Posts Tagged ‘Nicholas’s Recovery Story’

Today’s update

Today was a great day – we just hung around the house. Nicholas was very cute this morning – we lied on the couch for hours this morning watching tv just being cosy and snuggling. If I get this for 5 minutes on an average day, that’s alot. He’s been great all day, thank goodness. […]

We survived grocery shopping!

So, we just got home from grocery shopping and Nicholas is getting into his spaceship with Grandma. We took Nicholas to the grocery store tonight – and I can honestly say that we survived a pretty long grocery trip without a tantrum and without my back feeling like it is going to break and every […]

The dreaded bloodwork…

So, we had to take Nicholas for bloodwork yesterday. Yes, the dreaded bloodwork. Ug. My nerves were shot 2 days in advance. I had the typical blood pressure headache and everything. So, we get there and Nicholas is fine in the waiting room and when they called us back, he walked into the room and […]

Beach baby…

So, last week Nicholas and I took a little vacation and spent a few days with a girlfriend of mine at her house by the beach that her family rents every summer. Last year, Nicholas really surprised me in so many ways, we had such a good time. This year, we had NO such luck. […]

It’s review time…

So, today I have spent the majority of my day going over Nicholas’s current supplements – checking dosages, reviewing my notes to see what I need to add, what I missed, etc. I am just reviewing Nicholas’s last set of bloodwork and have dug in a bit deeper to research low plasma homocysteine (which he […]

Chunky Monkey

In the ER the other night, we weighed Nicholas – he weighed in at 54.4 pounds. On June 1, he was 48 pounds and on May 1, he was 43 pounds. I’m a little concerned with the rapid weight gain. I know that hbot will make them feel better and we did see him start […]

A Glimpse into normal

Every now and again, we get a glimpse of the NT Nicholas. Today was one of those days. Daddy was outside mowing the lawn and Nicholas was watching him through the window. Once Daddy was done, he had to blow off all of the grass clippings because we’ve been so busy the grass got so […]

Where oh Where oh Where is Shadow?

As I am sitting here researching supplements, Nicholas is watching Bear in the Big Blue House. When Bear looks for Shadow, he sings a song, “Where oh where oh where is Shadow? Where oh where oh where is Shadow? Where can Shadow be?” Nicholas just sang along to the song. All the words. No approximations […]

Reading between the sheets

So, I saw these Cars sheets in Target I just had to get for Nicholas’s bed. Chock full of toxic chemicals, I’m sure, but hey, every once in a while, he needs something fun too. (PS – wash anything like this in Arm & Hammer laundry detergent to get the flame retardants out of them […]

My little man is quite the trooper!

So, earlier Monday, Nicholas started grabbing the box of band-aids and saying boo-boo and pointing to his foot. At first we thought it was him kidding around, but it continued for quite some time. Then he started not putting his foot down and putting weight on it. We tried to keep ice on it, but […]

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