What did you do at school today?

“What did you do at school today?” is a question I have been asking for over a year and have never received a response to – until this past Wednesday, that is.

Nicholas rambled on the longest sentence I ever heard – and that includes baby babble sentences and real ones. A good portion was not understandable other than several “and then”s and “puzzles” “snack” and “bus” My husband and I stood there dumbfounded. He told us about his whole day at school – oh how I wish it had all been understandable. But this was a major accomplishment – and we are just thrilled.

Instead of buying designer handbags, I buy vitamins instead…

and I use “designer handbags” merely as an example because for what we spend in a month in vitamins, I could have a closet loaded with a plethora of designer handbags. (Not that I would, I’m a one handbag kinda girl.) Instead of Gucci, Mark Jacobs, and Prada; names like Nordic Naturals and Kirkman are the ones I’m shopping for.

So, in lieu of that Mark Jacobs bag I have been eyeing lately, I spent several days researching which supplements we are going to try next. Here’s what I bought and why:

  • Carlson Vitamin D3 drops (I don’t think Nicholas is getting enough D)
  • Calcium Chewables (He’s not getting enough calcium either)
  • Pycnogenol – botanical antioxidant which is one of few which can cross the blood-brain barrier and directly enter neurons. It is a powerful scavenger of free radicals and therefore can help relieve the oxidative stress that is common among children with autism, adhd, etc. Studies have indicated that it is a more powerful antioxidant than C and E. It can act as a powerful anti-inflammatory, when used in higher dosage. Because free radical damage and inflammation are components of so many diseases and disorders, pycnogenol is used as an element of nutritional therapy for a wide array of problems ranging from asthma to arthritis to ADHD to heart disease. It does not appear to have significant side effects and is generally well tolerated. Bock recommends 25-200mg per day depending on size, age and other treatment and indications
  • Creatine Powder (His blood and urine levels were low) – This is an amino acid which is often low in autistic children partly because its metabolism can be blocked by mercury. Creatine is involved in energy transfer, in both brain and muscle – detox is one of the cellular processes that is energy-dependent. Low creatine is believed to be the cause of deficient expressive speech among some autistic kids. (more about creatine in Bock’s book)
  • Glucosamine –
  • B-6 Capsules (I don’t think he is getting enough B-6 either, so we’re going to add a little bit more and see if there is any improvement)
  • Transfer Factor
  • Ubiquinol – (I bought this to replace the CoQ10 which didn’t show any improvement)
  • Acetyl L carnitine –
  • Folapro (I bought this to replace the folinic acid to see if there is any difference)
  • I’ll add more info on these supplements later.

    One Fish Two Fish

    Every day that passes is better than the day before. Today, Nicholas sat at my desk and had me read, “One Fish Two Fish Red Fish Blue Fish” by Dr. Seuss 3 times in a row. Then he had Daddy read it to him one more time. The significance of this is just huge. For one, Nicholas never sat still with us and had any interest in having us read him a book and if I did sit and read to him, he wasn’t paying much attention at all. But everytime I finished, he would pick up the book and hand it to me and ask me to read it again. And he was paying attention to me reading the book. We’re getting there one day at a time.

    Welcome daddy!

    I just wanted to welcome Nicholas’s Daddy to the blogosphere. He added his first entry earlier tonight, believe it or not, he’s been wanting to add it since August – but you know how life can get! I adjusted his entry to keep the entry consistent in his journal, but wanted to link to it here – and just say, Welcome Daddy!

    Our Day in the Backyard – by Dad

    Trying capryllic acid for yeast

    We’re a few days off of nizoral and I think yeast is starting to once again rear it’s ugly head. So, I just gave Nicholas some capryllic acid, so we’ll see if that works. It seems like we are always fighting yeast in this house.

    Updated 11/07/08 – yesterday I’ve been trying Kirkman’s Yeast Aid to see if that’ll help with the yeast. It has capryllic acid in it. We’ll see…. (dose: 1/8th teaspoon 3x per day)

    Updated 11/08/08 – dose 1/4th teaspoon 3x per day – no die off yet. Even with GSE, Oregon grape extract and candidase/candex and 10mg biotin 3x per day – geez, what does it take??????

    Updated 11/09/08 – Dose 1/2 teaspoon 2x per day. Increased GSE. Removed Oregaon Grape. Giving 2 candidase & 1 candex twice a day. Here’s to hoping…

    Increased Vitamin D today

    In addition the D he is already getting, I’ve added more so he gets a minimum of 2000IU per day. (we’re all taking D around here – let’s hope it keeps the flu away!)

    What do you predict the rate of autism will be in NJ by December 2010?

    As you may or may not already know, NJ has mandated the addition of new vaccinations to the schedule this year. One being the flu shot which is to be given to babies and school-aged children from 6 months of age through 59 months. So, if your child is school aged or is in daycare, it’s either vaccinate or….. (file a religious exemption! You can do it, but they’ll never inform you of your options when it comes to vaccinations.)

    The rate of autism in NJ boys currently stands at 1 in 60.

    So, let’s try to look down the road a couple of years – when those 6 month old babies who received not one flu shot, but two this year (first dose is two shots), one in 2009 and one in 2010 – and they are just turning 2.5 years old in November/December of 2010. And let’s not forget the enormous push this year for all pregnant women to get the flu shot – so that’s the first one before they are even born. Are their pediatricians still going to tell tell moms not to worry because boys talk later than girls and let’s wait and see? Will those same pediatricians think nothing of the rapidly increasing amount of kids with developmental delays during such a short time frame of 2008 to 2010? Will they still turn a blind eye and say, “vaccines are perfectly safe, this is genetic, stop looking for someone to blame”?

    But, my real question is, what do you predict the rate of autism will be in New Jersey by December 2010? and even better yet, What do you think the excuse will be from those on the side of “the studies have already been done – there is no link”? Even better diagnosis than what they’re saying now – or wait, perhaps they’ll attribute the increase to an influx of pediatric neurologists into the state of NJ, hence relieving the long waiting lists and they’ll say they’re able to diagnose more children per day than ever before because there are simply more neurologists doing autism diagnosis.

    Do you think they’re already meeting to discuss what the vaccines don’t cause autism propaganda marketing will look like in 2010 when this rate will rise in line with the mandate of the additional vaccines?

    What about asthma? What about adhd? What about allergies? How will those rates climb? Will physicians still turn a blind eye because their belief system trusts the vaccine industry?

    It makes me truly ill to think about all of the additional children that will be harmed because of this – but maybe, just maybe, some good will rise from it – when the link becomes absolutely undeniable that vaccines do cause autism. When a croud rallying for safer vaccines, a safer schedule or conscientious exemption turns from a small crowd into one so large that it can no longer be ignored.

    Round 9 Complete!

    Same dose as last time – another round down. Many more to go….

    New Supplement added today

    I am trying Folapro instead of Folinic Acid to see if this will work better for Nicholas. I have read of parents having great results from adding folapro that I figured I would give it a trial and see if there is any difference for Nicholas. If not, then we’ll go back to the Kirkman Folinic once the folapro is empty.

    Update: We’re going back to Kirkman’s Folinic. The folapro is causing really bad weepy episodes. Win some lose some.

    Another Amazing Day!

    So, add today to the list of amazing days lately. It seems like we are on a roll – and I hope this is the beginning of a good long amazing stretch!

    Lots of differences were noticeable with Nicholas today….

  • Early today, we were in the hbot chamber and the dvd player died. We had about 20 minutes left to go and I really wanted to make it to the finish line and not get out early. Nicholas and I fooled around, tickled, and just spent 20 minutes laughing and having a good time. In the past, had that happened, he would have wanted to get out instantly to get the new battery for his dvd player. There would have been no fooling him into staying in there without it.
  • For no reason at all, other than to be silly, I said “one potato two potato three potato four” – I was just fooling around being funny trying to make Nicholas laugh. He put up his fists and started playing with me (I was only saying it, I wasn’t doing the hand motions) – and reciting it. Then, he continued, “five potato six potato seven potato more” – Where he got this from, I have no idea – my only guess is school. But wow. This was so unexpected. When daddy got home, I told him to say “one potato” and Nicholas promptly did it again.
  • We took a ride to see Nicholas’s grandparents tonight. We don’t get there often, but both of Nicholas’s grandparent’s houses are loaded with toys for him for when he’s there. When we got there earlier today, the only toy out was his Geotrax Train Station. That would usually last him 30-45 minutes, then he would be looking for more. He’d be headed to the attic to pull down ALL of his other toys – and by the time we would have left, it would have looked like Toys R Us the day after Christmas. Not today. He played with that train set, sat at the table nicely playing play doh with us, played with the train set some more. It was almost shocking. No trips to the attic for more toys. No trying to hold Nicholas back from him going into their attic. He was a perfect angel. Perfect.
  • So, we’re on the way home and we have quite a ride since my parents live about an hour and a half away from us. We left late and Nicholas watched his Curious George dvd all the way home. He was animated like never before. Talking back, laughing, you name it. At one point, he was yelling “watch out” at the screen. When we pulled into the driveway, he said, “Mommy’s what’s that?” as he pointed at the screen. He said it twice – clear as a bell. Since I was driving, I have no idea what he was asking about, but I’m just so happy he asked the question – and I hope there are many more coming.
  • With days like today, who can blame us for NOT wanting to ever put our son to bed? Here’s to tomorrow. 🙂

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