Archive for the ‘Journal’ Category

December HBOT hours

12/01/2008 – 3.0 hours 12/08/2008 – 2.0 hours 12/10/2008 – 2.0 hours 12/11/2008 – not sure 12/13/2008 – 3.0 hours 12/14/2008 – 1.5 hours 12/15/2008 – 2.0 hours 12/16/2008 – 2.0 hours 12/17/2008 – 2.0 hours 12/18/2008 – 2.0 hours 12/19/2008 – 2.0 hours 12/20/2008 – 2.0 hours 12/21/2008 – 2.0 hours 12/22/2008 – 2.0 […]

Obsessed with water

So, Nicholas was always partial to playing in the sink with water. The sink mostly, sometimes you could persuade him to get in the tub and play. But what I called a water obsession back then was nothing like I am calling a water obsession now. Ever since we started the Enhansa, Nicholas is back […]

Current Progress

Some new things Nicholas is doing….. – He is asking “what is that?” – and pointing to things – and then repeating what I tell him it is. – He is asking “what are you doing?” – and really wants to know – and help where he can – His sentence structure seems to be […]

What a wonderful Christmas…

We had a wonderful Christmas Eve and a wonderful Christmas day. On Christmas Eve, we went to Grandma and Grandpa’s house as we always do. We ate dinner – and I was really surprised Nicholas did not go tearing through all of the wrapped gifts. He was really patient until we were done eating, but […]

The Bucket List

I finally saw The Bucket List last week. What an amazing movie. Touching. Sad. Funny. Tear-jerker. Thought-provoking…. So, here’s my Bucket List…. – Recover Nicholas from Autism – Prevent another child (or children) from following down the same path as Nicholas – Enjoy one day at a time and enjoy each moment for what it’s […]

Happy Holidays!!

I just wanted to with you all a Merry Christmas! Happy Hanukkah! Happy Kwanzaa! Feliz Navidad! Froliche Weinachten! Happy Holidays! I hope 2009 brings us all that much closer to getting our children back. 2007 was a pretty crappy year for us and for Nicholas. 2008 was amazing in comparison. I have high hopes for […]

Round 15: Complete

Another one bites the dust.

Update 3 on Enhansa

Dropping the dose to 1/2 (75mg) per day was the right choice to make. No more crazy Nicholas. No more regression. Thank goodness. Only thing is that he’s still obsessed with playing with water like he was ages ago, but other than that, he’s doing really well.

Update 2 on Enhansa

Nicholas has been on Enhansa for about 3 weeks now. The first week, the die off was insane, but we pushed through. Now, he has regressed – and I am hoping this is a healing regression – and he will come out the other side doing better. I did drop his dose down by half […]

More of Nicholas

Every day, every round of chelation, we see more of Nicholas. He’s now asking “where” people are. Yesterday morning, he got out of bed and said, “pee pee in the potty – bathroom” – and he did, his diaper was dry and he actually peed in the potty! This was totally unprompted. Yesterday, when the […]

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