Entries Comments



Home

This blog is about Nicholas’s journey through autism to recovery.


Month: July, 2007

July 19, 2007

19 July, 2007 (13:20) | Journal | By: Mom

July 19, 2007
Not so great day, great night
3rd night Epsom Salt Bath

Speech Eval at school - went terribly. Nicholas did not participate.
(I just wanted to update this and add that this was the understatement of the world. Nicholas fought, kicked and screamed the ENTIRE time we were in the speech therapist’s classroom. A room full of toys and all he wanted to do was tug on the door and leave. This was brutal for all of us.)

Joanne (DI) came - he was okay with her. He did not climb on top of me to escape her.

Took him for a haircut - screamed the whole time. No body thrashing like the last time.

Went to boardwalk and beach - tolerated sand for a little while.

IN bath, he was responding to his name 75% of the time.

Many words - head, eyes, nose, ears, mouth - while identifying
said “cup”

3rd night with new bedtime routine. Was easy tonight - he knew what to expect. Bath, dressed, brushed teeth, bed

handed me toothbrush and said “all done”

We got him a little table and chair set - he loves it!

Good Day!

18 July, 2007 (13:18) | Journal | By: Mom

July 18, 2007
2nd Epsom Salt Bath Today
1 tsp Nordic Naturals Complete 369
400IU Mixed Tocopherols Vitamin E

GOOD DAY!

Calmer
Alot of eye contact both provoked and not
he did fantastic with Joanne (DI therapist) - 5 minute exchange session making faces and sounds
did not climb all over Mommy when Joanne/Kristen (sitter) were here
started to respond much better to his name

Nicholas’s First Epsom Salt Bath

17 July, 2007 (13:12) | Journal | By: Mom

After our first appointment with a pediatric neurologist (who REFUSED to write us a script for ABA until we put our 2.5 year old on Risperdal), I started researching biomed all the more and was looking for things I could do to calm Nicholas down. So the first thing I decided to try was giving him baths with epsom salts. It proved to be worthwhile for him.

July 17, 2007
First Epsom Salt Bath
2 Cups Epsom Salt
1/2c Baking Soda

1st appt with 2nd Pediatric Neurologist
2nd set of labs drawn

Added a Multi Vitamin!

16 July, 2007 (13:09) | Journal, Supplements | By: Mom

I started Nicholas on a specialty mutli vitamin/mineral supplement from Brainchild Nutritionals. Spectrum II with PAK

Developmental Pediatrician: Consider an Institution

13 July, 2007 (13:26) | Journal | By: Mom

We recently had our appointment with a developmental pediatrician to find out what is going on with Nicholas. He confirmed our thoughts, that Nicholas has autism. This doctor was an absolute bastard to us and to Nicholas and this appointment, by far, was the worst experience of my life.

He was very quick to whip out his prescription pad to write our son a prescription for risperdal. Risperdal for a child who is 2.5 years old - and not approved by the FDA for use in children this young. He REFUSED to write a script for ABA therapy until we brought back our son medicated. He told us that our son would not learn anything without the risperdal. He told us that our son was easily agitated, only after he deliberately agitated him. After making us wait for over an hour in a waiting room with NO TOYS (they told us they had toys - I’ll never make that mistake again)

He told me that my son was not sensitive or allergic to milk and wrote me a script for bloodwork to prove me wrong. (HE WAS WRONG!) He told us that our son would test positive for Fragile X (HE WAS WRONG!)

Silly, naive me to think that a doctor would be interested in hearing that omega 369 fish oil was having an effect on our son’s language abilities - this was where it really got good…. he stood up and yelled at me for giving my son fish oil. He nastily lectured me about how harmful this could be. He went on and on about his degrees and his positions on several autism boards, ranting and raving the whole time.

When I asked what his thoughts were on heavy metal toxicity being tied to autism, he flew off the handle.

Here’s the best part…. he told us to consider putting Nicholas in an institution and trying for another child.

When we got out to the car, I collapsed in the parking lot. I couldn’t breathe. I felt like someone had just driven a truck over me.

I got home. I opened my computer and typed “risperdal’ into google and saw it associated with schizophrenic adults. I promised myself I was NEVER filling that script.

I sat down and thought about the appointment, not so much about what he said, but his actions. If there wasn’t some shred of truth in what I had said, then why would you act like that? Between this and watching our son start babbling again on the introduction of fish oil - I knew I was on the right path - and drugging my child wasn’t it.

That pitiful excuse for a doctor gave me something that day. I didn’t see it that day or even a week later - but he gave me the drive, the determination to change Nicholas’s fate, his life. I knew in that split second that something wasn’t right with this doctor, that what the parents were writing everywhere was right. Kids WERE getting better. And thanks to him, that arrogant asshole, I knew my son was going to stand amongst them and recover too.

List for Developmental Pediatrician Appointment

12 July, 2007 (13:54) | Journal | By: Mom

Current things Nicholas does:
- Plays very well independently
- Likes to play with water
- Likes to play with trains
- Was able to piece together train track and make his own very early on
- Very good at sorting colors and shapes
- Very good at sorting shapes from smallest to largest
- sings along and responds to Blue’s Clues
- shrugs his shoulders
- just started shaking his head “no”
- helps get himself dressed
- puts mommy’s shoes on and grabs per purse to go outside
- loves playdough
- rides tricycle
- rides motorized car/plane
- likes to play daddy’s drums
- likes to push his toy lawn mower
- likes to build towers
- climber!
- very early at climbing up/down stairs on his own
- blows bubbles
- can tighten and loosen bolts
- can use screwdriver
- very mechanical like his dad
- recently spent half the day going down slides in a waterpark right into a pool and could not get enough
- plays alongside other children, not with
- can climb the big kid’s rock wall in a few seconds flat
- climbs on big kids playground like it’s nothing
- good sleeper
- spitting out food

Things he used to do:
- clenched jaw body shaking thing
- when he was a baby, he used to have to carry aroun 3 things. one in each hand and one in his mouth
- last summer, he was independent in swimming pool. He put a noodle under each arm and swam around pool by himself
- used to drink water/juice - just to spit it out and play with it
- used to stick his hand in his diaper and wipe poop all over the back of his bedroom door

Things he NEVER did
- walked on toes
- lined toys up
- took to a pacifier
- flapped like a bird
- spun tires

Difficult Behaviors
- Restaurants are torture
- taking him anywhere is torture, really
- he wants to do what he wants to do when he wants to do it and if you don’t follow, tantrums occur, screaming, limp body, whole routine
- does not want to sit still in shopping cart for more than 5-10 minutes, tops
- screaming
- responds to name only when he wants to
- we could not take him somewhere and not have to
a) hold him constantly
b) strap him into a harness in his stroller
c) fight with him the whole time to keep him from running off and getting into trouble

Additional info
- cannot give him milk (severe constipation and stomach aches)
- tried every milk alternative - he would not drink it
- still give him toddler formula at bedtime
- switched to soy at 2 weeks, 2 days old
- language started coming out 1 week after introduction of fish oil
- concerned about his speech development from his 15-18mo appointments
- currently experiencing separation anxiety
- gets upset when babysitter comes - he does not want to let mom go to her office to work
- last 2 sessions with therapist, he has done nothing but fight her the entire time, screaming, crying, tantrums
- seems to be dropping the first part of word with some words, like picking up K for notebook and “um” for come

Milestones
- held head up from birth
- first smile at 7 weeks
- blowing bubbles at 10 weeks
- blowing raspberries at 11 weeks
- started babbling at 13 weeks
- started teething at 15 weeks
- rolled from back to front at 23 weeks
- stands with help at 22 weeks although we though he could have sooner
- drank from sippy cup at 25 weeks
- held sippy at 27 weeks
- pushing up at 28 weeks
- said “dada” at 29 weeks
- recognized name at 30 weeks
- sat alone - 30 weeks
- stands alone - 40 weeks
- first step by himself - 49 weeks
- walks 4 steps by himself - 51 weeks
- walking by himself - 1 year

Words he uses correctly
- Mom
- Dad
- No
- I dont know
- I did it
- ball
- door
- elephant
- pour
- pool
- in
- on
- open
- boat
- dog
- eat
- drink (sign only)
- up
- bubbles
- blow bubbles
- purple
- blue
- apple
- bananna

Words we’ve heard
- Grandma
- more
- Come
- Happy Birthday
- I’m just a baby