“The last three weeks have shocked us!”

I just spoke with Nicholas’s preschool teacher… here’s her update:

She said that Nicholas is doing great!  They are having so much fun with him.

He chooses what chair he wants to sit in for their circle time.  He no longer has to be seated in a chair with a seatbelt!   (Circle time happens at the beginning of class after the kids enter the classroom.  They sing the hello song and each child gets to bounce on the big bouncy ball as they sing to him/her.)  Now, Nicholas will get up to go to the ball to bounce whereas before the teacher had to go pick him up and bring him over.  She says he laughs and smiles the whole time.

They sing 3 songs throughout the day and Nicholas claps to all the songs.

He’s imitating other kids.

He’s choosing his own activities and loves blocks and playdoh.

Doing really well with parallel play with the other kids.  He used to get upset if a child took a toy from him, now he looks for the teacher/aide to intervene and help him get his toy back.

She said she is really pleased with him.

Transitions are still difficult with him.

They are using pictures with him which is working well.

She said his language is just exploding.  he’s attaching words to everything.  She says blue chair, he says blue chair.

She said he’s turned a fishing game into an entirely different game.  He loves to grab the fish that the kids have caught and put them back into the water.   He loves playing this game.  I told her about the day he came home and told us that he went fishing with mikey when we asked him what he did at school that day.

He says he’s doing amazing… that he’s really getting it.

She’s very positive about him.  He laughs and giggles all the time.  He is making constant progress forward.

They are working on getting him to not say, “help!” or “help me” – as are we.

When I asked specifically how the last three weeks or so have been, she said, “The last three weeks have shocked us!”  They can see a major difference in him.  She said he’s very funny and they’re just seeing this delightful child emerge.  She said that when he first started school, they saw 5% Nicholas and now they’re seeing 80% Nicholas.   (From mid-October to the end of May, that’s fantastic!)

Progess Update

We’ve continued to dive twice a day for 1 1/2 hour each dive – and continue to see gains.

Did I mention that Nicholas has stopped throwing up?  He seems to be tolerating food much better – he hasn’t thrown up since we started hbot. 

He’s acknowledging us more and more everyday.  We can no longer sneak passed his bedroom door.

He is responding to us when we speak as though he actually understands what we are saying.  He nods yes and then when we ask him to say yes, we’re getting YES!  He just answered a question daddy asked him with a big “ok daddy” – sometimes he says Otay too, which is very cute!

Tonight he was asking for more pizza, “more pizza please mommy” over and over again – yes, he ate about 5 slices, no kidding – he has quite the appetite.

14 days of hbot are behind us

We’ve done about 27 dives so far, and will do another dive tonight making it our 28th dive.  We still have 32 more dives to go and we could not be happier with Nicholas’s progress.  Seeing him come so far so fast is like an absolute dream come true. 

What a different kid!

So, we just spent a couple of hours outside with Nicholas.  Just hanging around the house, in the backyard, in the front yard, etc.  Boy, is he a different kid!  Usually, we’re outside, running down the street to either walk with him or bring him home.  Or if we’re in the backyard, he’s doing his thing (either in the sandbox or with his toys) and we’re cleaning up the yard while keeping our eyes on him.  Today, however, that child seems to be only a memory.  Today’s Nicholas played in his sandbox for a little while, but quickly joined mommy to help her with her gardening.  I was using the big clippers to trim some shrubs and Nicholas came running over, “scissors, mommy scissors” and I had to let him use the “scissors” to trim the shrubs.  First of all, the Nicholas we knew wouldn’t care what we were doing as long as he was content with what he was doing.  The fact that he was even paying attention to what I was doing was HUGE.  The fact that he now wants to be with US and not off doing his own thing is also HUGE.  The fact that he left playing the sandbox, which he loves, to help me with anything is HUGE.

We spent some time just sitting on the swing, just Mommy and Nicholas having some iced tea.  He wasn’t in a hurry to run off and play, he just hung out with me, enjoying the swing.  He saw Daddy’s iced tea from across the yard, jumped off the swing and went and got his iced tea for him.  I was amazed he even saw it from that distance.  Impressive to say the least. 

So, we left the backyard and around the front of the house and Nicholas came too.  There was no tantruming because he wanted to stay in his sandbox and play, which in and of itself is progress… major progress…  Us leaving our backyard before HE is ready usually equates to Mommy or Daddy carrying a tantruming, screaming Nicholas around the house, through the front door and upstairs to his room so he can calm down. 

He just hung around us and was with US.  We weren’t on HIS schedule, doing HIS stuff, following HIM around.  Amazing.. just amazing.

Watch Out!

Just had to post a few things Nicholas is now doing…. all of them are blowing us away….

 While playing with his trains on his train table in his bedroom, Nicholas has been very vocal making the sounds of the trains and cars.  Tonight, he added, “Watch OUT!” to his playtime.   Each time, setting up little lincoln logs on the track and when he brings the train around, he’s yelling watch out as he barrels through them.  So cute – and unbelievable.  He’s also saying “Oh No” when the train falls off the track.

Nicholas is saying hi when you walk into his room or passed him.  Before he never said a word, especially if he was engrossed in something.

He is continuing to answer yes/no questions.  Sometimes he answers yes with a nod.  He’s using the sign for more along with saying “more” – we haven’t seen him do this in a long time.

Tonight, I was telling the grandparents how this morning, we tried and tried to wake Nicholas up, but he just kept sleeping – until finally I said, ‘Nicholas, the school bus is coming to pick you up” – then he immediately got out of bed and came running down the stairs to catch the bus in his pajamas.  (luckily we still had some time to get him ready)  As I am telling the grandparents this, Nicholas comes running out of his bedroom and down the hall to get the school bus (it was 9pm.)  Not only did he understand what I meant, but he HEARD me a good 20 feet away – I was downstairs in the livingroom and he was upstairs in his bedroom!

He went outside a bit early to wait for the bus and said to me through the window, “mommy, school bus coming to take me to school?”  Daddy and I both heard it – and he said it twice.

He took Grandma and Grandpa downstairs to see his spaceship – he is very proud of it.  So nice to see!!!!!!!

He knows what money is and knows his quarters, nickels, dimes and pennies.

I dont want to jinx him, but Nicholas was throwing up quite a bit before we started hbot.  Not sure if it was being caused by a mucousy cough which is now gone, but he seems to be keeping down foods much much better than he was.

I have not had to give Nicholas his oxypowder since we were a few days into hbot.  He’s pooping once or twice a day with no problems – we’ve never seen this so good.

HBOT update

Just wanted to post an update before I forget… 

Nicholas has continued to improve during his hbot treatments.  He is just so much more aware than he was, it’s amazing to see.  Yesterday, the phone rang and he brought the cordless phone to me – I was shocked – in the past, the phone would ring and it wouldn’t even effect him, even if he was sitting right next to it.

He’s really repeating everything that we’re saying – we’re able to help him build sentences on what he wants to say and it seems to be sticking.  He is following directions better and answering yes/no questions consistently.

We’re MIA – on a spaceship to Mars

Sorry I haven’t posted in a while, we’ve spent the last week doing HBOT with Nicholas.  We’ve been doing 1.5 hour dives twice a day – and we’re being optimistic that it’s working because we are already seeing gains. 

After one week of HBOT, we are seeing a different child emerge.  Where he used to say “help” – we’re getting “Help Me Please Mommy”.  He’s even going to the freezer, pointing at the blue dino-nuggets bag and saying, “More Chicken Please Mommy” – and yesterday, I added nuggets in there, “More chicken nuggets please mommy”   We’re getting “Thank you” out of him consistently.  And almost every time I ask him for a kiss, I actually get one.

He’s sitting in the HBOT with his portable DVD and when he’s done with the one he’s watching, he says, “DVD mom” – I ask him which one, Diego, Thomas, Trains, Jay Jay, etc – and he actually ANSWERS me – I hand him the dvd, he opens the player, takes out the old one, puts in the new one and gives me back the old one.

He’s engaging us constantly – having fun, laughing, starting conversations – which is so impressive.  and we’re understanding more of his words.  The gibberish is turning into real words we can actually comprehend and appropriately respond to instead of pretending to know what he means, when we really don’t.

His eye contact is at a much higher level than it was before – he seeks us out constantly for attention.  Last night, the grandmas and grandpas were over for grandma’s birthday and he wanted people around him in the livingroom whether it was playing or watching TV.  He doesn’t want to spend long periods of time by himself anymore. 

On May 13th, he threw a toy which hit a friend of ours in the foot causing him to say, ‘Ouch!’ – Mom told Nicholas to say, ‘I’m Sorry” – Nicholas turned to our friend and said, “Sorry Russ” – we were just blown away.  Not only did he get that he did something wrong, but he put the Ouch together with what he needed to be sorry for. 

On the 12th, he repeated mom when she said, ‘got it babe?’  (in addition to everything else he’s been repeating)

On the 15th, he started with the larger sentences like “more chicken please mommy” and “more iced tea please mommy”

He ran out to grandma’s car and said, “hi mom, how are you?”  (He calls his grandma’s mom too – which I hope he calls them grandma soon)

2nd Attempt

Today, we had to complete 2 dives with Nicholas in order to take the HBOT chamber home with us for 30 days.  Daddy’s been sick, so it was all on Mommy.   Anyway, armed with a DVD player and an assortment of DVD’s, Nicholas did really well in the chamber and even fell asleep.  (It was a 180 degree difference from the prior week.)  We took him out to a nice lunch at the Rainforest Cafe, where he loved watching the fish, and then returned to do our 2nd dive.  We made it through, thank god, and Daddy packed the chamber in the car and we were on our way.

First HBOT appointment

We went for our first HBOT dive and training today, because we have decided to rent a chamber for a month to see how Nicholas does with it.  Well, after spending over $100 bucks at Toys R Us last night, I was able to get him to get in with me with little problem really.  (SHOCKING, all in itself that he actually got in.) He did really good drinking his juice and eating his juice snack treats (to pop his ears during the pressure) and we did really well for a little while.  Then all hell broke loose.  He saw the zipper loop hanging down and just had to pull it.  I fought him for what felt like an eternity, both of us dripping wet with sweat – he was screaming, crying, yelling in my ear – he just wanted to get out.  So, that ended that session.

So, we tried again with Daddy – and he did better this time, but did get ansy and wanted to get out at as well.

We left for lunch and went back and he did much better this time.  We’re almost to an hour with him, so we’re keeping our fingers crossed.

 Right now, we’re not even trying the the mask on his face.  We’re holding the oxygen tube about 6 inches away from his mouth – and when he notices us, we have to pull away and inch up again.

Pre-HBOT ATEC checklist

For our own measurement, I filled out the ATEC (Autism Treatment Evaulation Checklist) form.  Click anywhere on the form to view.

Nicholas’s ATEC Pre-HBOT

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