CDC withheld evidence that contaminated tap water caused lead poisoning in kids.

If you still believe that the CDC, FDA or the AAP care about our kids and have their best interests in mind (and not their own), I’d like to know how much it would take for you to change your mind. Wake up people.

Health agency covered up lead harm
The Centers for Disease Control and Prevention withheld evidence that contaminated tap water caused lead poisoning in kids.
Link to article: http://www.salon.com/env/feature/2009/04/10/cdc_lead_report/

By Rebecca Renner

April 10, 2009 | From 2001 to 2004, Washington, D.C., experienced what may have been the worst lead contamination of city water on record. Tens of thousands of homes had sky-high levels of lead at the tap, and in the worst cases, tap water contained enough lead to be classified as hazardous waste. Not that the Centers for Disease Control and Prevention, the government oversight agency for public health, was worried.

A 2004 CDC report found that water contamination “might have contributed a small increase in blood lead levels.” The study has been influential. School officials in New York and Seattle have used the CDC report as justification for not aggressively responding to high levels of lead in their water, and other cities have cited the report to dispel concerns about lead in tap water.

But the results of thousands of blood tests that measured lead contamination in children were missing from the report, potentially skewing the findings and undermining public health. Further, the CDC discovered in 2007 that many young children living in D.C. homes with lead pipes were poisoned by drinking water and suffered ill effects. Parents wondered whether the water could have caused speech and balance problems, difficulty with learning, and hyperactivity. Yet the health agency did not publicize the new findings or alert public health authorities in D.C. or other federal agencies that regulate lead, such as the U.S. Environmental Protection Agency or Housing and Urban Development.

“This is a disaster of accountability from CDC’s point of view,” says John Rosen, a pediatrician and national expert on lead poisoning at Montefiore Medical Center in New York City. “This raises troubling questions about CDC’s complicity in passing on dubious data — and further questions about why CDC did not publicize the 2007 results more broadly.”

CDC scientists and press representatives did not respond to requests for an explanation about why the results were not widely publicized. George Hawkins, director of the District Department of the Environment, in Washington, says he became aware of the 2007 study only on April 2 this year, when Salon showed him an abstract of the study. Scientists from other agencies, including EPA and HUD, also say they were never told about the results. “CDC never told us,” says an EPA scientist, “and they never asked our help or any other water expert’s help when they did their studies. That’s a shame and a waste, because when it comes to lead in water, you need engineers, chemists and health people to figure it out.” The scientists requested anonymity because they were not authorized to speak to the press.

Salon raised questions in 2006 about the influential 2004 CDC report of lead contamination in the D.C. area. New scrutiny of CDC’s work has been sparked by a scientific study published in January that contradicts CDC’s conclusion of minimal harm. Environmental engineer Marc Edwards of Virginia Tech, and pediatrician Dana Best of Children’s National Medical Center in Washington, used Best’s data for children’s blood-lead levels and found a jump in high-level results among kids who were infants and toddlers from 2001 to 2004. The authors conclude that hundreds, possibly thousands, of children were adversely affected.

Edwards and Best raised further health concerns about the 40,000 Washington children who were either in the womb or using formula during the crisis, for whom health effects are expected to be the most severe. These children (now 4 to 9 years old) are at particularly high risk for future health and behavioral problems linked to the lead exposure.

In February, a D.C. resident filed a $200 million lawsuit against the D.C. water company, claiming that lead-contaminated tap water poisoned his twin sons as infants, causing them to have ongoing learning and behavioral problems. The D.C. Inspector General is investigating the reasons behind the apparently conflicting results of the two CDC reports.

Mary Jean Brown, head of the CDC Lead Poisoning Branch and principal author of the 2004 study, acknowledges that thousands of blood tests were lost and not included in the study. But she defends the paper’s conclusion — that children’s exposure to lead and consequent harm was slight — on the grounds that only low-level test results were lost.

In a written memo to Salon, explaining the missing data in the 2004 report, Brown writes that the issue became apparent in 2004. The D.C. Health Department had reported testing the blood of 15,755 children in 2002, 18,038 in 2004, but only 9,765 children in 2003. When questioned, D.C. Health Department staff attributed the gap, according to Brown, to a commercial laboratory that failed to submit some test results in the last quarter of 2003, a year when lead levels in the water were high. Specifically, the lab was said to have omitted results below 10 micrograms per deciliter. (This is CDC’s current level of concern and a level that many pediatricians and public health experts classify as lead poisoning.)

Brown accepted this explanation. She states that the highest results in 2003 were reported accurately and that a comparison with blood-lead trends in the city suggests that the loss of low-level results did not introduce a bias in CDC’s analysis.

“This is just a circular argument, and it doesn’t wash,” says a government scientist who requested anonymity. “When CDC learned the data was missing, someone could have called the lab and asked for it. If it was the lab’s mistake, they would have sent the data,” the scientist adds.

Edwards, who examined the data used by CDC for the 2004 report, says that numerous high results were also omitted. Since 2004, he has made a number of attempts to question CDC scientists about apparent problems with the 2004 study. In 2007, Edwards filed a complaint of scientific misconduct with the CDC, alleging that Brown must have known about serious flaws with the data but failed to acknowledge them when writing the 2004 CDC report.

In a message to James Stephens, CDC’s associate director of science, he wrote, “Why is it that every child I have personal knowledge of, who had a strong chance of having elevated blood lead from water, is either deleted or otherwise misrepresented in the data that CDC has and used for this publication?” Edwards did not receive an answer. In March 2008, Stephens wrote to Edwards, informing him, “We have examined CDC’s role in the study and have found no evidence of misconduct.”

CDC scientist Jaime Raymond presented the 2007 results at the American Public Health Association’s 2007 annual meeting in Washington. The study used data from a total of 22,981 children under 6 years old who lived in Washington from 1998 to 2006. Twenty-nine percent of the children lived in houses with lead water pipes and were more likely to have contaminated tap water; the rest lived in houses without lead pipes.

Starting in 2001, when the lead levels in the city’s drinking water soared, this CDC study shows that the number of kids with high blood-lead levels (above the CDC line of concern) also increased — and the problem is more severe for kids living in the lead pipe houses. The number of affected kids went down in 2004 as the lead in water decreased. Raymond and colleagues showed that the link between the water and the lead was strong and couldn’t be explained by other factors.

“Why has CDC kept quiet about these results?” asks Yanna Lambrinidou, president of Parents for Nontoxic Alternatives, a D.C. activist group “It makes no sense if they are concerned about public health. Are they trying to cover up the harm that lead contaminated water caused in D.C.?” Raymond would not respond to any questions posed by Salon.

Bruce Lanphear, a pediatric epidemiologist at Simon Fraser University in Vancouver, who has studied lead effects on children, says, “It is critical to investigate how and why these earlier studies failed to show any increase in children’s blood-lead levels.”

The House Science and Technology Committee Investigations and Oversight Subcommittee is beginning an investigation into CDC’s handling of the D.C. lead crisis. Subcommittee chair Brad Miller, D-N.C., wrote the CDC on March 13, requesting all “records that indicate possible, probable or actual forgery, fabrication or other intentional misrepresentation of data,” concerning lead in the water.

“It would be easier to understand CDC’s nonchalance about losing almost half the results for 2003 if its conclusions were consistent with what other scientists found,” Miller says. “It’s also difficult to understand why the loss of so much data didn’t merit a caveat or even a footnote in CDC’s report.” He adds, “If the CDC tells parents that they shouldn’t worry about their children’s health, its evidence had better be rock solid. It’s hard to win back lost trust.”

Progress Update on Nicholas

We are so excited with the way Nicholas is progressing. Every day, he’s just getting better and better!!

A couple of things he has done since my last update:
– He is singing the ABC song in it’s entirety. I didn’t even know he could. I just started singing it to him and he joined in and finished the song.
– I got into bed with him the other morning and he started ticking my stomach…. then he started singing “tickle tickle tickle tickle tickle the whale” from the Wonder Pets. He hasn’t heard this in quite some time – I used to sing it to him all the time when I ticked him and I never got a response.
– His trains are having full conversations with each other — real words – back and forth – amazing. What was even more amazing was that the trains appeared to have different personalities with the way he was making them talk to each other.
– We can’t get away with sneaking out of his room to leave him play anymore – he wants us included in his play scenarios.
– I used to say Hello to him 100 times without him answering. I would have to say – Nicholas – HI! to get a response. Now, I just say hi and he says hi. Big difference.
– We left him with his Grandmother the other night while Mommy, Daddy and Grandpa went to the store. This used to be an issue mainly because he wants Grandpa to play trains with him and he just came and we left quickly – Grandma just told him we went to the store and he said, Ok – and that was it.
– This past weekend, we took a ride to an outdoor gardening store with sells the big swingsets. Nicholas met a little girl who was there with her parents and the two of them played for over an hour with each other. I had just asked the teacher a few days prior if he was playing with kids and she said that it was only if it was facilitated play. Nicholas and her had a blast. They chased each other up the stairs/rock wall and down the slide. They went from swingset to swingset. He talked to her plenty and she understood him. He answered her when she spoke. Nicholas got into the basket swing and she wanted to push him. The two of them engaged in a game where he sat on one side and she pushed from behind him. When he moved to the seat across, she ran around to the other side. The two of them played this for a long time. At some point, something upset her and she left to go sit down. Nicholas (unprompted) went over to her, croutched down and said “What’s the matter?” She said “nothing” He said, “come play” – she got up and went back to playing. (A month or so ago, we were at a party with kids – and Nicholas played completely by himself the entire time. Even when he was in a room with one other child, he could care less that there was another child there.)
– When we were leaving Toys R Us the other day, there was a little boy in the little plane ride by the exit. Nicholas went into the other ride and when the people had left, he came out to ride the plane. He looks at me and says, ‘where did the little boy go?” I almost fell over. He has never cared about other kids before and now he’s noticing them and even playing with them.
– His language is getting better and better. More and more words from him every day.
– He’s doing great with going to the potty – we’re hoping to be out of diapers soon! He’s getting it that when you get up, you use the potty.
– His receptive language has gotten so much better. He understands so much more!
– He’s now asking to go see people and to go places.

Doctor-Heroes Standing For Better Vaccine Science

Doctor-Heroes Standing For Better Vaccine Science
by Barbara Loe Fisher

http://www.vaccineawakening.blogspot.com/

The cry that was heard around the world in the early 1980’s, when mothers and fathers realized an old, crude pertussis vaccine was killing and damaging the brains of their children, is being echoed today by new generations of parents struggling to raise vaccine injured children. As in the 1980’s, mothers and fathers today are forced to watch doctors hold the needles, pull the trigger and then turn their faces away when children are cut down at the beginning of their lives.

Over the decades, we have seen a handful of doctors demonstrate intellectual honesty and rare courage by standing up publicly to acknowledge that vaccine injuries and deaths are real and that more scientific research is needed to fill the gaps in knowledge about why and how vaccines cause harm. Despite criticism and even threats from colleagues to remain silent, these doctor-heroes have chosen commitment to good science and respect for human life to take precedence over protection of the status quo.

On April 3, 2009 on CNN’s “Larry King Live,” the only woman to have served as director of the National Institute for Health, Bernadine Healy, M.D., firmly countered allegations that scientific research into the vaccine-autism connection should be ended because science has proven “vaccines do not cause autism.” Politely disagreeing with Margaret Fisher, M.D., a pediatrician spokesperson for the American Academy of Pediatrics (AAP) and pediatric neurologist Max Wiznitzer, M.D., who testified against compensation for vaccine injured autistic children in the U.S. Court of Claims, Healy said “I really don’t believe that this is a closed case from a research point of view.”

Continue reading the rest of the article here.

Height/Weight Stats

Just making record since we started armour thyroid today:

Nicholas is 41 inches and 62 pounds.

Height for age percentile: 25th-50th
Weight for age percentile: >97th
Weight for height percentile: >97th

Growth Percentile Calculator

Update: June 13, 2009
Nicholas is 70 pounds.
We did not check his height.

Update: April 16, 2010
Nicholas is 45 1/4 inches and 83 pounds.

Carly Fleischmann, 14 year old with Autism, on LKL

14-year old Carly Fleischmann was on Larry King Live last Friday. She is an amazing girl with autism. She can’t speak, but has found a powerful voice. This segment really touched me – just more evidence to let us know that our kids hear everything and are very much aware of what is going on around them. What I found interesting was this statement she made:

Doctors would like to tell you that we have a hard time processing information. Its not really true, our brains are wired differently. We take in many sounds and conversations at once.

I have learnt how to filter through some of the mess.

Larry King Live: The Debate Over Autism

Jenny McCarthy, Jim Carey, Dr. Jerry Kartzinel, JB Handley (Generation Rescue) and Dr. Bernadine Healy (Former former Director of the National Institutes of Health (NIH), largest U.S. federal agency responsible for conducting and supporting medical research. Dr. Healy has no known conflicts of interest in the vaccine-autism debate) were on Larry King Live April 3rd, 2009.

They were all brilliant – this was a show which was a must see.

It looks like CNN is airing this again Saturday night so check your local listings.

LKL Blog Exclusive: Autism is Preventable and Reversible

Some Video Coverage

Transcript from the show

Dr. Ronald Knaus’ follow up and response to Jenny McCarthy on Larry King Live

Dr. Knaus – you are just too adorable! Thank you!

Vioxx maker Merck and Co drew up doctor hit list

Well, well, well….. now I am getting a better picture of why our pediatricians continue to fail our children. The hold big pharma has on our country, our lives, our laws has to stop. Doctors who have seen adverse reactions to drugs and have the courage to speak out about it are put on a hit list – I wonder how big the hit list is for those pediatricians who have seen reactions to our children’s vaccination.

Do you think that the same principle can be applied here in regards to the attempts and trial to discredit Dr. Wakefield who found the Measles virus in the guts of ASD kids? I think so.

Vioxx maker Merck and Co drew up doctor hit list

Milanda Rout | April 01, 2009
Article from: The Australian
AN international drug company made a hit list of doctors who had to be “neutralised” or discredited because they criticised the anti-arthritis drug the pharmaceutical giant produced.

Staff at US company Merck &Co emailed each other about the list of doctors – mainly researchers and academics – who had been negative about the drug Vioxx or Merck and a recommended course of action.

The email, which came out in the Federal Court in Melbourne yesterday as part of a class action against the drug company, included the words “neutralise”, “neutralised” or “discredit” against some of the doctors’ names.

It is also alleged the company used intimidation tactics against critical researchers, including dropping hints it would stop funding to institutions and claims it interfered with academic appointments.

“We may need to seek them out and destroy them where they live,” a Merck employee wrote, according to an email excerpt read to the court by Julian Burnside QC, acting for the plaintiff.

Merck & Co and its Australian subsidiary, Merck, Sharpe and Dohme, are being sued for compensation by more than 1000 Australians, who claim they suffered heart attacks or strokes as a result of Vioxx.

The drug was launched in 1999 and at its height of popularity was used by 80 million people worldwide because it did not cause stomach problems as did traditional anti-inflammatory drugs.

It was voluntarily withdrawn from sale in 2004 after concerns were raised that it caused heart attacks and strokes and a clinical trial testing these potential side affects was aborted for safety reasons.

Lead plaintiff Graeme Peterson, 58, claims the drug caused him to have a heart attack in 2003 after he took it for back pain and arthritis every day from May 2001.

Merck last year settled thousands of lawsuits in the US over the effects of Vioxx for $US4.85billion ($7.14 billion) but made no admission of guilt.

The company is fighting the class action in Australia.

The Federal Court was told yesterday that Merck wanted to gain the backing of researchers and doctors – or “opinion leaders” – in the fields of arthritis to help promote the drug to medical professionals when it was launched in 1999.

Mr Burnside said internal emails in April 1999 from Merck staff showed the company was not happy with what some researchers and doctors were saying about the drug.

“It gives you the dark side of the use of key opinion leaders and thought leaders … if (they) say things you don’t like to hear, you have to neutralise them,” he said. “It does suggest a certain culture within the organisation about how to deal with your opponents and those who disagree with you.”

The court was told that James Fries, professor of medicine at Stanford University, wrote to the then Merck head Ray Gilmartin in October 2000 to complain about the treatment of some of his researchers who had criticised the drug.

“Even worse were allegations of Merck damage control by intimidation,” he wrote, according to Mr Burnside.

“This has happened to at least eight (clinical) investigators … I suppose I was mildly threatened myself but I never have spoken or written on these issues.”

Mr Burnside told the court Dr Fries went on to describe instances of intimidation, including one colleague who thought his academic appointment had been jeopardised and another who received phone calls alleging “anti-Merck” bias.

Dr Fries said in the letter that Merck had been systematically playing down the side effects of Vioxx and said the company’s behaviour “seriously impinges on academic freedom”. The court was also told a rheumatologist on Merck’s Australian arthritis advisory board was angry he did not find out about Merck’s decision to withdraw Vioxx until an ABC journalist rang to tell him. Mr Burnside said James Bertouch wrote to other members of the board saying he was “extremely disillusioned” with the company.

“In every possible way the company exerted itself to present the impression to the world at large that Vioxx did not provide any increased cardio risk … when (a) it probably would and (b) it probably did,” he wrote, according to Mr Burnside.

Peter Garling, acting for Merck, accused Mr Peterson of not taking the drug Vioxx in the months leading up to his heart attack in December 2003.

He said Pharmaceutical Benefits Scheme figures showed he did not fill a Vioxx prescription for the drug in the two months before his heart attack.

Mr Garling put to Mr Peterson during his cross-examination that this was because he had retired from his job as a safety consultant and therefore he did not need to take Vioxx because his back pain lessened.

Mr Peterson denied this meant he was not taking the drug.

“No, I wouldn’t accept that at all,” he said. “I can remember taking Vioxx regularly.”

The trial, before Justice Chris Jessop, continues.

Started Nicholas on Armour Thyroid today

Last year, Nicholas went from weighing 42 pounds to 64 pounds in less than 6 months time. I suspected a thyroid problem, but the labwork did not point in that direction. So, I kept looking for answers – not finding any reason for this. One thing that was mentioned as a possibility was that his gut was being healed (we started hbot around the same time he started gaining weight) he was absorbing food more than he was before. Well, since I have never seen undigested food in Nicholas’s stool, I didn’t put much weight behind this theory.

So, I started digging and digging and talking to people who were familiar with thyroid issues. And in reviewing Nicholas’s labwork (with the correct reference ranges applied) – it was obvious he was hypothyroid.

So, I’m going to share what I have learned in hopes that it can help someone else.

The problem with the testing is that most doctors do not know how to read the test results and this is not necessarily their fault. From what I found out, they changed the reference ranges back in 2003, but most labs haven’t updated their ranges yet which may be part of the problem. Also, when looking at results, most doctors just look to see if the number is in the reference range and if it is, they assume no problem.

A TSH over 3.0 points to hypothryoid. Over 2.0 could mean possibly hypothyroid. The reference ranges labs use don’t point to hypothyroid until the person is really, really effected by it, usually with a TSH over 5, so essentially the reference ranges most labs use are incorrect for thyroid. And many of the test results can be quite normal in appearance, but if the symptoms all fit, a trial of Armour would be in your best interest. (Many people spend their life feeling horrible with a TSH of 1.5 – and when treated with Armour can function and feel better again – so your best bet is to find a doctor who will treat by symptoms)

Labs get their reference ranges from testing a group of people – usually a fairly large group of people – and they update their ranges from time to time. If a number of those individuals have un-diagnosed hypothyroid, it will skew the reference ranges to be higher. So, essentially, living with hypothyroid has become the norm unfortunately. I do have to wonder if this isn’t a part of the obesity problem in this country.

If you are having thyroid antibody tests run – make sure your lab will provide you with an actual numeric result and not just positive or negative. Most labs have ranges for what is considered positive or negative. Positive is anything above ZERO. A person shouldn’t have ANY antibodies to their thyroid.

Here are some sites I did bookmark which have some great information:
Stop the Thyroid Madness
http://www.drrind.com/
http://forums.realthyroidhelp.com/
Yahoo Group with Great Info
Really helpful scorecard: http://drrind.com/therapies/metabolic-symptoms-matrix

Soy suppresses the thyroid, so it should be avoided. Soy is a goitrogenic food, maybe good for women with no estrogen, but for the rest of us. Everything I have read about soy makes me stay as far away from it as possible. It’s upsetting to me to think about how many months Nicholas drank Isomil and then Isomil 2 (when he wouldn’t drink cow’s milk and I didn’t know any better.)

Also, Gluten can effect the thyroid as well. Heavy metal toxicity also has an effect on the thyroid.

My son also has adrenal fatigue as well, so is taking Adrenal Cortex Glandular for this. So, if you are researching the thyroid, you need to keep the adrenals in mind as well because they thyroid hormones won’t work if the adrenals aren’t supported or doing their job. A good way to check for adrenal fatigue is with a hair test – plus you get alot of other information with this test as well. You can order a hair test directly from directlabs.com. The test is called: Hair Elements. If you call and order the test, you will get a discounted rate – mention the autism discount.

A couple of the symtoms that Nicholas has shown – many synptoms would be hard to know since he can’t tell me yet.
1. Nicholas’s gets dark circles under his eyes when his face gets really puffy
2. Sudden weight gain – 20 lbs in less than 6 months
3. Face shape is full, puffy around eyes
4. MCV tends to be 90 or less
5. WBC often in mid-normal range or high end
6. TSH numbers jumping around too much does signify a problem. Fluctuation like this can point to hashimotos.

So, since Nicholas is already taking Adrenal Cortex Glandular, we decided to do a one-month trial of Armour Thyroid. (This is natural – I would never consider using the synthetic thyroid medications – because from what I have read, they don’t really work well.) He is taking 30mg per day, which is 1/2 a grain.

Update – June 13, 2009: Nicholas’s TSH is coming down but his weight still continues to climb. He now weights 70 lbs which is 8 pounds higher than what he weighed only a couple of months ago. I’ve increased his Adrenal Cortex Extract to 2 caps 2x a day and his doctor has also suggested an increase in his Armour thyroid to 60mg per day.

Update – April 18, 2010: Nicholas has continued to gain weight despite his TSH being in the appropriate range and despite being on Armour Thyroid. I have discontinued using it at this time.

————————————-

Some information on prior and outdated testing (added 5/6/2009):
There was one test which used radioactive iodine that they give you (usually to drink) and then an x ray or scan is taken of your thyroid to see what has been absorbed. What this test has achieved is the poisoning of your thyroid, not to mention that radiation is one of the most common causes of thyroid dysfunction.

Another test is where they give you an injection of Thyroid Releasing Hormone (TRH), which is synthetic and then they measure your TSH to see if you pituitary gland is working. However, this does not tell you anything about your thyroid. The pituitary can scream all day long but if the thyroid is not listening or cannot get the message….nothing happens. The modern TSH test has eliminated the need for this TRH test.

There is no real medical need for either of these tests when thyroid function is obvious by body temps and symptoms. But for docs who need a lab, it’s Free T3 and Free T4, TSH and thyroid antibodies. (I have not even seen a doc do those other two tests unless they think you have cancer.) Anyone who has any TSH levels at all on blood testing does not have a pituitary dysfunction as this is a rare disorder where your brain does not make TSH or makes very little and it also usually won’t make ACTH for the adrenals either. So it would be hypopituitary dysfunction which comes with a host of symptoms…you’d know if you had this.

Thinking about giving your ASD kiddo Miralax, think again…

I’ve read alot of parent reports citing negative things happening once they added Miralax to help with their child’s constipation. I know alot of DANs recommend it and Dr. Kartzinel has mentioned it in his new book written with Jenny McCarthy.

We all need to make our own decisions for treating our children, but it’s important to note that we must still continue to research supplements and treatments that our DANs recommend. Biomedical treatments for autism are still relatively new and it’s impossible for any doctor to know everything about everything associated with autism just because they are DAN doctors – especially with the rate of progress parents and doctors are making in figuring out how to get our kids into recovery.

Anyway, I just wanted to post a few links for you to reference should you be considering Miralax for your ASD child. We’ve used oxypowder for Nicholas for quite some time and it’s always proven to be effective and gentle. You could also try using Vitamin C until he/she hits bowel tolerance. (Bowel tolerance is when you get diarrhea – so you ease up a bit on that dose and you have found the dose that your child will tolerate without causing diarreah.)

Info about Miralax

Thread on Miralax

Parent Story

Info about the Dangers of Miralax, esp for gut damaged kids

Miralax Warning

Here’s a search on autism & miralax – eye opening!

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