Restarting Brainchild Nutritionals

We can’t take seeing him like this any longer.  So, we stopped the DRN formula and restarted our previous multi vitamin/mineral.  I spoke to Randy (from Hopewell) and Brainchild – neither thought that a dose of less than 20mg of TMG per day (he only gets one teaspoon) was enough to inhibit the MB-12 shots from working.  I read online that after the 1st 5 weeks of MB-12 that you can add it back in and see if you still have gains with the MB-12, so we’re going to take our chances and PRAY.  ALOT.

5 days on DRN and….

No changes.  Crazy hyper.  Tantrums.  out. of. control.

I want my child back.  This is freakin insane.  How did we ever live with this in the first place??  I cannot (and WILL NOT) get used to this again.  How much can one person endure?  He was doing so well, now it’s gone.  Like the last several months accomplished nothing.  What the heck is wrong with me?  How could I not realize that taking that ONE thing away would make such a HUGE impact in his behavior??  How did I miss that?? 

MB-12 Shot today

2nd MB-12 shot given. Two shots used (one he jumped and the MB12 ended up all over his butt.) Numbing cream did not work, either time. Was up til 3am to get this into him.

Terrible time at school today.

Nicholas is still having a terrible time at school. I had to carry him all the way from the car to the classroom and he didn’t even want to go with his teacher, Mrs. L.

Before we stopped the Brainchild, he was running into the school, down the halls and into the classroom. ug! How do we get back to where we were?????? HELP!

Day after first MB-12 injection

The words coming out of his mouth are amazing!  He’s repeating words right and left.   Yipee!!!!!!

And the best part yet – he’s participating along with the family like he’s involved with US and not the other way around.  Wow.

Starting MB-12 injections

We started MB-12 injections tonight.  Numbing cream did not work to numb his toushie, so I ended up staying up half the night to make sure he was in a deep sleep! 

No school for Nicholas today.

I could not get Nicholas to get out of the car to go into school today. He screamed for 20 minutes while gripping the car door handle to get back in.

Adding Kirkman DRN formula to replace Brainchild Vitamins & Minerals

Started DRN formula (from kirkman) – this has high dose vit-a and not the same quantities of the brainchild’s. Also, no folinic acid in the DRN. Dr suggested this be added at the same time MB-12 was started because we saw such a regression with the removal of the brainchild. Keeping my fingers crossed.

Halloween

By now, I’ve realized that the problem was stopping the Brainchild Nutritionals. I left a message for the doctor to get his thoughts and input. Clearly he needs something

Halloween was a chore getting him into school for his party. He walked around the playground during the parade with his head down to the ground – he did not even notice that we were there.

March 2, 2010
I’m just re-reading my blog as I do every once in a while to see how far we’ve come. Me saying that getting him into school was a chore is the understatement of the year. He would not get out of the car. I still have this fiasco embedded into my head and it was 2.5 years ago. When I unhooked his car seat, he climbed into the back of my SUV so I couldn’t reach him to get him out. He screamed for his DVD. He screamed and cried and carried on like you wouldn’t believe. I had no idea why. Perhaps the ride to school wasn’t as long as he would have liked. Maybe he wanted to watch his DVD longer. Maybe pulling up to the school set him off. Who knows? At this point, I did not yet know the nuances that would set him off. We were already late with getting him there and he just would not get out of the car. I was on the verge of taking him back home and forgetting about his Halloween party/parade, but I dragged his screaming body into school. He fought me the whole time.

Today, these are only memories, painful memories. Just another reminder to be thankful for how far Nicholas has come.

Thank you, Jenny McCarthy

Thank you.  Thank you for throwing yourself into the ring to fight this fight.  Thank you for going public with the wealth of knowledge we know is working to recover our children and for sharing your personal experiences – I have stopped getting looked at like I was nuts and people have actually begun listening and asking questions.   Thank you for finally getting a book on treating autism on the bookshelf at my local bookstore.  Before your book, they were all special order (which is ridiculous)!!  Thanks for everything you’re doing – the effort is certainly going to pay off in the end!

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