The cold bug bit Nicholas

Ug! Nicholas started getting a cold yesterday right along with the rest of us. Poor thing keeps telling us his tongue hurts when really trying to tell us he has a sore throat. He keeps wanting band-aids for it.

Preparing your child’s supplements… there is an easier way!

I’ve been preparing Nicholas’s powdered supplements a week at a time for a long time – but before I found these pill containers, I was opening capsules several times a day every day. If you do the same thing I did, then you know that it’s just exhausting. So, I figured I would share what I do just in case it can help someone….

I bought several sets of these Vitaminder Pill Case Stacker Containers: http://www.iherb.com/ProductDetails.aspx?pid=5977
(Get $5.00 off your first purchase at iherb.com with code: TUM744)

For Nicholas’s supplements, I have his doses split up in 4 doses which I give throughout the day. The first one is given either before he wakes up or as he wakes up. The second he gets after school. The third he gets after dinner. The fourth one is given right before bed or he takes it with him to bed.

So I need 4 containers for each day. In the photo below, you are seeing 5 days worth of containers:

Supplement How-to - Step One

I made myself a map in microsoft excel which shows me which supplement goes into which container – which really helps me to do this efficiently and without making mistakes. Note: I do not add any enzymes or enhansa (curcumin) into this mix.

Next, I go through the capsule section of my map and add the capsules to each container:

Supplement How-to - Step Two

Next, I take one little container at a time and open each capsule, carefully emptying the contents into that container:

Supplement How-to - Step Three

Next, I add the supplements I have in powder form such as Vitamin C, Inositol, Amino blend, etc.

Then I put them together keeping them in 1 – 4 order from top to bottom, so I am always using the top compartment first.

Supplement How-to - Step Four

Putting together his supplements this way has reduced the time dramatically. Now I just add his liquid supplements to a glass bottle, add one compartment of his powdered supplements and some pear juice and shake.

PS – If you are adding a new supplement one week – DO NOT add it to this mix – wait until you know it’s a keeper. If your child responds negatively to that particular supplement, you will be wasting days worth of supplements at a time.

Here is a print-screen of the excel spreadsheet I keep so that doing this is quick and easy:
Supplement Map

If you would like to download the blank template that you can manipulate to your liking, click the link below:
Supplement Map – Excel template

Supplement Discounts

I try to make it a point of buying Nicholas’s supplements from places that give me the biggest bang for my buck without risking loss of quality. So, i am sharing these with you… hope someone can get some use out of them! (and if you’ve got a discount to add, email me!)

  • Vitacost.com – first, click here and get your $10 coupon, then sign up for a free ebates account here to get 5% back on each purchase!
  • iherb.com – Get $5 off of your first purchase with code TUM744
  • OurKidsASD.com – you can usually find a code on AgeofAutism.com for free shipping on orders over $40 – and they carry alot of the supplements listed below including Kirkman and their customer service is top-notch!
  • Enzymedica – if you are using any high-dosage protocols of Virastop, etc., you may be better off ordering from either getbigger.com or order from Theramedix (Enzymedica’s more potent line)
  • Kirkman has a monthly newsletter which usually contains a coupon code, so you should sign up for the Kirkman Family Program here
  • LuckyVitamin.com has free shipping if you spend over $100 – they are very slow to ship, so don’t order from here if you need something in a hurry.
  • Many doctors have supplements relabeled with their own labels – sometimes saving you money, sometimes not. Anyway, compare what your doctor has sold you to the supplements at Klaire, ProThera, Douglas Laboratories and Kirkman Labs and see if you are actually getting a good deal or not. (These companies offer labeling services for doctors, so compare the ingredients and find out where they’re getting them from!)
  • Skipping chelation this weekend

    Just taking a break…. I need some sleep! 🙂

    Increased Enhansa dose

    I increased Nicholas’s dose of Enhansa to 150mg today.

    1/25/09: doing well on 150mg — nothing like when we first started – thank goodness for small miracles!

    Round 19: Complete

    Just keeping count.

    Amalgam Removal

    I had 2 of my possible 3 amalgams removed last week. I say possible, because one is a crown and we don’t know what is under it, even with x-rays – so until the crown is replaced (soon, I hope), I have to assume it’s an amalgam.

    If you haven’t already seen the smoking tooth video, you must see how a mercury amalgam continues to release vapors. I just could not take the risk of leaving them in any longer.

    The International Academy of Oral Medicine & Toxicology has a doctor finder and proper removal instructions on their website, click here to go to IAOMT.org.
    Click here for Safe Removal Instructions

    I am having these removed for several reasons – the first and most important one is I have witnessed first hand what mercury can do to a person. Two, when I received my epidural, the 2nd shot which came out of a multi-dose vial, my hearing turned robotic – meaning, every one, every sound, every word sounded like it was coming from a robot. The anesthesiologist looked at me like I was crazy, repeating that it was normal to “taste” metal and he was insisting I was tasting it and not hearing it. After practically freaking out and repeating myself over and over, my hearing went back to normal. I had not thought about this until after my son was diagnosed – and to this day, has me wondering if this was not one insult of many to his little body. After researching this, I found that a hearing issue like this could be from the anesthesiologist placing the epidural incorrectly and rupturing my dural space. (Incidentally, this is a malpractice offence, so it no longer surprises me when he looked at me in this manner.) Aside from the doctor screwing up, no one can answer the one question that seems so simple to me… what was in this epidural which would have caused my hearing to turn metallic? What is in this epidural in which tasting metal would be a normal side effect? Could the epidural contained a chelating agent like EDTA which perhaps pulled mercury from my filling sending it into my bloodstream and as a result into Nicholas’s bloodstream? I just don’t know. I don’t have answers to these questions. Before Nicholas was born, my mind was sharp – I could remember details of conversations verbatim, I would remember everything without having to write things down. Overnight, I lost that ability. One day, I had a clear, vibrant mind and the next I felt like I was in a fog – and still do to this day. Is all of this connected? Possibly. I’m not spending any more time trying to figure out out. When Nicholas was born, I wanted another baby – and clearly remember telling my husband that I did not want to wait until he was even one to try again. Well, life happens and interferes, so we were waiting a little longer – then Nicholas disappeared in front of our eyes and having another child was no longer on the table for me. I want to get to the place where I can say, “yeah, let’s do this again! We won’t vaccinate and he/she will be fine.” But I just can’t get there. Maybe once my amalgams are out and I have a hair and urine panel run, and Nicholas is almost recovered, I will feel differently. I worry about Nicholas after we are gone. I worry about who his family will be. I worry that feeling a younger brother or sister who is NT to look after him is just selfish on my part – and putting a huge job on a child who isn’t even conceived yet. And then worrying if that child won’t think the only reason she/he exists is to help his/her brother – which isn’t even remotely close to the truth.
    And then I dive into research studies which just lead me to keep asking the same question — How many diseases and ailments start with heavy metal toxicity? More than you can even imagine. So, aside from getting my mind back, I would like to be pro-active at taking charge of my health and the first step for me is removing a huge source of toxicity. Will Nicholas ever have a sibling? I don’t know. But what I do know, is that we are done with mercury in this house.

    Nicholas got dressed….by himself

    So, when Nicholas got up this morning he was all wet, so I stripped him down and changed his diaper and came downstairs to throw his sheets and stuff in the wash. 5 minutes later, Nicholas comes downstairs FULLY DRESSED!!!! in a matching outfit that was hanging in his closet!

    Current Master Supplement Listing: January 2009

    Note: For info on these supplements including where to buy them, visit my Supplement Directory page.

    Changes since the last update are:

  • Stopped Virastop & Mucostop: Haven’t seen any difference in Nicholas since stopping these several weeks ago. I will add back in the future if needed & will give Mucostop when he has a croupy cough
  • Stopped Grapefruit Seed Extract & Saccharomyces Boulardii: haven’t given this in weeks. Between the enhansa and fluconazole, we have not seen a yeast flare.
  • Only Probiotics being given at the moment are Culturelle 2x per day, Living streams 2x per day and 1 Pro Bio; When Pro Bio runs out, I will be replacing it with Klaire’s Detox Probiotic
  • Increased Vinpocetine, Acetyl-L-Carnitine, DMG, Inositol
  • Added: Phosphatidyl Serine, Ubiquinol (coQ10), George’s Aloe Vera, Glucosamine
  • Decreased: Biotin
  • Changed EfferC back to Kirkman’s C
  • Vitamins & Minerals
    Brainchild Advanced Sensitive Vitamin Formula & Mega Minerals
    MB-12 Injections
    Kirkman’s Buffered Vitamin C – 1/8 teaspoon 4x per day
    Carlson Vitamin D3 (cholecalciferol) – 2000 IU
    Vitamin World Natural Vitamin E (d-alpha tocopherol plus d-Beta, d-Gamma, d-Delta tocopherols – 800 IU
    Kirkman Biomax Zinc– 20mg – 3 capsules/day
    Inositol Powder from Kirkman – 3 scoops/day = 1.5 grams
    Biotin – 10mg given 3 times/day = 30mg

    Omega Fish Oil / Cod Liver Oil / Essential Oils & Fatty Acids
    Nordic Naturals Complete Omega 3-6-9 Liquid – 2 teaspoons
    Green Pastures Blue Ice High Vitamin CLO – 1 teaspoon
    Evening Primrose Oil – 2 capsules = 1000mg (includes 90mg GLA)

    Probiotics
    Culturelle 2 capsules per day
    Super ProBio 1 capsule per day
    Living Streams Probiotic 8 drops 2x per day

    Amino Acids
    Kirkman DMG (125mg) with Folic Acid (400mcg) and B-12 (6 mcg) – 9 Capsules per day split in 3 doses
    Kirkman GABA – 250mg – 3 capsules/day
    L-Theanine (Suntheanine) from Nutricology- 100mg capsules – 1 capsule 3x per day
    Custom Blend from Metabolic Maintenance
    ProThera Acetyl-L-Carnitine1500mg per day

    Anti-fungals & Anti-bacterials, yeast-fighting, etc.
    Enhansa from Lee Silsby75mg per day

    Enzymes
    Kirkman Enzym-Complete/DPP-IVV – 1 capsule per meal
    Enzymedica Virastop – 3 capsules/day (Protease Enzyme Supplement)
    Enzymedica Mucostop – 2 capsules/day
    Houston Nutraceuticals No Phenol – as needed for phenol effects
    Houston Nutraceuticals Peptizyde – (as needed)
    Houston Nutraceuticals Zyme Prime– (as needed)

    For the liver
    Liver life (1 dropperful 4x per day)
    Milk Thistle Extract (5 drops 3x/day)

    For constipation
    Oxypowder(to keep his bowels moving) – only as needed (this stuff is fantastic!) – just a sprinkle here and there (haven’t needed this since we started chelation)

    Other
    Vinpocetine10mg 3 times per day
    Creatine625mg per day
    4Life Transfer Factor Classic – 200mg – 1 capsule 3x per day (will soon be trying a higher dose on this as well)
    Ubiquinol (coQ10)50mg 1x per day
    Georges Always Active 100% Aloe Vera – 1 tablespoon per day (working up to 2)
    Omega-3 Glucosamine (with Condroitin) – 1 capsule per day: 500mg Glucosamine & 33.3mg Condroitin

    Things that just did not work

    So, of course, there were things along the way that did not work for us for one reason or another – and I am going to record them all here – I’ve written about many of them throughout the blog, but in case you miss them, they’re listed here – and I will also list the reasons as to why. Please, oh please, do not decide not to try something just because I have mentioned it here. If you think something might work, TRY IT. Perhaps the reasons these things did not work because my son’s body just wasn’t ready for them – and maybe they’d work for him sometime in the future or maybe these are just things which he does not need.

    – Kirkman’s Yeast Aid: The taste of this was the main reason I discontinued this supplement – Nicholas drinks some pretty nasty supplement cocktails, but this one just did not work for us.
    – Kirkman’s DRN Formula: The taste was one of the reasons I discontinued this supplement. The other was that the Brainchild formulas were clearly working better for Nicholas, so I switched back. (DRN was suggested by our dr’s office – I would have never switched otherwise) PS – I know lots of people having fantastic results with this.
    – Brainchild’s Yeast Program – This did not work for Nicholas – it really did not do anything to impact his yeast. Also, with our experience and everything I have read, I do not agree with rotating of anti-fungals every so many days. That’s a great way for the yeast to build resistance with exactly what you are trying to get rid of them with. Pick an anti-fungal and use it until it no longer works, then pick something else and try that.
    – Glutathione Lotion – This made Nicholas an absolute raving maniac. I used it for a while on and off when we started hbot. His gains overshadowed the crazy from adding this. Then when I reintroduced at a later date, I could easily see how it was effecting him. (Give this a fair try before you dismiss it though, as it could prove to be beneficial)
    – Capsule based Grapefruit Seed Extract did nothing in comparison to the liquid drops.
    – Micellized Vitamin A – our kids should not be taking this version of A on a daily basis. Jepson and Megson both write about this. Our kids need Vitamin A from natural sources, not synthetic. (If you are doing high-dose vit A protocol, then you need to use this because you really dont have a choice) – Try GreenPasture.org for their high vitamin CLO instead.
    – IP6 – Inositol Hexaphosphate – I tried this because I believed Nicholas could have had an iron-overload. Had that been the case, we probably would have seen improvement with this supplement, but it did nothing, so I discontinued. (I would be careful with this one, it can chelate iron and other minerals – so don’t just try this on a whim)
    – Compounded L-Theanine: This was a waste of $150. I saw no improvement in Nicholas – – and yet, a bottle of L-Theanine for around $20 worked so much better.
    – Numbing Cream for Mb-12 shots: This never worked for us. They don’t tell you until after you buy it that it does not work for all kids. Not to mention that you need to possibly disrupt your child’s sleep TWICE – once to put on the cream and then the 2nd time to give the shot. The element of surprise worked much better for us. Once and you’re done. (The Mb-12 shot feels like a mosquito bite, by the way)
    – Brainchild Intestimend: I tried this, finished the whole bottle and did not see any improvement, over the couple of months that we used it, so I did not re-order.
    – Kirkman Pro Bio Defense: This brought out OCD in my son, so we discontinued.
    – Iron – Nicholas only gets iron supplementation when truly warranted by bloodwork – as should all ASD kids.
    – Olive Leaf Extract: The liquid version of this stuff tastes like liquid swamp. Not even grape juice can cover it up.
    – Saccharomyces Boullardii – I still give from time to time, but I seriously do not see any gains from it.
    – Custom Probiotics – CP1: Didn’t see anything from these at all, so I discontinued. Shame since I hear raves from other parents all the time.
    – Lumina Health’s Cell Food: This has questionable ingredients. You can search this blog for more information as to why I discontinued it.
    – Kirkmab CoQ10: Didn’t see any gains from this — I wonder if I hadn’t gone high enough on the dose. I may try this again in the future.
    – Folapro – made nicholas nuts so I went back to the Folinic Acid. I may try the Methyl Folate from ProThera and see if he responds differently.
    – Candex – I never saw that this helped with Nicholas’s yeast issues.
    – Capryllic Acid – Never saw this help with his yeast too much either.
    – Epicor – I couldn’t get him to drink his stuff with this in it.
    – NDF+: It’s not that it didn’t work – I purchased this a while ago and have decided that I will continue on our chelation path as is. I have read way too many stories of regression or wonderful progress followed by regression – that it’s a little scary. So, I’m putting this one aside.

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