination, but still… nothing. I recently took him to an allergist and found out that he was allergic to nuts, eggs, and rye. All of which are not in powdered formula. It’s very odd.
He doesn’t really have behaviors that worry me, but he used to flap his arms a couple of months ago. That has since stopped. He also didn’t have any separation anxiety until he was around one and a half. He does answer to his name (albeit, only when he wants to) and he does maintain good eye contact and also does so spontaneously. Writing this out, I do realize I might just be paranoid, but I thank you for your insight and for listening and for your advice.
I’ll keep you posted about the results of his eval.

Comment on Green Our Vaccines Rally - Washington DC by rei

rei — Thu, 17 Jul 2008 13:56:21 +0000

This is awesome! Do you live in the area? I live in the Northern VA/DC Metro area and had no idea that this took place. I’ll have to make sure to participate next year!

Comment on Amanda Peet & Paul Offit: Perfect Together by Mom

Mom — Thu, 17 Jul 2008 05:20:33 +0000

With Nicholas, I think that they all contributed to it, It was like one blow after another - I do believe that the final round he had was the straw that broke the camel’s back - I will go back through my notes and look it up… I’ll get back to you on that.
I think his vocabulary being 25 words is pretty normal, if I remember correctly from when I was so concerned that he didn’t have that many words by 2. From what I read and heard at the time, many boys have a language explosion around 24 months, so that could be right around the corner for you - but 25 words, I think is pretty normal. Also, are you sure that he has 25 words and not more? From what I have read, they count approximations as words - like if he says ba for ball. baba for bottle, that sort of thing. He may just have more words than you think. The fact that he is understanding what you are saying to say No back to you - that is good. I could be wrong, but I don’t believe what you are seeing is echolalia. Is he doing the same thing to stuff he sees on TV? or in other contexts? Or just repeating the stuff that he wants?? I’m seeing alot of that now with Nicholas (him repeating words I am saying) and it’s because he is now understanding me so much better that he’s learning all of these new words.
Today, I think any parent’s concerns about vaccinating and autism are justified.
Does he have any behaviors which worry you? Anything that he does that you think is strange? Any GI issues? Allergies? Can you redirect him to other activities easily? Does he answer to his name?
Your best bet if you are concerned is to have your local Early Intervention program come in and evaluate him. I wouldn’t wait to set up an appointment, because it could take a while for them to come. Then at the very least, they’ll be able to tell you where he sits as far as speech and other abilities are.
Check out this checklist when you have a moment:
http://www.recoveredfromautism.com/images/ASD%20warning%20signs.pdf

Comment on Amanda Peet & Paul Offit: Perfect Together by rei

rei — Thu, 17 Jul 2008 04:11:59 +0000

Do you have entries on when you found out Nicholas had Autism, and which vaccines in particular may have been the culprit? My son was on schedule up to his 9 month check up, and I haven’t given him any more. I’m paranoid about his development because I’m terrified that I may have stopped it too late. (He was around 9 months when Jenny McCarthy was on Oprah.) He is for the most part a normal boy, except his vocabulary is about 25 words… pediatricians say it’s supposed to be at least 50 words by the time he’s two. (He’s 22 months now.) He’s also very picky with food and hates to sit still. He knows how to say “no” when I ask him to do something he doesn’t want, but he doesn’t know how to say “yes” when he wants something I offer. Instead, he repeats the name of the object or food I’m offering. I’ve read that this is echolalia and is very common for Autistic children. Are my concerns justified or do you think I am just being paranoid? Any advice you could give would be great. Thanks and I’m so happy for Nicholas’ progress! Keep us posted!

Comment on Amanda Peet & Paul Offit: Perfect Together by Mom

Mom — Tue, 15 Jul 2008 04:14:58 +0000

Thanks!! and thanks for writing your post. It’s good to see parents actually stop before it’s too late - and to share that news with others around you. More and more parents are coming out of the woodwork to say that vaccinating their child(ren) scare them more than anything and by you speaking up, you are letting them know they are not alone. Thank you for that. (and all of the unborn children who won’t become autistic because you helped their mom & dad’s radar go up and take notice to what’s going on here thank you too!)

Comment on Amanda Peet & Paul Offit: Perfect Together by rei

rei — Tue, 15 Jul 2008 03:58:18 +0000

I came across the same article today and just posted about it! Like your post better, though. You made funny what I couldn’t — and in 100 words or less.

Thanks for linking a post of mine and for all of the information that you have posted here. It’s easy access for parents like me. And I think that starting this site because of the fear for what would happen to Nicholas if something happened to you… brilliant. Thank you for sharing your story with the world.