For you, Nicholas

I dedicate this blog to my son, Nicholas, who is on his way to recovery.  He is the light of my life who keeps me going; who reminds me of all of the reasons why I research the way I do without even saying a word.   Why this blog?  Why share his story at all?  Here’s why…

  • Organization:  as I am sure you know, details can get overwhelming at times – so I need this outlet for thoughts, tidbits of information I find, therapies & supplements that are working and not working, just anything I really need to have recorded somewhere.
  • Case Study:  In the past several months since we have started biomedical intervention with our son, he has made substantial improvements.  Life gets busy and I forget to record things, but I would like to have daily breakthroughs, videos, whatever.. recorded so that what we’ve done, what we’ve learned can be useful to someone else out there.
  • Sharing of Knowledge:  Knowledge is the power to make a difference.  Thank God for the internet which has given us this power.  I shudder to think where my son might be without it.  Without the generosity of others who have healed their children and still keep answering questions in newsgroups for other struggling parents, updating web pages and fighting the good fight – I would not have stumbled onto the world of biomedical intervention.  I am grateful for these “strangers” who have helped an innocent child more than they’ll ever know.   So, here I am, sharing whatever knowledge I pick up with you.  I hope it helps shed some light on your situation and bring you hope.
  • For Nicholas:  One day he might want to know where he was and how he got to be where he is.  One day, he might be a politician, a lawyer, a pharmaceutical CEO (gasp) – and he’ll need to know what happened to him and how he healed.  You never know, he could be one who has the power to change things, (which by the way, I hope are long changed by the time he’s that age.)  One day he might have children of his own – and might want to know what his mom and dad were thinking going through all of this and why we’ve made the decisions we’ve made.

End of Early Intervention Transition Report

Nicholas is a 2 year, 11 month old boy. Nicholas began developmental intervention service in May 2007, 3x a week for 60 minutes each visit. The goals of therapy werer to increase expresive and receptive language skills, demonstrate appropriate social interaction skills, work on behavior strategies and play more independently.

According to an informal assessment using The Birth to 3 Record Form, Nicholas’s current levels are as follows:

Language Comprehension: 25-30 month range (displays some difficulties)
Language Expression: 19-24 month range (displays some difficulties)
Nonverbal Thinking: 31 month range
Social/Personal Behaviours: 13-18 with some scatters to 24 months
Motor Behaviors: Solid at 25 months with scatters to 30 months

In terms of language expression, Nicholas is beginning to identify objects receptively by pointing, touching or reaching for the object or picture. He is also approximating some sounds to identify colors, shapes, animals and animal sounds. Nicholas has strong cognitive skills. he recognizes and approximates names of shapes, colors, numbers and beginning to recognize some letters of the alphabet.

In the area of social/personal behaviors, Nicholas is beginning to greet adults more appropriately and spontaneously. He has begun to show pleasure in new activities and demonstrates some simple social exhanges. Nicholas has good motor skills and shows great interest in gross motor and rough and tumble play. Nicholas exhibits some sensory needs and responds well to deep pressure, water play, tactile activities and oral sensory input.

During DI therapy sessions teacher and parents began a fairly intense positive behavioral system to reduce tantrums and screaming fits. It was determined through these strategies that Nicholas was exhibiting these behaviors due to over stimulation, sensory issues and lack of ability to communicate his wants and needs appropriately. Nicholas made tremendous gains in this area. He now uses more appropriate behaviors to communicate, play, and express his likes and dislikes. The tantrums and screaming episodes have decreased tremendously. Nicholas has been working on increasing language during play activities, social interactions and improving communication skills for everyday functional needs. He enjoys gross motor activities, books, trains, farm animals and interacting with parents.

Nicholas’s play skills are developing. Teacher continues to present strategies to break the rote play and sometimes is successful. His cooperative play skills are developing, he attempts to participate in turn-taking activities however requires some support and modeling. Nicholas’s imaginative play skills have improved since the onset of DI sessions. Nicholas responds appropriately to musical instruments and attempts to participate in singing portions of the songs and act out gestures. Nicholas is beginning to use his language for labeling simple pictures and objects. Nicholas occasionally displays a somewhat inappropriate degree of emotional reactions to situations that are sometimes unrelated to the events surrounding them. Nicholas is sometimes unresponsive to adult and requries physical and verbal cues/prompting to elicit interaction. He benefits from high affect activities and reciprocal play activities to help maintain responsiveness and increase language in social situations.

Nicholas is a very sweet little boy who has difficulties with communication, demonstrates difficulties with behavior and social interaction skills. He has good developing cognitive skills, and is beginning to show more typical use with some toys. He works best when high affect strategies are utilized.

Due to difficulties with social skills, behaviors, communication and language expression, Nicholas would benefit from a language-based program that uses a variety of communication, sensory input strategies, ABA strategies and interactive skills as well as a multisensory approach to learning that represents all the senses (Visual, Auditory, Kinesthetic, tacticle, Vestibular and Proprioceptive).

Diagnosis: Autism – What do we do now?

Updated: June 11, 2008 

The one thing I wish the medical community would do is to educate their pediatric neurologists, developmental pediatricians and pediatricians on just the mere fact that Autism is treatable… and reversibleRecovery is possible and is happening all around you.  I speak to parents week after week and they took their child to the doctor, got a diagnosis of pdd, autism, adhd, etc. and were sent on their merry way.   Some holding prescriptions for drugs like Risperdel, some holding prescriptions for 40 hours of ABA per week.  Some are told their child will grow out of it, some are told to go home and have another baby and to prepare to put this child in an institution or a group home.  But nothing else…..  no hope, nothing.  “Your kid is autistic, accept it and move on.” 

Well, guess what – sometimes doctors just don’t know what they’re talking about.  And when it comes to Autism, most of us seasoned autism parents have already figured this one out.

So, first of all, rip up that prescription for Risperdel – you’re not quite there yet.  There are reasons why your child is agitated or hyperactive.  The puzzle is finding out why and fixing those issues, not slapping a band-aid (ala risperdel) on it and hoping it goes away.  Yes!  You can actually fix the issues that are causing your child to act this way.  (Please dont misunderstand me – sometimes you need these prescriptions, but not right off the bat without further research.)

Secondly, go hug your child.  He/she is the same beautiful child that you entered that doctor’s office with and the same one that you came home with.

In this section, Diagnosis: Autism, I am going to post all of the helpful resources, websites, books and anything else I found to be useful while on this journey. 

To answer the question above, What do we do now?  It’s simple, you educate yourself one step at a time.  This is a marathon, not a race.  You will need to pace yourself.  You will need to start writing in a journal.   You will become intimately involved in examining and discussing poop.   You will begin to see how well you truly know your own child.  You will get through this…….. 

Video Clip: Jenny McCarthy on Healing Autism (1 of 2)

Take the CRAP out of Vaccines!

Video Clip: Jenny McCarthy on Healing Autism (2 of 2)

Video Clip: Talk About Curing Autism. An Introduction For New Parents.

Autism Books to Get You Started

Updated: June 15, 2008  

Knowledge is essential if you are going to heal your child.  I suggest you BUY these books as you will be reading and re-reading them over the course of your child’s recovery.  You don’t need to buy them all at once… start slow… the information can be overwhelming.  (PS:  all of these are books I have in my personal library – I will not recommend a book that has not been helpful to us in some way.)

Books:

 

Autism: Effective Biomedical Treatments by Jon Pangborn Ph.D. & Sidney Baker, M.D.
http://www.nationalautismassociation.org/proddetail.php?prod=PangbornBakerBook
(cheapest place to find this one is from the National Autism Association & it comes with the 2007 update)

SCD Diet Books and Info

Updated: June 15, 2008   

SCD stands for the Specific Carbohydrate Diet.

If your child battles yeast, this is the diet to try first.  I know the GFCF diet gets alot of attention, but for kids who are battling issues with yeast, they need to eat a diet which will not FEED the yeast.  They need a diet which will “heal” their gut.  That’s what this diet does… and as you continue on the diet, you will be able to add back foods which once were problem foods for your child.

 

Online Autism Communities

Updated: March 2, 2010   

I have been very lucky to have found so many wonderful online autism communities.  Here are some links to get you started:

These are just SOME of the valuable groups that can be found on yahoo.  If you go to the yahoo groups page, you can search for groups on any subject at all.  There are groups for hbot, Vitamin K, NCD and more.  http://groups.yahoo.com

Also, Facebook is a great tool for connecting with other like-minded parents. There are many groups on Facebook as well that you might be interested in joining.
Click here to connect with me on Facebook: http://www.facebook.com/recoveringnicholas

July 19, 2007

July 19, 2007
Not so great day, great night
3rd night Epsom Salt Bath

Speech Eval at school – went terribly. Nicholas did not participate.
(I just wanted to update this and add that this was the understatement of the world. Nicholas fought, kicked and screamed the ENTIRE time we were in the speech therapist’s classroom. A room full of toys and all he wanted to do was tug on the door and leave. This was brutal for all of us.)

Joanne (DI) came – he was okay with her. He did not climb on top of me to escape her.

Took him for a haircut – screamed the whole time. No body thrashing like the last time.

Went to boardwalk and beach – tolerated sand for a little while.

IN bath, he was responding to his name 75% of the time.

Many words – head, eyes, nose, ears, mouth – while identifying
said “cup”

3rd night with new bedtime routine. Was easy tonight – he knew what to expect. Bath, dressed, brushed teeth, bed

handed me toothbrush and said “all done”

We got him a little table and chair set – he loves it!

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