Mommy… Grandma & Grandpa are here!!!

Today has been a great day.  Nicholas has been great all day – and is now taking a bath (at his request).  I can hear Daddy and Nicholas playing with his tub flutes and they seem pretty in sync.  🙂  A few minutes ago, Nicholas grabbed his little ducky brush, you know, the ones for their fingernails and started scrubbing the tub saying “clean.. clean.. clean.. clean mommy and daddy.. clean” 

Earlier today, Nicholas was lying on the top of the couch in front of our bay window watching Max and Ruby.  I saw my parents car pull up.  Nicholas must have heard the car because he turned around, got up – and got all excited.  He turns to me and says, “Mommy, Grandma and Grandpa are here!!!”  This might not seem significant because he’s been talking more and more – but he’s been calling Grandma “momma” and grandpa “pappa” or “pop-pop” – so him calling them Grandma and Grandpa is pretty huge – but…. he actually responded to seeing them through the window which he’s never done before like this.

He ran to the front door and opened it up and went running through the front lawn right to the car saying, “pizza, pizza!” because they brought pizza with them.

Gotta go, there’s a cute naked kid with a towel wrapped around him coming my way.  🙂

Octopus, mommy!

So, we started Nystatin yesterday because over the past several days, we could tell yeast began to creep back in.  Today, Nicholas woke up smily and chatty as ever.  He pulled me in bed with him to play under the sheets – and he was just laughing and having a grand ‘ole time.  He’s pointing at the TV – Diego saying “Octopus, mommy”.  He’s was too happy to show me his bridge and tunnel that he took off of his train table to come and show me.  “bridge, mommy”  ‘tunnel, mommy”  I’m trying to get used to him actually seeking me out to see what I am doing or tell me things.

Thank you HBOT

We were very skeptical at trying this, considering the cost, so I really didn’t have high hopes going in.   I honestly did not think we were even going to get him in the chamber or get him to stay in long enough once he was in, but he’s doing beautifully and actually enjoys getting into his spaceship, much to my surprise.

My son is 3 ½ and was diagnosed with PDD-NOS around 2 years old.  We started biomed with him before we even received his diagnosis, first starting with fish oils and Vitamin E.   After seeing that these had increased his speech from non-existent to lots of babbling, I knew that biomed was something we needed to fully dive into.  Since we started, he has come a long way on so many different levels. 

We feel like we have a different child and are now truly beginning to see our child emerge.  Here are examples of some of the things we (and his teacher) has witnessed:

  • He never really cared what we were doing, unless something caught his attention.  He would never just come to check on us to see what we were doing.  Now, he finds me to see what I am doing and will want to join in and help me.  If I am working on my laptop, he pulls up a chair. If I am vacuuming, he wants to help.
  • After one week of dives, two times per day 1.5 hours each, his speech went from “help” to “help me please mommy”.  Now, he’s even opening the freezer himself and pointing to the blue chicken nuggets bag and saying, “more chicken nuggets please mommy”
  • He’s making choices he never made before.  I can ask him what he wants to watch on TV.  Now he tells me.  “Wow wow wubbzy on TV please”  If I ask him what he wants to eat, he makes a choice.  If I ask him what DVD he wants, he chooses it.
  • Prior, if we had asked him for a kiss, we would get one on RARE occasion.  Now when I ask, I get one almost every time.
  • Waiting for the microwave to cook his nuggets used to be sheer torture which involved me holding him back from opening it up until they were done.  Now, he stands and patiently waits for the microwave to beep so he can take his food out.
  • He’s engaging us constantly – having fun, laughing, starting conversations – which is so impressive.  and we’re understanding more of his words.  The gibberish is turning into real words we can actually comprehend and appropriately respond to instead of pretending to know what he means, when we really don’t.
  • His eye contact is at a much higher level than it was before – he seeks us out constantly for attention.  A week after we started, his grandparents were visiting and he wanted people around him in the livingroom whether it was playing or watching TV.  He doesn’t want to spend long periods of time by himself anymore.
  • He is beginning to be proud of himself.  He couldn’t wait to show people his “spaceship” (the chamber) – he was so proud of it.  This is not anything he’s ever done before.
  • He is showing sympathy and is actually apologizing…. One example is when he threw a toy which hit a friend of ours in the foot causing him to say, ‘Ouch!’ – I told him to say, ‘I’m Sorry” – He turned to our friend and said, “Sorry Russ” – we were just blown away.  Not only did he get that he did something wrong, but he put the Ouch together with what he needed to be sorry for.   I never said “tell russ you’re sorry”
  • He is definitely more “with it” and I feel like he is understanding what I am saying for the first time; even though I have had glimpses of this in the past.  If I say, wait here, mommy has to go wash her hands, he will HELP me open the gate between our dining room and kitchen and will wait for me to finish.  He seems like he is getting it now – and before, he was confused about what I said, what I was doing, etc.
  • He seems more compliant, more cooperative – he just seems to go with the flow better.  I was not sure how this was going to work with doing hbot twice a day, and school in the afternoon, but he doesn’t fight getting into his spaceship twice a day; even if we wake him up earlier to do so.
  • He also seems to be getting appropriately upset when told he can’t do something.  Just last night, Daddy raised his voice at him to stop doing something and he actually had tears in his eyes.  In the past, he would just keep doing what he was doing until we either physically stopped him or put him in his room for a while.
  • He is becoming quite the jokester, he loves to initiate tickling or making funny faces and noises.  He would sometimes respond when you did it before, but now he’s doing it constantly and even initiating it.  He just loves to laugh.
  • He loves to make train noises when he’s playing with his trains and car noises when he’s playing with cars – we can hear him being really animated and pretending with his trains/cars – he’s now making them talk to each other.
  • He is really interacting with his peers in a way we’ve never seen before.  A few days ago, he was outside and our neighbor was out with his 4.5 year old son.  He brought him into the back yard and played “with” him – going into his playhouse, down the slide, etc.    It was amazing to see him interacting with another child in this way.  He also how plays trains “with” you.  When I had his train on the other side of the track, he was actually telling me which way to push the train, when to stop, etc.  This kind of play is totally new for him.
  • He is starting to ask questions like “what’s this mommy?”  – up until now, we’ve never heard a question out of him at all.
  • He is answering Yes/No questions with very little assistance.  “Do you want applesauce?   yes or no?”  to which he responds either yes, no, or what he wants instead.  We actually feel as though we are talking to him and he is understanding and talking back.  We’ve never witnessed him being conversational in this way before.   “I love you’s” are being followed with “I love you too mommy/daddy”
  • I spoke to his teacher this passed weekend and she wanted to know what we were doing because, “The last three weeks have shocked us!” She said they all see a major difference in him.  She said that he is funny and they are really enjoying watching this delightful child emerge.  She said that when he first started school last October that they saw 5% of him and now she says she’s seeing at least 80% of him.  She says his temper tantrums have significantly reduced.  He is now imitating the other kids, clapping to the music, and choosing his own activities.  She said, “he’s getting it!”  Her feedback couldn’t have been more positive – and we were thrilled to hear it, as we had not told anyone at the school that we were contemplating hbot at all.
  • Also, our son has a lot of food allergies/intolerances.  Prior to starting hbot, he was throwing up at almost every meal.  I thought he maybe had a stomach virus, but several weeks went by.  Then we started the hbot and he hasn’t thrown up since we started.
  • Also, he is starting to take an interest in potty training which he never did before

For the first time in a long time, it feels as though he is with us doing what we need/want to do, not us running around him doing what he wants to do.  For once, I don’t feel like I have a son with autism that is ruling our lives and our house every minute of the day – it seems odd to say, but it just doesn’t hit us in the face every second of the day like it did in the past.  We are actually able to enjoy him now like never before and for that I am truly grateful.

HBOT hours completed

From mid-May to mid-June, we completed 90 hours of mHBOT.

Mommy has funny hair!

So, Nicholas has been grabbing at my hair all day.  It’s like he never saw it before today.  He’s giggling, cackling and having the time of his life pulling, twisting, curling, did I mention pulling?  yeah, so glad I did my hair today!

He’s being a little devil today and laughing, laughing, laughing.  He’s turned the speaker phone on several times and every time waits for me to turn it off, then laughs like hell and turns it back on.  Same thing with my car alarm.  He’s just having the time of his life today doing what he is not supposed to be doing – and he knows it!

Day 1: Nystatin

We started Nystatin today.

Last mHBOT day

Today was our last day with our hyperbaric chamber and this completes our first round of 60 dives; 2 dives per day, 1.5 hours per dive (not including compression and decompression)

Nicholas continues to blow us away on a daily basis.

We have purchased our own chamber, so we will be starting again soon.  I’m looking forward to what’s in store for us…. and especially Nicholas.

Letter to the Editor on the Green Our Vaccines Rally

This is a beautifully written letter that I just had to share…..

Source:  http://www.vindy.com/news/2008/jun/08/people-step-up-to-wage-vaccine-fight-while-media/

People step up to wage vaccine fight while media watches and doctors look the other way
Published: June 8, 2008

EDITOR:

On Wednesday we attended a rally in Washington, D.C., headed by celebrities Jenny McCarthy and Jim Carrey urging the government and the vaccine industry to “green our vaccines.” Most people aren’t aware that vaccines contain various toxic ingredients — aluminum, formaldehyde, ether, and some still contain mercury, contrary to what you may have heard. It should be more then obvious to anyone (that is unless you work at the CDC) that toxins have no place in things we inject into our babies. Besides requesting a “greening of vaccines” Jim and Jenny’s message was simple, “Too many, Too soon”.

Reflect on this for a moment: Autism was 1 in 10,000 in 1983; it’s 1 in 150 in 2008. In 1983 children received 10 vaccines before school age. Today, it is an astounding 36 doses of various vaccines in the same time frame. Autism rates have risen simultaneously as the vaccine schedule has grown.

Vaccines have never been tested in combination. Some children are given an alarming eight shots at one time. Babies should never be vaccinated while they are sick — an all-too-common practice which has led many parents to report their child never being the same again after receiving shots while ill. The CDC provides a recommended list of vaccines, not a mandatory list. It is imperative that parents’ educate themselves on what exactly the diseases are that are being “recommended” for their child to be vaccinated against. Parents need to start making fully informed decisions when it comes to vaccines. The American Academy of Pediatrics has done nothing to address the autism epidemic. It’s done nothing to quell growing parental fears of what makes a child suddenly become autistic after receiving multiple vaccines. The AAP along with the CDC declined invitations to address the concerns of rally goers. Frankly, our community has lost faith in them. Over 8, 000 people attended the rally to lend a voice over concerns of toxins in vaccines. Every state in the union was represented along with Canada, Mexico, and the Philippines. What was so very disappointing was the poor media coverage this rally received by the mainstream media.

Our politicians need to be held accountable to us and our children. Any person holding office or running for public office should know our children are being damaged from toxic vaccines and they had better be willing to craft and support legislation that works to correct this problem and spare future generations from harm. In addition, they need to be prepared to create legislation that secures the funding needed to support the hordes of soon-to-be adults that will need lifelong care because they have been rendered autistic and unable to care for themselves. Robert Kennedy Jr. informed the crowd that the Iraq war is projected to cost us 3 trillion dollars. Yet, caring for all these autistic people will make that figure look small in comparison.

Our most precious commodity — our children — are literally being destroyed by government controlled propaganda and a profit driven medical establishment.

MATT and ANDREA KELLER

CANFIELD

Harvard Researchers Fail to Report Drug Payments

Wow. wow. wow.  An honor system???  You have got to be kidding me! This is exactly the kind of thing that we have been talking about all along.  Doctors are getting paid huge amounts of money by big pharma to do “research” for the sake of wellness for our children – except, they are really being paid by big pharma to find more ways to get our kids on prescription drugs earlier.  A researcher or scientist who accepts any gift or any amount of money from any company or person who stands to gain or lose from that person’s findings is clearly a biased biostitute (bio-prostitute) with a huge conflict of interest.

How is this any different from those paid by big pharma to prove that there is no link between vaccines and autism?  It’s simple, it’s not.

The time has come for reporting systems to be put into place so that big pharma cannot sway our researchers and physicians to harm anyone for the sake of their own financial gain.  I would like to see rigorous checks in place to review the income of those associated with any medical research in addition to knowing the true funding source of the study.  I would also like to see doctors have to disclose the amount they get paid every year in pharmaceutical incentives for the vaccinated children in their practices and for the prescriptions they write.  I would also like to see doctors have to claim the lavish gifts bestowed upon them by pharmaceutical reps/companies such as swimming pools, vacations, etc.  Then, it won’t be hard for anyone to see the conflict of interest that has run ramptant through the medical industry.

Harvard Researchers Fail to Report Drug Payments 

By DAVID ARMSTRONG
June 9, 2008; Page A2, New York Times

Three prominent Harvard University psychiatrists underreported payments they received from drug makers, a situation that highlights the need for a national reporting system of pharmaceutical company payments to physicians, according to Sen. Charles Grassley.

Sen. Grassley, a Republican from Iowa, said his staff compared records of payments provided by drug makers with conflict-of-interest forms the three psychiatrists provided to the university and Massachusetts General Hospital, where they practice. The university and hospital disclosures made it appear that the psychiatrists — Joseph Biederman, Thomas Spencer and Timothy Wilens — were making only a “couple hundred thousand dollars” over a seven-year period beginning in 2000.

After Sen. Grassley began his inquiry, the university and hospital asked the doctors to take a second look at the amounts they received from drug companies. Sen. Grassley said this prompted Dr. Biederman and Dr. Wilens to report revised totals of more than $1.6 million each in payments from drug companies between 2000 and 2007. Dr. Spencer reported receiving more than $1 million, according to Sen. Grassley.

The amounts may be even higher, Sen. Grassley says, because drug-company records indicate the doctors were still reporting amounts lower than what the pharmaceutical makers say they were paid.

Dr. Biederman is a controversial figure whose research on childhood bipolar disorder is criticized by some for leading to a huge number of young children being placed on powerful and potentially dangerous medications. He didn’t return a telephone message seeking comment. Attempts to contact the other doctors were unsuccessful.

Sen. Grassley said the current method for disclosing conflicts of interest among medical researchers is an honor system in which researchers report their relationships with drug and medical-device makers, but nobody checks to make sure the information is accurate.

“Why weren’t Harvard and Mass General watching over these doctors?” Sen. Grassley said in comments reported in the Congressional Record. “The answer is simple: They trusted these physicians to honestly report this money.”

He is calling for a national reporting system in which drug companies disclose payments to doctors.

The results of Sen. Grassley’s review were reported by the New York Times on Sunday.

Link to story: http://online.wsj.com/article/SB121297210499055941.html?mod=googlenews_wsj

PECS Flash Cards

PECS flash cards 

I made my son a set of PECS flash cards that can be printed by any photolab (Costco, etc) – or printed on your home printer.  If you print them at a photolab, they won’t rip easily and you could always just reprint on if you needed to, so no need to laminate them.

They came out great – and his therapists raved about them.

Powered by WordPress | Designed by: Virtual Server Hosting | Compare CD Rates Online, Bob Seger Tour and Registry Booster 2011