We started Nystatin today.
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Last mHBOT day
June 9th, 2008 
Mom Today was our last day with our hyperbaric chamber and this completes our first round of 60 dives; 2 dives per day, 1.5 hours per dive (not including compression and decompression) Nicholas continues to blow us away on a daily basis. We have purchased our own chamber, so we will be starting again soon. I’m […]
Geotrax, ALL Aboard!
June 8th, 2008 Mom So, I sat down with Nicholas yesterday for quite some time after being requested to “come play with me mommy” (YAY!!!!!) And, while his playing was always appropriate, he just blew me away. We were downstairs playing with his geotrax trains which we have layed out all over the floor of his playroom and he […]
He ate a slice of cheese!!!!!!
June 6th, 2008 Mom Nicholas went into the kitchen, opened the fridge, pulled out the bag with the brick of sliced american cheese, brought the bag into the livingroom, handed it to me and said, “cheese mommy”. So I pulled out a piece of cheese and handed it to him….. and…he…ate…it!!!!!!! and then he had another piece!!!!!!!! So this […]
“Are you busy, Mommy?”
June 6th, 2008 Mom So, Nicholas was up playing in his room tonight and comes downstairs to get me. He comes over to me as I am sitting at the dining room table and says, “are you busy mommy?” and puts his hand out for me to come with him. Shocked that my son just asked me that, I said, […]
Green Our Vaccines Rally – Washington DC
June 4th, 2008 Mom Well, we’re back from Washington DC! All of us had a fantastic time and were so happy that we had the opportunity to stand up and be heard! The weather held out for the walk and the rally, which was amazing since it had been thunderstorming before and after. We’re all sunburn – but still […]
“The last three weeks have shocked us!”
June 1st, 2008 Mom I just spoke with Nicholas’s preschool teacher… here’s her update: She said that Nicholas is doing great! They are having so much fun with him. He chooses what chair he wants to sit in for their circle time. He no longer has to be seated in a chair with a seatbelt! (Circle time happens at […]
Progess Update
May 29th, 2008 Mom We’ve continued to dive twice a day for 1 1/2 hour each dive – and continue to see gains. Did I mention that Nicholas has stopped throwing up? He seems to be tolerating food much better – he hasn’t thrown up since we started hbot. He’s acknowledging us more and more everyday. We can no […]
14 days of hbot are behind us
May 24th, 2008 Mom We’ve done about 27 dives so far, and will do another dive tonight making it our 28th dive. We still have 32 more dives to go and we could not be happier with Nicholas’s progress. Seeing him come so far so fast is like an absolute dream come true.
What a different kid!
May 24th, 2008 Mom So, we just spent a couple of hours outside with Nicholas. Just hanging around the house, in the backyard, in the front yard, etc. Boy, is he a different kid! Usually, we’re outside, running down the street to either walk with him or bring him home. Or if we’re in the backyard, he’s doing his […]
