So much difference in ONE day.

This weekend, we are in the midst of chelation round #2. We are using DMSA only at the moment. We will be adding ALA next round, next Friday. The current dose Nicholas is getting every 3-4 hours is 8.33mg which is 1/3 of the 25 mg capsule. I mix 3 teaspoons of juice with one dmsa capsule. It takes a few minutes to really mix it in there well and then I store 1 teaspoon in each syringe and put them in the fridge. When it’s time, we shoot the syringe into a cup and Nicholas drinks it. During the night, we’re putting it into a baby bottle and he takes one gulp and it’s gone – he doesn’t even wake up.

It is stirring up a bit of yeast, but it’s not crazy yeast like we have seen in the past. I’m giving plenty of probiotics, Ther-Biotic Complete, Threelac and Saccharomyces Boulardii. Also giving GSE and diflucan in the am, followed by probiotics in the afteroon and evening.

Yesterday, I took Nicholas to Target. It was pouring so hard that all of the shopping carts outside were soaked, so I had Nicholas go inside to get one – and wouldn’t you know, they were all stuck together. For the first 20 minutes we were there, I felt like one of those normal parents who can walk around a store with their child following behind them. Nicholas found the Thomas aisle and he pushed a playset all around the store (while I tried to find a dry cart and pick up what I needed). He added a building and 2 of the electronic trains with the remotes (all Thomas) and was trying to push them all in one stack. Watching him do this was amazing. He finally handed me two of the boxes to hold while he pushed the others. It was too funny.
He did go through a spurt where he left the toys behind and went running through the aisles. It was more in a provoke mommy kind of way – which has been way different from the past. I let him do it for a few minutes and then told him he was going home to bed if he didn’t stop – so he stopped. (This still amazes me) Anyway, I found a cart and loaded him and his treasures into the cart and headed to get some nighttime pull ups. He was talking up a storm about the toys he found – I just didn’t have the heart to put them back. I figured I’d give him one and put the rest away for his birthday.
So, then, we met Daddy and his friend at the Outback for dinner. Yep, you are reading correctly. Not only did I attempt Target, but I was taking him to a restaurant too. Yeah, I must be nuts. You can say it, it’s okay. 🙂
Compared to the past, Nicholas was amazing. He wanted to sit up front by the window and watch the rain – so we let him – our table wasn’t far and daddy and I took turns hanging out with him. Finally, he realized we had a toy and his dvd player, so he made his way into our booth. No fussing, no tantrums. He left the booth a few times to check things out, but always came back quickly (one of us went with him). I got to eat a meal from a restaurant, on a plate – and the meal was HOT. (Good thing because I ordered lobster tails – see, I had high hopes afterall)
We got home and I brought the Thomas set in and was leaving the rest in the car. One, because it was pouring rain and two, I figured I’d bring them in and hide them for his birthday. No such luck. Nicholas got out of his seat and grabbed the bag with the others. So, Percy and the building box were on the dining room table and I opened the Thomas train and Nicholas was busy playing with that. (It has a remote control like geotrax, so he was in heaven.) I started putting together the play set, which is way too cool – and I hid Percy and the building. A little while later, Nicholas says, “mommy – where’s percy?” I was stunned. I have never heard him actually say “percy” before. He’ll say Thomas, Blues Clues, Bear, etc – but never heard that. So, I caved and pulled Percy out and gave it to him – I couldn’t resist.
Later, he came over and said, “mommy, dora the explorer on TV please, mommy.” – Ok, dora the explorer sounded like “dora the hora” but I’ll take it. Twice in one day – I can’t believe it. We have never heard him say “dora” much less “dora the explorer”
So, we’re watching the Christmas Dora – he picked it, I wasn’t going to argue. And he suddenly knows who Santa is. Seeing him point to Santa and yell Santa was absolutely delightful. Maybe this year we will actually have to say presents came from Santa – wouldn’t that be something?
Before our store trip – Nicholas climbed up on his dresser – thank goodness it’s a low one, but still. He called me into his room and then pointed at a framed zebra print that’s been hanging on his wall from before he was born. “mommy picture” What’s that a picture of Nicholas? “zebra” – Then he points to the border on his wall and says, “tiger, elephant, zebra, tiger, elephant, zebra” and was pointing all the way around the room. Had he never seen any of this before? He was looking at them, admiring them as if he was seeing them for the first time.
So, as we’re sitting on the couch watching TV getting ready to go to bed, I looked at Nicholas, gave him a kiss and told him that I loved him. He said, “i lub you too mommy” – I cried.
I can’t believe how much difference we saw in one day. One day. One very good day.

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3 Responses to “So much difference in ONE day.”

  1. debinIL says:

    You told him to stop and he stopped. Amazing. 🙂
    What I’m seeing with Nate is two steps forward and one step back. I scramble to think what went wrong, fix it or wait it out, then he’s back on track. Don’t get discouraged when there’s a small step back, it’s temporary and will work its way through.

  2. Mom says:

    I know – amazing! 🙂
    Thank you – I’ve done the same thing – obsess over what happened then he’s back to where he was before the step back – it’s happened to us more than a few times – two steps forward one step back should be our motto!

  3. LouCee says:

    I’m so happy to read about what a wonderful day you had! 🙂

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