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This blog is about Nicholas’s journey through autism to recovery.


Date: July 22nd, 2008

Autism too controversial for ‘The View’ to talk about?

22 July, 2008 (20:52) | 5. News | By: Mom

So today’s “The View” opened with mentioning Michael Savage’s comments about autistic children during the opening credits - and then it was never brought up during the show. Parts of the show seemed stretched and just slow moving, which isn’t usually the case for this show. So, was the kibosh put on discussing this Hot Topic by network executives afraid of losing their big advertising bucks from pharma? Yep, probably. Go ahead Barbara Walters, keep selling your soul for the almighty dollar. I thought you had it in you to ask the tough questions. I stand corrected.

Supplement Update: July

22 July, 2008 (11:44) | Supplements | By: Mom

Vitamins & Minerals

Spectrum Support Vitamins

  • Ingredients:
  • Mixed Cartenoids from Dunaliella Salina - 6000 IU
  • Vitamin C (Calcium Ascorbate) - 150mg
  • Vitamin D3 (Cholecalciferol) - 200 IU
  • Vitamin E (Natural d-Alpha-Tocopherol Acetate) - 125 IU
  • Vitamin B-1 (Thiamine Hydrochloride) - 20mg
  • Vitamin B-2 (Riboflavin-5-Phosphate) - 20mg
  • Vitamin B-3 (Niacinamide and Inositol Hexaniacinate) - 35mg
  • Vitamin B-6 (Pyridoxine Alpha-Ketoglutarate) 15mg
  • Folinic Acid (Calcium Folinate) - 500mcg
  • Vitamin B-12 (Cyanocobalamin) - 600mcg
  • Biotin - 500mcg
  • Vitamin B-6 (Calcium Pantothenate) - 100mcg
  • Choline (citrate) - 60mg
  • Inositol - 80mg
  • L-Glycine - 300mg
  • Spectrum Support Minerals

  • Ingredients
  • Calcium D-Glucarate - 100mg
  • Magnesium (Krebs Chelates) - 60mg
  • Zinc (krebs Chelates) - 15mg
  • Selenium (Selenomethionine) 100mcg
  • Manganese (Succinate) - 2mg
  • Chromium - 25mcg
  • Molybendum (krebs chelates) - 200mcg
  • Potassium (Alpha-Ketoglutarate) - 25mg
  • Methylsulfononymethane (MSM) - 200mg
  • MB-12 Injections - Every morning - works so much better for Nicholas than at night. These are by prescription only, compounded by Hopewell Pharmacy

    Kirkman Vitamin C – buffered, 1/4 teaspoon per day – 1100 mg
    Link to supplement

    Vitamin World d-Alpha Tocopheryl Vitamin E - 400 IU
    Link to Supplement

    Kirkman Biomax Zinc - 20mg - 2 capsules/day
    Link to Supplement

    Omega Fish Oil / Cod Liver Oil

    Nordic Naturals Complete Omega 3-6-9 Liquid - 1 teaspoon

  • Ingredients:
  • EPA - 675mg
  • DHA - 450mg
  • GLA - 165mg
  • OA - 400mg
  • Other Omega 3’s - 287mg
  • Vitamin E (d-alpha tocopherol) - 30IU
  • Link to Nordic Naturals for more information
    Where to buy

    Green Pastures Blue Ice High Vitamin CLO - 1/2 teaspoon

  • Ingredients:
  • Vitamin A - 5750IU
  • Vitamin D - 575IU
  • EPA - 145-375mg
  • DHA - 150-360mg
  • Total Omega 3’s - 480-1800mg
  • Link to Green Pature High Vitamin CLO

    Probiotics

    Klaire Labs TherBiotic Complete
    Link to Supplement

    Klaire Labs Saccharomyces Boulardii
    Link to Supplement

    Amino Acids

    Glutathione Lotion - 2x/day; compounded by Hopewell Pharmacy

    Kirkman DMG (125mg) with Folic Acid (400mcg) and B-12 (6 mcg) - 2 Capsules
    Link to Supplement

    Kirkman GABA - 250mg - 2 capsules/day
    Link to Supplement

    L-Theanine (Suntheanine) from Nutricology- 100mg capsules - 1 capsule 2x per day
    Link to Supplement

    Anti-fungals & Anti-bacterials, yeast-fighting, etc.

    Grapefruit Seed Extract - 5-6 drops - once in the morning, once at bedtime

    Advanced Formula Biocidin - 5 drops per day
    Link to Supplement

    Cellfood - 4 drops 3x/day
    Link to Supplement

    Kyolic Garlic Liquid - working up to 10 drops in drink 3x per day
    Link to Supplement

    Oregon Grape Extract - working up to 15 drops 3x per day
    Link to Supplement

    Pau D’Arco Extract - working up to 15 drops 3x per day
    Link to Supplement

    Enzymes

    Kirkman Enzym-Complete/DPP-IVV - 1 capsule per meal
    Link to Supplement

    Enzymedica Virastop – 3 capsules/day (Protease Enzyme Supplement)
    Link to Supplement

    Enzymedica Mucostop - 2 capsules/day
    Link to Supplement

    Candex Yeast Management System - 1 capsule per day
    Link to Supplement

    Houston Nutraceuticals No Phenol - as needed for phenol effects
    Link to Supplement

    Houston Nutraceuticals Peptizyde - (as needed)
    Link to Supplement

    Houston Nutraceuticals Zyme Prime - (as needed)
    Link to Supplement

    For the liver

    Liver life (15 drops 2x/day)
    Link to Supplement

    Milk Thistle Extract (5 drops/day)
    Link to Supplement

    For constipation

    Oxypowder(to keep his bowels moving) - only as needed (this stuff is fantastic!) - just a sprinkle here and there
    Link to Supplement

    Other

    Inositol Powder from Kirkman – 1 scoops/day = 1/2 gram
    Link to Supplement

    Enzymatic Therapy Cell Forte IP-6 & Inositol Ultra Strength Powder - 1/4 teaspoon/day (given later in day)
    Link to Supplement

    How do I get all of those supplements into Nicholas??

    22 July, 2008 (09:00) | Journal, Supplements | By: Mom

    Well, it’s no easy task, but it’s gotten easier as time goes on. My biggest recommendation to anyone is to open the capsules and taste what’s inside if you’re mixing stuff with juice/liquids. Stuff that has no taste is a no brainer - mix it with anything. Stuff that tastes good isn’t too much of an issue. It’s the stuff that tastes bad…..

    Once you have a juice/drink your child drinks supplements in, it’s NOT a good idea to let them taste that particular drink WITHOUT the supplements. In the natural juice section of your grocery store, there are fruit juice pulps in glass bottles, Looza is one brand. (Whole Foods and A&P have it) The bananna, pear and passion fruit do a fantastic job at hiding supplements. As time goes on, you can water the juices down once your little one gets used to the taste so you’re not giving so much juice. It’s trial and error really. We’ve tried sippy cups, juice boxes, you name it… you just gotta find what works for your kiddo.

    On the stuff that tastes bad, start with a sprinkle. Rome wasn’t built in a day. Sprinkle a small amount in and see how that goes. If that works, add a little more tomorrow and the next day until you’re up at the desired amount. You’ll have much better luck overcoming the bad taste issue if their taste buds become accustomed to it.

    Here’s my daily supplement recipe for the most part. Keep in mind, these things are ever-evolving as new supplements are added, old ones taken away, etc.

    First thing in the morning, I mix up his daily “iced tea” – it is 8 ounces of Arizona iced tea (that I am weaning down to nothing!) and about 16-20 ounces of fresh brewed iced tea (unsweetened). I add his daily amount of spectrum vitamins and minerals. To this, I also add the dropper stuff (milk thistle extract, advanced biocidin) that only takes a few drops so it’s diluted across 24-28 ounces. Then, I add his Vitamin C (which has a sweet/tart taste to it), Inositol (no taste really), zinc, one capsule gaba, one capsule theanine and shake this all up.

    The rest of his supplements get mixed into this mixture as needed, one at a time.

  • Morning #1 – 4 oz iced tea plus Nordic naturals complete omega 369 (1 teaspoon) and Green Pasture High Vitamin CLO (1/2 teaspoon), 7 drops liver life, 4 drops cellfood and also nizoral when he’s on it
  • Morning #2 – 4 oz iced tea plus Virastop, mucostop and Vitamin E and 8 drops liver life
  • Afternoon #1 – 4 oz iced tea plus candex, pro-biotics & 4 drops cell food
  • Afternoon #2 - 4 oz juice with IP-6 & Inositol (can’t give this with minerals)
  • After dinner #1 – 4 oz iced tea plus Claritin, mucostop (1 capsule), gaba (1 cap), 7 drops liver life & 4 drops cell food
  • After dinner #2 – 4 oz iced tea plus virastop (1 cap), theanine (1 cap) & 8 drops liver life
  • After dinner #3 (not always) 4 oz iced tea plus candex & probiotics
  • Enzymes are given at mealtimes and as needed. I am currently changing Nicholas’s pro-biotics, because I really don’t think the current ones are helping anymore. I am also implementing Brainchild’s Yeast protocol, so I’m adding the rest of those ingredients as well.

    I’ll update this listing as I add those ingredients. Feel free to email/post any questions if you need help getting supplements into your child.

    My little man is quite the trooper!

    22 July, 2008 (01:43) | Journal | By: Mom

    So, earlier Monday, Nicholas started grabbing the box of band-aids and saying boo-boo and pointing to his foot. At first we thought it was him kidding around, but it continued for quite some time. Then he started not putting his foot down and putting weight on it. We tried to keep ice on it, but of course that did not work. So after Nicholas got out of the chamber, we got him dressed and I took him to the Emergency Room - just to make sure his ankle wasn’t broken. He fell earlier Monday, but it was HOURS before he started the band-aids/boo-boo/limping, so I’m not entirely sure if that’s what happened or what.
    So, we get to the emergency room - and got through triage with relatively no issues. There was a huge fish tank in the waiting room and nicholas was having the time of his life pointing at all of the fishies. He was counting them, giggling, poking at the glass, having a grand old time. He noticed there was a baseball game on the tv there and told me all about it. He walked over to the payphone and pretended to call Daddy and tell him that he was watching fishies swim and baseball on tv. Then he said bye daddy and hung up.
    We got settled into a room and I put on Nicholas’s bear DVD. He was quite good and made himself comfortable on the chairs there. The nurse came in and Nicholas told him right away that he was watching bear. Then the dr came in and examined his feet/ankles. Nicholas did very well through it all. A little while later, two really nice technicians came to get us to take some x-rays. I couldn’t believe this, but Nicholas was such a trooper! He laid on the table, really still so they could take the x-rays. On our way back, I grabbed a blanket so Nicholas could settle into the bed, which he happily did with his juice, bear and blanket. The doctor came back in to let us know that everything looked fine and it was probably just bruised. So we were discharged and had to stop by and say goodbye to the fishies. While we were waiting intially, Nicholas was doing his fake sneeze, ha-choo thing. The security guard tried to get him to do it again because she had been watching him earlier. Ha=choo mommy… tissue please?? Nicholas was so alert tonight, so focused, so attentive and talkative - was just after him doing 1 1/2 hours hbot.
    Two and a half hours later we’ve got one tired (and proud) mommy and one little trooper asleep on the couch!