RecoveringNicholas.com

Comment from maya
Time: November 12, 2008, 6:03 pm

Wow.. I am amazed by your site. This site is going to be my reference. Thank you so much for doing this.
Thanks,
Maya

Comment from charusood
Time: July 18, 2009, 6:37 pm

I have 6 year old son, who is on spectrum and has couple of questions regarding anti-viral and chelation
Couple of questions:
We just completed 13 rounds of DMPS and are planning to add ALA in next round. Is there any suggestion or things to watch for?
For Viral (seems to be viral-kid and has high EBV titter), I see you are using virastop. How were you combatting viral issues? Are you seeing results with 3 capsules only?
For vitamin-A, palmitate vs natural vitamin-A, do you have some article you can share. We are working with Andy C and he recommends palimtate or acetate version. We moved from CLO to synthetic because to get 20000IU a day, it provides 4gm of Omega-3 and we are asked to keep it below 3gm.

Will appreicate your guidance
Charu

Comment from Mom
Time: July 21, 2009, 8:02 pm

Charu - when we first added ALA, it made my son’s stomach a bit queasy, but that was quickly overcome by starting the first doses with a bit of food. We no longer have to do this. I hope that you will be using ALA every 3 hours on a low-frequent-dose protocol.

Comment from Mom
Time: July 21, 2009, 8:02 pm

I gave 3 virastop a day until we started Enhansa this past December. I no longer give the virastop. But yes, we did see results with only 3 capsules. I was not giving it to work on his viral load, but to keep him from catching every bug that went around at school - and for this, it worked beautifully.

Comment from Mom
Time: July 21, 2009, 8:06 pm

If you look in “Changing the Course of Autism” by Bryan Jepson - he talks about the differences between natural and palmitate - as does Mary Megson here: http://www.megson.com/faq.php
In order to get 20,000 IU per day, you have to go with the palmitate. I give Nicholas both the natural from Green Pasture’s Fermented CLO and the mycellized from Klaire. When we did the high dose A protocol, I used Klaire’s Mycellized Vitamin A drops. I have had bloodwork run to check his A level and it’s been right in the center of the reference range. As long as you see benefit and keep an eye out for the signs of vitamin A toxicity, I am sure you will be fine.

Comment from lauren
Time: January 28, 2010, 2:54 pm

hi have followed you from fb, hope you dont mind, but i need somebody who knows what they are talking about!! much love
lauren

Comment from T Critch
Time: February 10, 2010, 11:44 am

Thank you so my for your site, it is the most detailed blog I have found regarding biomedical. Your attention to detail is so helpful. I found it while researching Enhansa for my 4 year old son, diagnosed ASD.
We have just started Cytoflora 4 days ago. We started at 6 drops 2x day, increasing by 1 drop a day. How quickly did you increase? and did you notice any negatives doing it? I know it is starting to work as my son is having well formed stools for the first time in his life.
I can’t tell you how much I appreciate the time you have put into your website, I have added it to my favorites and look forward to hearing about your sons continued progress. Thanks
Taryn

Comment from Mom
Time: February 12, 2010, 2:41 am

Hey Lauren - No, I don’t mind at all!!

Comment from Mom
Time: February 12, 2010, 2:44 am

Hi Taryn - Thank you so much for the compliments!!!
I ramped up Cytoflora pretty quickly, but I wouldn’t recommend it - unless you know his gut is in pretty good shape. I initially started at 6 drops, but then heard others started higher so, day one, I did 1 dropperful 2x a day. Day 2: 2 dropperfuls 2x a day. Day 3: 3 Dropperfuls 2x a day. Day 4: 4 Dropperfuls 2x a day. Day 5: 5 Dropperfuls 2x a day. The only negative reaction I could see what that he was a bit tempermental and cranky, but that passed.

Comment from T Critch
Time: February 12, 2010, 4:20 pm

Thanks, no my little guys gut is in terrible shape. I see that you use the liverlife and cytoflora, have you tried the NDFplus at all?
Also, between your multivitamin and cod liver oil etc, there is a lot of vit A. Do you monitor his levels for toxicity? I have been worried about how high to go with vit A. We use the Lee Silsbys ultra pure also and it has quite high vit A.
For your DMG are you using the kirkaman 125mg capsules?

Comment from Mom
Time: February 12, 2010, 5:04 pm

I bought a bottle of NDF Plus and I ended up giving it away. There’s just not enough information out there for me to consider giving chorella as a chelator. Nicholas has done beautifully on dmsa and ala, so we’re sticking with that.
Yes, he gets alot of vitamin A every day. He is on the daily maintenance dose of McCandless’s High Dose Vitamin A protocol which we’ve done twice and are about to do for the 3rd time. I do monitor his A levels and keep an eye out for any signs of toxicity. Keep in mind, he weighs over 80lbs, so that high of a daily dose of A wouldn’t be the same for a 40lb child.
I originally used Kirkman’s DMG for a long time, but then switched to the Aangamik DMG from Food Science of Vermont because of raves I was hearing from other parents (http://www.iherb.com/FoodScience-Aangamik-DMG-Liquid-300-mg-2-fl-oz-60-ml/3287?at=0 $5off with code TUM744) and saw way better results with this one. You just have to keep in mind that 125mg of dmg needs 400mcg of folic or folinic if you see any negative reaction.

Comment from Em
Time: April 13, 2010, 7:11 pm

Our DAN doc wanted us to try VSL #3 because it is a high potency probiotic but I opted not to because it contains the strep strain. Instead, I have my son on Custom Probiotics (D-Lactate Free formula). I don’t know if it’s really helping yet. I was giving my son Klaire Ther-Biotic De-Tox but felt it wasn’t strong enough on its own. I wasn’t sure if I should give more than one brand at a time. I am interested in the Cytoflora — is this to be used in more of a “maintenance” situation once the gut is healed? We currently have a lot of gut issues. My son is on an antibiotic (bactrim)/antifungal (alternating between diflucan and nystatin) protocol at the moment. Any input from you would be appreciated!
Also, I am interested in knowing which brands you use for:
Vitamin E
Vitamin K
Biotin
Zinc
Many thanks (I am a new reader to your blog),
Em

Comment from Mom
Time: April 17, 2010, 4:29 pm

Em, I used cytoflora for a while - ramped up to the dose where people were seeing great language gains and I kept it at that dose for a while, then I tapered down to a much lower maintenance dose. I kept it there for a while and then removed it with no regression or loss of language. I would not hesitate to use it again in the future to see if we get any additional gains with it.
Do you use any yeast enzymes like candidase, candex or even interfase?
Vitamin E - I bought one from Swanson’s with the mixed tocopherols. I have used Vitamin World’s Vitamin E in the past as well.
Biotin - I have used both NSI from vitacost.com and swanson’s - both are good.
Zinc - I have used the Kirkman’s zinc (capsules) for quite some time
Vitamin K - I have not supplemented K separately - but know of those who use the ones from ourkidsasd.com.

Comment from Eliza
Time: June 8, 2010, 3:06 am

First of all, thank you for being so open to sharing with us. I am truly so thankful. I am trying to implement a supplement program with my 7y old at this time. He is essentially non-verbal with OCD and stim behaviors. Cost is a major factor for us. In your opinion what do you consider absolute necessity. I know my child has heavy metals from testing. I want to prepare him for chelation. Also,Do you find the ASD L.Silsby Vitamin better than Klaire? worth the price diff.?