RecoveringNicholas.com

Just so I have this in a safe place…. Nicholas is on the daily maintenance dose for the High Dose Vitamin A protocol. He’s doing really well on it, so we’re going to continue.

Here’s where his daily breakdown of Vitamin A comes from:
Klaire’s VitaSpectrum - 8,167IU (he gets 7 caps per day, instead of 6)
Green Pasture High Vitamin CLO - 10,000IU (1 tsp)
Klaire’s Micellized Vitamin A - 5,025 IU (1 drop)
Total = 23,192IU a little less than 25,000IU, but I don’t want to go overboard.

I gave Nicholas 1/4 cap of Klaire’s MethylFolate (5-methyltetrahydrofolate) today - which equals about 250mcg.

Nicholas is currently getting 3600mcg of Folinic Acid, but it was also recommended that we try adding the 5-MTF to see if it would help, so we’re giving it a shot. Goal dose is 1 cap 2x a day.

March 31, 2009 - I increased this to 1/2 cap (500mcg)
Update: Nicholas seems tempermental. He had a meltdown and ended up being put in his room to calm down, which has not happened in quite some time. He calmed down very quickly, which is worth mentioning — much quicker than it used to take.
I’m going to hold the dose at half a cap - and split it between morning and afternoon and see if this was just a fluke or if it continues.

What an incredible round! Nicholas is so “on” while on round, that it kills me to end the round. But 27 rounds down… and we keep going…..

The Step Two catalog came in the mail last week and Nicholas proudly pointed out a sand & water table that he wants to go to the Toy Store to get. Not like he needs another place to play with sand (he has a sand box) - but he keeps looking at this one thing and telling us he wants it. So, I just HAVE to get my 99.99 out of the deal, right?????

So, I downloaded a cool Diego chart that has 5 rows of 7 boxes. Each box is big enough to stick a sticker onto - so I’m using it as a potty training chart. Mounted on the bathroom wall, right next to the potty — Nicholas gets a sticker every time he uses the potty.

Keep in mind, I am totally rolling my eyes here because don’t you know that my kid could care less about some stupid stickers?? I have packs of stickers tucked everywhere. Stickers from school, stickers tucked into birthday cards - you name it, we have a collection. Nicholas has never been motivated by stickers and has never really payed them any attention…. until now.

When mixed with the thought of accumulating enough to trade his sticker sheet in for his sand and water table, these stickers are now the equivalent of the holy grail to him.

So, I mounted the sticker sheet last Monday and I didn’t say a word about it. I patiently waited until Nicholas pointed it out and said, “is that for me?” - and I gave the easiest explanation I could have and then whipped out the Step 2 catalog. “Want this?” I said. “Yes, go to toy store please?” and the conversation went from there. It took me 2 tries at the conversation about the chart, but I had a good feeling that he got the point.

A few days later, I am happy to report that Nicholas has 8 stickers. And he is SO excited to pick out his sticker and stick it on his next square. So, I’m optimistic that this is it and he’s gonna get it this time and we’ll be in his new Diego and Thomas undies in no time.

I added a drop of Advanced Biocidin to Nicholas’s supplements today. I think that with all of the yeast we’ve eliminated, there’s been some bacterial overgrowth, so I’m adding this supplement back into his daily routine. I will only keep it on board if I see that it is having a positive effect on Nicholas.

March 30th - increased to 2 drops.

I bought a bottle of Klaire’s Interfase a while ago and have not yet tried it, so I decided to start giving Nicholas one capsule per day to see if I notice any differences.

Interfase from Klaire Labs

Note: Interfase Plus contains EDTA which is contraindicated in mercury-toxic individuals, so I am just trying the regular one.

Note: For info on these supplements including where to buy them, visit my Supplement Directory page.

Changes since the last update are:

increased Nordic Naturals Omega 369

stopped ubiquinol - capsules were too much of a pain to open, looking for CoQ10 replacement

switched from Brainchild to Klaire’s Vitaspectrum - which is a HUGE cost savings

Vitamins & Minerals
Klaire VitaSpectrum - 7 Capsules per day
MB-12 Injections
Kirkman’s Buffered Vitamin C - 1/8 teaspoon 4x per day
Carlson Vitamin D3 (cholecalciferol) - 2000 IU
Vitamin World Natural Vitamin E (d-alpha tocopherol plus d-Beta, d-Gamma, d-Delta tocopherols - 800 IU
Kirkman Biomax Zinc- 20mg - 3 capsules/day
Inositol Powder from Kirkman – 3 scoops/day = 1.5 grams
Biotin – 10mg given 4 times/day = 40mg

Omega Fish Oil / Cod Liver Oil / Essential Oils & Fatty Acids
Nordic Naturals Complete Omega 3-6-9 Liquid - 4 teaspoons
Green Pastures Blue Ice High Vitamin CLO - 1 teaspoon
Evening Primrose Oil - 2 capsules = 1000mg (includes 90mg GLA)

Probiotics
Culturelle 2 capsules per day
Living Streams Probiotic 8 drops 2x per day

Amino Acids
Kirkman DMG (125mg) with Folic Acid (400mcg) and B-12 (6 mcg) - 9 Capsules per day split in 3 doses
Kirkman GABA - 250mg - 3 capsules/day
L-Theanine (Suntheanine) from Nutricology- 100mg capsules - 1 capsule 3x per day
Custom Blend from Metabolic Maintenance
ProThera Acetyl-L-Carnitine1500mg per day

Anti-fungals & Anti-bacterials, yeast-fighting, etc.
Enhansa from Lee Silsby75mg per day — give No-Fenol with Enhansa if child has phenol issues (red cheeks/ears)

Enzymes
Kirkman Enzym-Complete/DPP-IVV - 1 capsule per meal
Houston Nutraceuticals No Phenol - as needed for phenol effects
Houston Nutraceuticals Peptizyde - (as needed)
Houston Nutraceuticals Zyme Prime- (as needed)

For the liver
Liver life (1 dropperful 4x per day)
Milk Thistle Extract (5 drops 3x/day)

For constipation
Oxypowder(to keep his bowels moving) - only as needed (this stuff is fantastic!) - just a sprinkle here and there (haven’t needed this since we started chelation)

Other
Vinpocetine10mg 3 times per day
Creatine625mg per day
4Life Transfer Factor Classic – 200mg – 1 capsule 3x per day (will soon be trying a higher dose on this as well)
Georges Always Active 100% Aloe Vera - 1 tablespoon per day (working up to 2)
Omega-3 Glucosamine (with Condroitin) - 1 capsule per day: 500mg Glucosamine & 33.3mg Condroitin

Taking a weekend off from chelation to do the High Dose Vitamin A Protocol. Nicholas’s measles, mumps and rubella titers were extremely high (yeah, big surprise), so we’re giving this a shot to see if it makes an difference in him.

Today he got 400,000IU Klaire’s Micellized Vitamin A and will get another 400,000IU tomorrow with a daily dose around 25,000IU thereafter.

I’m not starting or stopping anything else so we can truly see if it makes a difference — I certainly hope so.

March 30, 2009 - Well, it didn’t take long to see that this truly made a difference in Nicholas. It did and the higher dose of Vitamin A has been really good for him. He’s more alert, more with us, noticing more things around him that he would have never noticed before. We will repeat this protocol in 6 months and will also be pursuing other anti-virals shortly.

Just keeping count

As of today, we’re up to 600mg of Enhansa. So far, Enhansa has been a god-send for us.

As of March 21, we’re up to 675mg per day split in 3 doses. It’s really keeping yeast in check nicely. We haven’t seen another die-off like we did in the beginning, but it’s clear that it is helping. I’ve been forgetful at giving him his diflucan and haven’t hit a bump because of that yet. I would love to try dropping the diflucan and see how we do.