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This blog is about Nicholas’s journey through autism to recovery.


Date: December 27th, 2008

Current Progress

27 December, 2008 (20:42) | Journal | By: Mom

Some new things Nicholas is doing…..
- He is asking “what is that?” - and pointing to things - and then repeating what I tell him it is.
- He is asking “what are you doing?” - and really wants to know - and help where he can
- His sentence structure seems to be getting longer
- He is now singing - he sang Happy Birthday last week, when I told him it was Grandpa’s birthday
- When prompted to clean up, he started singing the “clean up” song from school. He’s done this at least half a dozen times in the past few days
- He’s counting to at least 20
- He sat and watched Forrest Gump with us last night and never once asked for one of his shows
- He is now requesting dinosaur chicken nuggets
- He loves to tell me that I am making a mess or something is a mess (and he is generally correct, lol)
- He is back in our world and will stop what he is doing if he wants to know what we’re doing - and will join us in what we’re doing over us joining him in what he is doing
- He is showing interest in sports like basketball and baseball
- He is showing interest in picking out his own clothes to wear and has even requested certain shirts

….if I think of any more, I will update this post….

What a wonderful Christmas…

27 December, 2008 (15:27) | Journal | By: Mom

We had a wonderful Christmas Eve and a wonderful Christmas day.

On Christmas Eve, we went to Grandma and Grandpa’s house as we always do. We ate dinner - and I was really surprised Nicholas did not go tearing through all of the wrapped gifts. He was really patient until we were done eating, but did want to play in the sink so Grandma let him have one of his toys a bit early. Grandma and Grandpa got Nicholas this really cute drill toy that you drill screws into to make patterns and pictures. That kept Nicholas quite content for quite some time. Then, we finally got him to open up another present which was a fire-truck playset which opens up to reveal a miniature city with cars and streets and such - he was in heaven playing with this. At this point, he could care less that he had a stack of presents left to unwrap. Grandma got him unwrapping the rest of his presents and then he got the claw-amusement park game where you try to get prizes out using the claw. He loved that. Once he was done unwrapping all of his gifts, Grandpa came out with one more… the big remote control dinosaur. Nicholas was in love - he had been dragging us back to the toy store just to see this dinosaur since he had originally seen it the week before. Everytime we left the house, “toy store mommy” - he just loved that.

The dinosaur is hysterical. It walks, sleeps, burps, goes up on his hind legs and roars - and you’d think it would be scary - but no, he LOVES it. and he works the remote rather well. A couple of times the dinosaur did something he wasn’t expecting and the look on his face was classic!

We were over Grandma and Grandpa’s rather late, so I was hoping he would sleep in late the next morning. I still had breakfast to prepare and Santa had to go to work putting out presents for the morning.

On Christmas Day, Nicholas came down from bed and saw the livingroom full of gifts and had an “oh wow” expression on his face. All of his gifts from Mommy and Daddy were in this huge velvet sack with Santa’s face on the front. Nicholas had seen the box for this sack and had been hunting around the house for the presents for a week. :)

Before we started opening gifts, I told him that Santa left a present downstairs (in his playroom) for him. He got to the top of the stairs, looked downstairs and stopped cold. I could see his dimples on the side of his face - Kitchen, Mommy!! Santa brought Nicholas his very own kitchen. He went downstairs, promptly opened and closed everything to check it out - it was not hard to tell, he was in heaven.

Today, Nicholas plowed through many of his gifts like a champion. Opening one, looking at it, putting it down, asking for another one. And boy did we go overboard, so he had alot to unwrap. It was very cute, we all ended up sitting around him, kind of like it was his Christmas “shower” where you watch the guest of honor unwrap gifts - which is usually very boring, but not this time. He loved the different wrapping papers, Dora, Charlie Brown & Snoopy, Mickey Mouse, etc. and easily named all of the characters on the box when we asked him who was on the paper.

We watched as he opened all kinds of games that he can play with us and take turns, Candy Land, Chutes and Ladders and Cooties. I found this adorable tipping clown game where you stack the wooden pegs on him hoping you dont make him tip. He unwrapped a few Thomas & Geotrax pieces that he did not have, a few DVD’s and books for his “spaceship” trips. He also got a few toys for “daddy and Nicholas” activities like one of those big remote control cars and a tiny remote control helicopter. (Last year we bought a helicopter as a gift for a friend’s 8 year old. Nicholas controlled that so well that we were all shocked.)

Nicholas’s language all day was just incredible. He was chatty, sociable and loved asking for “More presents please” - Wished everyone a “merry christmas” was asking questions like “what are you doing?”

He sat with us (unprompted) while we were eating dinner (Nicholas was hungry earlier, so he had already eaten) - and he was just charming… delightful… full of happiness and joy.

My hope for 2009 is that Nicholas continues to make huge leaps towards recovery like he has in 2008. 2007 was the worst year that we had. Words cannot accurately compare the differences in our lives and the differences in Nicholas from 2007 to 2008. It is just astounding. I am excited for this next year to pass, to watch the gains, uncover more of his language and his abilities and to just see more of the Nicholas that is waiting to come out.

The Bucket List

27 December, 2008 (03:11) | Journal | By: Mom

I finally saw The Bucket List last week. What an amazing movie. Touching. Sad. Funny. Tear-jerker. Thought-provoking….

So, here’s my Bucket List….

- Recover Nicholas from Autism
- Prevent another child (or children) from following down the same path as Nicholas
- Enjoy one day at a time and enjoy each moment for what it’s worth, not for what I feel was taken from us
- Celebrate every new thing that Nicholas does that we thought he would never be able to do
- Listen to what my son has to say once he has his voice back
- Live life without regard to autism (aka stop not-living life because of the autism)
- Be witness to and be a part of history once the autism-vaccine link can no longer be refuted
- Save for that trip to Disney World so Nicholas can finally meet all of his favorite friends - and forget about the difficulty we may (or may not) have while on vacation - it would all be worth it to see him experience some Disney magic

Newly added:
- Keep ourselves surrounded only by people who are supportive, loving and caring.
- (Courtesy of DebinIL): tell stories to the next generations of the “Autism Plague” and the parents rising up over “scientists” and “doctors” to conquer it themselves.
- Posting my son’s before & after neurologist reports, two showing the autism diagnosis, the other showing him as neurotypical (NT)
- Helping Nicholas find the right career for him and supporting him in any way that we can.
- Watching my son get married & become a father - and arming him with the knowledge of what vaccines can really do to a child besides the autism.

Mercury Poisoning is not new…. A must see

27 December, 2008 (02:02) | 6 - News | By: Mom

Part of this is in another language, but stick with it - very interesting and sickening. This was from the 1970’s.

Current Master Supplement Listing

27 December, 2008 (01:58) | Supplements | By: Mom

I updated some amounts to account for Nicholas’s growth spurt. :-)

Vitamins & Minerals
Multi Vitamin & Mineral Supplement
MB-12 Injections - Every morning - works so much better for Nicholas than at night. These are by prescription only, compounded by Hopewell Pharmacy
EfferC - 1/4 teaspoon 4x per day = 2350 mg Vit C + Calcium, Mag & Potassium (changed from Kirkman - trying out the EfferC)
Carlson Vitamin D3 (cholecalciferol) - 2000 IU
Vitamin World Natural Vitamin E (d-alpha tocopherol plus d-Beta, d-Gamma, d-Delta tocopherols - 800 IU
Kirkman Biomax Zinc- 20mg - 3 capsules/day
Inositol Powder from Kirkman – 2 scoops/day = 1 gram
Biotin – 10mg given 4 times/day = 40mg

Omega Fish Oil / Cod Liver Oil / Essential Oils & Fatty Acids
Nordic Naturals Complete Omega 3-6-9 Liquid - 2 teaspoons
Green Pastures Blue Ice High Vitamin CLO - 1 teaspoon
Evening Primrose Oil - 2 capsules = 1000mg (includes 90mg GLA)

Probiotics
Klaire Labs TherBiotic Complete 1 scoop per day
Klaire Labs or Kirkmans Saccharomyces Boulardii 2 capsules per day
Culturelle 2 capsules per day
Super ProBio 1 capsule per day
Living Streams Probiotic 2 drops per day

Amino Acids
Kirkman DMG (125mg) with Folic Acid (400mcg) and B-12 (6 mcg) - 9 Capsules per day
Kirkman GABA - 250mg - 3 capsules/day
L-Theanine (Suntheanine) from Nutricology- 100mg capsules - 1 capsule 3x per day
Custom Blend from Metabolic Maintenance
Acetyl-L-Carnitine187mg per day working up dose slowly this week

Anti-fungals & Anti-bacterials, yeast-fighting, etc.
Enhansa from Lee Silsby75mg per day

Enzymes
Kirkman Enzym-Complete/DPP-IVV - 1 capsule per meal
Enzymedica Virastop – 3 capsules/day (Protease Enzyme Supplement)
Enzymedica Mucostop - 2 capsules/day
Houston Nutraceuticals No Phenol - as needed for phenol effects
Houston Nutraceuticals Peptizyde - (as needed)
Houston Nutraceuticals Zyme Prime- (as needed)

For the liver
Liver life (1 dropperful 4x per day)
Milk Thistle Extract (5 drops 3x/day)

For constipation
Oxypowder(to keep his bowels moving) - only as needed (this stuff is fantastic!) - just a sprinkle here and there (haven’t needed this since we started chelation)

Other
Vinpocetine5mg 3 times per day
Creatine625mg per day
4Life Transfer Factor Classic – 200mg – 1 capsule 3x per day