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This blog is about Nicholas’s journey through autism to recovery.


Category: 1. Diagnosis: Autism

Nearly half of children with autism experience GI problems

8 May, 2010 (11:20) | 5. News, 1. Diagnosis: Autism | By: Mom

Nearly half of children with autism experience GI problems
http://www.pediatricsupersite.com/view.aspx?rid=63809

VANCOUVER, British Columbia — Data presented this weekend at the 2010 Pediatric Academic Societies Annual Meeting add to the poorly understood relationship between gastrointestinal symptoms and autism spectrum disorders — suggesting that GI symptoms are, in fact, common and may increase as children get older.

The study, conducted by the Autism Speaks Autism Treatment Network, involved data from 15 treatment and research centers in the United States and Canada and included information from 1,185 children aged 2 to18 years with a diagnosis of autism, Asperger’s syndrome or pervasive developmental disorder-not otherwise specified.

The researchers determined that 45% of these children had GI symptoms at the time of enrollment, with abdominal pain (59%), constipation (51%) and diarrhea (43%) most commonly reported. Older children were more likely than younger children to experience GI symptoms (39% of children younger than 5 years vs. 51% of children aged 7 and older), data indicated, and sleep problems (70% vs. 30%) were more prevalent in this group as well.

Results from parent-completed Child Behavior Checklists indicated that younger children with reported GI symptoms had higher t-scores for total problem; emotionally reactive; anxious/depressed; somatic complaints; sleep problems; internalizing problems; affective problems; and anxiety problems subscales (P< .05). Children with reported GI problems in the 6-to-18 age group had higher t-scores for total problems and for all subscales (P<.01). Overall reported health-related quality of life was lower among children who experienced GI symptoms (P<.01).

"These findings suggest that better evaluation of GI symptoms and subsequent treatment may have benefits for these patients," said Daniel Coury, MD, medical director of the Autism Treatment Network, and professor of pediatrics and psychiatry at Ohio State University in Columbus. "Primary care physicians and specialists should ask families about these symptoms and address these as part of the overall management plan for the child or adolescent with ASD." – by Nicole Blazek

For more information:

•Williams K. #2320.7. Presented at: 2010 Pediatric Academic Societies Annual Meeting; May 1-4, 2010; Vancouver, British Columbia.

Find a local Rescue Angel

16 June, 2008 (22:51) | 1. Diagnosis: Autism | By: Mom

First things first, contact a local rescue angel in your area who can help you get started with finding out what resources are available for your child and local doctors that are good.

Click here for a current list of Rescue Angels:
http://www.generationrescue.org/angels.php

Autism Websites

16 June, 2008 (22:47) | 1. Diagnosis: Autism | By: Mom

Generation Rescue  - http://www.generationrescue.org
National Autism Association - http://www.nationalautismassociation.org
Talk About Curing Autism (TACA) - http://www.tacanow.com/
Autism One - http://www.autismone.org/
A-Champ - http://www.achamp.org/
Autism Research Institute - http://www.autism.com/
Moms Against Mercury - http://www.momsagainstmercury.org/
Safe Minds - http://www.safeminds.org/
Dana’s View - http://www.danasview.net/

Early Warning Signs Checklist

16 June, 2008 (22:34) | 8. Prevention, 1. Diagnosis: Autism | By: Mom

Lots of people always asked me if I saw any signs that should have alerted me to hold off vaccinating Nicholas any farther - and the answer is a resounding, YES!  But of course, my concerns were blown off by my pediatrician as is the same tale told my many moms out there.  Use our experience as your knowledge to move forward with caution if you see any of the signs - no matter how much your pediatrician tries to convince you otherwise.  Mommy instinct is right, follow it.

This is a great checklist - download it, print it out - pass it on to your expecting friends and family.  Having the knowledge could save yourself the heartache we’ve been through….

http://www.recoveredfromautism.com/images/ASD%20warning%20signs.pdf

Diagnosis: Autism - What do we do now?

31 August, 2007 (00:44) | 1. Diagnosis: Autism | By: Mom

Updated: June 11, 2008 

The one thing I wish the medical community would do is to educate their pediatric neurologists, developmental pediatricians and pediatricians on just the mere fact that Autism is treatable… and reversibleRecovery is possible and is happening all around you.  I speak to parents week after week and they took their child to the doctor, got a diagnosis of pdd, autism, adhd, etc. and were sent on their merry way.   Some holding prescriptions for drugs like Risperdel, some holding prescriptions for 40 hours of ABA per week.  Some are told their child will grow out of it, some are told to go home and have another baby and to prepare to put this child in an institution or a group home.  But nothing else…..  no hope, nothing.  “Your kid is autistic, accept it and move on.” 

Well, guess what - sometimes doctors just don’t know what they’re talking about.  And when it comes to Autism, most of us seasoned autism parents have already figured this one out.

So, first of all, rip up that prescription for Risperdel - you’re not quite there yet.  There are reasons why your child is agitated or hyperactive.  The puzzle is finding out why and fixing those issues, not slapping a band-aid (ala risperdel) on it and hoping it goes away.  Yes!  You can actually fix the issues that are causing your child to act this way.  (Please dont misunderstand me - sometimes you need these prescriptions, but not right off the bat without further research.)

Secondly, go hug your child.  He/she is the same beautiful child that you entered that doctor’s office with and the same one that you came home with.

In this section, Diagnosis: Autism, I am going to post all of the helpful resources, websites, books and anything else I found to be useful while on this journey. 

To answer the question above, What do we do now?  It’s simple, you educate yourself one step at a time.  This is a marathon, not a race.  You will need to pace yourself.  You will need to start writing in a journal.   You will become intimately involved in examining and discussing poop.   You will begin to see how well you truly know your own child.  You will get through this…….. 

Video Clip: Jenny McCarthy on Healing Autism (1 of 2)

30 August, 2007 (05:08) | 5. News, 1. Diagnosis: Autism | By: Mom

Take the CRAP out of Vaccines!

Video Clip: Jenny McCarthy on Healing Autism (2 of 2)

30 August, 2007 (05:08) | 5. News, 1. Diagnosis: Autism | By: Mom

Video Clip: Talk About Curing Autism. An Introduction For New Parents.

30 August, 2007 (04:58) | 5. News, 1. Diagnosis: Autism | By: Mom

Autism Books to Get You Started

29 August, 2007 (16:23) | 2. Resources, 1. Diagnosis: Autism, Recovery Guide | By: Mom

Updated: June 15, 2008  

Knowledge is essential if you are going to heal your child.  I suggest you BUY these books as you will be reading and re-reading them over the course of your child’s recovery.  You don’t need to buy them all at once… start slow… the information can be overwhelming.  (PS:  all of these are books I have in my personal library - I will not recommend a book that has not been helpful to us in some way.)

Books:

 

Autism: Effective Biomedical Treatments by Jon Pangborn Ph.D. & Sidney Baker, M.D.
http://www.nationalautismassociation.org/proddetail.php?prod=PangbornBakerBook
(cheapest place to find this one is from the National Autism Association & it comes with the 2007 update)

Online Autism Communities

28 August, 2007 (16:41) | 2. Resources, 4. Biomed, 1. Diagnosis: Autism | By: Mom

Updated: March 2, 2010   

I have been very lucky to have found so many wonderful online autism communities.  Here are some links to get you started:

These are just SOME of the valuable groups that can be found on yahoo.  If you go to the yahoo groups page, you can search for groups on any subject at all.  There are groups for hbot, Vitamin K, NCD and more.  http://groups.yahoo.com

Also, Facebook is a great tool for connecting with other like-minded parents. There are many groups on Facebook as well that you might be interested in joining.
Click here to connect with me on Facebook: http://www.facebook.com/recoveringnicholas